Hi new to the club!

I am so grateful to have found this site. I was asymptomatic with 2nd stage heart block a heart beat of 28 and no idea that I was so close to death. I got a pacemaker on 7/18/17 so far I have felt happy, terrified, depressed, exausted, I feel fluttering in my heart and pain and soreness in my shoulder. Reading just about every post on this site has made me cry with relief. I get it, I'm not the only one, I'm not imagining things I think that I'm pretty normal and this info is like winning the lottery!! Thank you for keeping this website going and I will keep reading and hopefully my posts will bring relief to some one else. 😎

5 Comments

Welcome to the Club, EV

by NiceNiecey - 2017-07-23 21:37:59

You're 3 years younger than me but we have the same initial diagnosis.  In the 3 years I've been paced (now 100% in both chambers), I have reflected many times with gratitude that I was not called to meet my maker just yet.

The more I learn on this site, the more I realize how little I know.  But it helps so much to read the questions and answers from those more experienced than the rest of us.  Keep joining in! Your experiences are also valuable to the group.

Niecey

 

Perfectly Normal!

by Grateful Heart - 2017-07-23 23:56:51

And you will get used to your "new normal".  It takes a little time. 

The more you learn about your condition and PM, the more comfortable you will become.  Keep reading and ask questions, welcome.

Grateful Heart

Hiya!

by PQRSTantrum - 2017-07-24 01:13:05

Welcome! I'm 25 and had super unpredictable high-grade AV block that was likely to progress. I was also a collegiate athlete and had NO IDEA I would need a pacemaker until they monitored my heart rhythms about two months ago. Got my pacer on 7/17!  Recovery has been rough so far for me, but just think of how lucky we are that they caught the problem! Now we can live long, productive lives with our little battery-operated personal health guardians! Hang in there, we're going to get through it! <3

Feel at home

by Big Dude - 2017-07-24 04:28:59

i too am going to be a new member. I've struggled with intermittent symptoms all year, and had managed to convince myself that I must be making it up, although how you psychologically give yourself a heart rate of 35 bpm during the day, I don't know! I hope your new PM is doing it's job and you're feeling better. x

just keeps on giving

by bridgermichael - 2017-07-25 19:46:33

hi 

lots of positives to be gained from realising that the rest of your life can be controlled and you will not have a drop or episode that comes out of the blue to really upset your day ! it takes adjustment but once you have a good old read you realise that you have an implant for a reason - it's there to adjust you and bring normality and all u need to do is have it checked once or twice a year for parameters - battery check and signs of weird activity - they down load chart - send to cardiac team and assessed - future models will be wireless and battery free and simple - until then - embrace it and realise how much life there is for you to enjoy - go and enjoy ! 

 

mike b 

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