Brand new

Welcome

by Pinkit94 - 2017-08-29 22:44:54

Hi Linda,

I have had my ICD/pacemaker for almost a year, it barely ever bothers me. When going to the cardiologist always ask about the settings on your device, ex. What is it minimum and maximum heart rate set at? Also the percentage paced. Jot those answers down, best of luck on your recovery! 

Paula

Do you want to know?

by MartyP - 2017-08-29 23:04:51

I'm about 14 weeks in and have found the docs don't tell you much about what you may encounter.

I would ask some questions such as:

I've read about PVC's (premature ventricular contractions) ask what they feel like so if you have them you'll know they are.

Ask about lifting things, driving, other activities.... how long to wait.

Ask about the remote communications device, how to use and for what reasons.

Ask about what to do if you get anxious or should some depression start to creep in .... it happened to me and some others.

In general what might you encounter over the few weeks and months as it takes a while to process what you've been through and to get used to the PM.

You may want to give your PM a name, I named mine "Sparky" 😄

Dr visit

by The real Patch - 2017-08-30 12:30:45

They will probably place a large donut magnet over your device and do what is known as an interrogation where they download the data collected by your device. Peace of cake. They may do a test or two that you feel a little odd but nothing to worry over.

What your job is is to list everything you are experiencing and how you are feeling so they can determine whether they need to adjust the device settings for your specific lifestyle. I would suggest you keep a journal of all things that may be related so that each visit you can discuss with the doctor and stay ahead of the game. Make sure you list any questions that arise in your mind so you don't forget when you are with the Dr.

Not sure why MartyP wants you to ask about PVC's unless it's for his benefit, but that raises a good point. Any questions need to come from you. Your situation and condition are different than mine or others and you are what is important. You should know how your device is set up for pacing, ATP (Anti-Tachycardia Pacing), and Therapy (Jesus Jolt)

Thank you

by ljharper62 - 2017-08-30 14:00:32

Thank you everyone for the suggestions!

I made a list of 8-10 questions that I have for the doctor, mostly pertaining to how to adapt my usual lifestyle with the pacemaker and to set expectations for future appointments.

I'll keep you posted on how it went

Appointment Today

by ljharper62 - 2017-08-30 21:42:19

First follow up is complete. I'm pacing at 33%. I'm set in 60 -130 bpm range. Got my remote device and had a bunch of my questions answered. I also had a stress test and echo done right after the pacemaker was placed. Both came out great. Very happy with my medical team for all their help and caring.

Doctors visit

by Windallyag - 2017-08-31 02:21:29

 Hello Linda , They will download your pacemaker and check its function etc. ask your questions and make sure the cardio answers them.

it is no dramas but I can understand what you may be thinking and feeling.

i have had one for a few years and I normally don't even feel it but it is good to know that it keeping me going and pacing 97% of the time. It is set on 60 bpm.

I hope  it all goes well, and try to relax.......