A gentle reminder to be vigilant
As a caring member of this Club, I would like to gently remind everyone to perhaps be careful when answering new posts. A few isolated messages that find their way on to the Pacemaker Club “Most Recent Messages” page, may not always be what they might first appear to be. From my own observation and from messages received from well respected members, evidence of troll like activity is still occasionally occurring and a few posts that appear may be of questionable authenticity.
I believe such posts are from the same person or persons, using a different user name, email address and location each time they post a new message. They pose as genuine members of this Club seeking advice on a range of worsening health conditions and symptoms, sometimes totally unrelated to their condition requiring pacemaker support. They often report a questionable history of medical procedures and/or medical negligence. On the other hand, they may post seemingly senseless messages to gain attention.
Some of these messages clearly will be from genuine members seeking attention and needing reassurance, attention and reassurance perhaps that is difficult or impossible to satisfy. These members often need professional help and understanding, help that cannot be provided by the Pacemaker Club. We continue to patiently encourage these members to seek this specialist help outside of the Club for their own well being and safety.
If you decide to answer a new message which you are uncertain about, it may be helpful to question the member first, especially if the member has no convincing history to support their post, but let us always try to be polite when responding. Kindness, patience and understanding is what we do best here, even when dealing with those who might prefer to cause deception and disharmony.
Of course it has to be said that the vast majority of Pacemaker Club members, particularly new members seeking advice for the first time about their new pacemaker, or trying to come to terms with their new medical diagnosis, are most definitely not trying to disrupt or deceive members of this Club and need all the help they can get. Genuine members are always welcome to post.
Many vulnerable members of the Pacemaker Club battle daily with their chronic health conditions and come here looking for support, encouragement and reassurance and most of them are clearly helped by our caring community. However a few members have written to me over recent months about the occasional, disturbing posts/comments they have seen on the Pacemaker Club and which has caused them a great deal of distress.
I hope like me you will all wish to remain watchful to help keep this Club a safe place where we can all come to ask questions and receive genuine support.