Pounding pulse and blood pressure issues

Hello I am new to this group. My heart failure was one year ago this week. It took the docs two months to figure it out before getting a pacemaker. I have a Saint Jude two lead pacer. It has been a roller coaster ride from feeling brand new right after pacemaker to several low times with issues and problems.

So my questions today are about feeling my pulse and my blood pressure. My pulse, my heart having the senstation of beating very pronounced. This has been about a week or so now. It varies in intensity. Last Thursday was day two and I almost went to the ER as it was so strong and feeling wrong and couldn't sleep. I went and walked for an hour at two am and it calmed down that night. It has subsided in strength but still pronounced feeling strange.

I feel this strong pulse, not normal sensation between my heart but more so in the stomach area. I did have stomach issues as well but I thought I had solved them after reading several holistic books and following the advise. The pulse problem seemed to start shortly after feeling I had solved the stomach issues. My resting pulse is good at 60 BPM however as soon as I start doing anything it moves up over 100+.

I also have a problem with big swings in blood pressure like 150/102 and two hours later 76/60. When I'm phisically active it drops nicely but stays high when doing nothing. I have been working hard to get off all prescription meds which I have except BP med which I adjust as needed depending on activity. 

I look forward to any and all suggestions and help. I am not a big fan of doctors and really like using a community of support from others with the same isuue or problem. I have been doing that with a community online for fifteen years with my same lymphoma and self treating sucsessfully for over a dozen years now.

Thank you for your time and help.

Kirk


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