Energy/winded

Sick Sinus Syndrome

by IAN MC - 2017-06-26 13:56:05

I see that you suffer from SSS . This is an intermittent condition !  I find that i have good days and days which are less good. Your sinus node is your heart's natural pacemaker but SSS means that your sinus node has become "lazy" . It hasn't given up altogether it has just become lazy !   It may only be lazy some days.

On its lazy days you will have less energy , on its good days you will feel better. The pacemaker helps enormously to smoothe out the good from the bad but you may still be aware when your sinus node is playing up.

Just my views,  but the day-to-day differences certainly reflect  my experience as an SSS sufferer.

Ian

Sss

by WiredandTired - 2017-06-26 13:58:25

 Thanks Ian! That makes total sense. That makes me feel better knowing others are experiencing it too and that it's just part of the deal.

Sss

by Jojo - 2017-06-27 09:05:30

I'm exactly the same, Thankyou for clearing that up ian. This group is great for helping each other. 😊 X

SSS

by Biggles22 - 2017-06-27 17:49:53

I am the same and having read this it makes sense.   Thank you this has really helped me understand 

Good and bad

by Gotrhythm - 2017-06-29 14:23:21

Good days and bad days are the name of the game with heart conditions.

That being said, don't give up on the possibility of improving your settings.

The techs are going to choose the lowest HR you can tolerate in order to save battery life, but only you can evaluate your quality of life. From where I sit quality of life trumps quantity every time.

What was you normal heart rate before the SSS showed up? If it was above 60, see about getting the pacemaker set as close as possible to your "normal."

The difference between 65 and 70 was astounding for me. I could tell the difference immediately. Everything, walking, thinking, conversing, was instantly easier, and for the first time since I got the pacemaker, I felt like MYSELF.

I sitll experience good days and not as good days, but the good days are better. The not as good days are better too.

Gotrhythm

by WiredandTired - 2017-06-30 06:59:35

To be honest, I never paid much attention to what my normal heart rate was.  I wasn't much of a doctor-seer.  Ha ha.  Like I've said in previous posts, I was hardly ever sick and not real great at keeping up with annual/well visits. Lesson learned.  Message received.  I felt good so that was good enough for me!  I think I am going to see about maybe having them bump me a teeny bit more.  I'm at 60 now so maybe closer to 65, like you said.  As long as I don't start feeling chest pressure or something weird like when they had me set at 50.  That was awful. Now, I'm a little scared for them to mess with it because it's "sorta" good...haha.  Quality over quantity is my feeling too, all day long.  I'd rather replace batteries every THREE years or something than feel bad.  It happened again just now, actually.  Yesterday, I "fast-walked" almost 4 miles....got winded, but appropriately so.  Just now, I woke up to feed my dog, walked to the refrigerator and got winded.  Not horribly, but still. Weird.

Thanks for the advice.

Winded

by Wiredforlife - 2017-07-10 15:20:48

I've been winded since I became PM dependent in 2015. Got my PM in 2011. I'm always complaining about it but still have no answer. I simply can't walk 100 feet without losing my breath. 

Terrible

by WiredandTired - 2017-07-12 14:23:02

Mine is getting better.  I was 25 lbs lighter before this SSS hit and I had to stop working out so I think some of my issue was being out of shape.  I still have it sometimes, but it's getting better now that I'm getting exericise again and getting the extra weight off.  I hope they find your answer soon.  There is so much the doctor's don't warn you about before the surgery - things you don't expect like this.