A New Outlook

I recently posted comments about a bout of arrythmias, wildly swinging heart rates etc. that prompted me to get a walk in appointment with my cardiologist. I was fitted with a 30 day montor and felt good for a day and then experienced strong rhythm problems, a BP that stayed at 90 or below and a heart rate that went from one extreme to another. This was relayed to the monitoring agency and they messaged my monitor and told me to phone them. I did that and they told me they were phoning the emergency room. The ER then called me to come in ASAP. When I arrived at the ER they were waiting for me and did an EKG immediately. I was surprised at the quick reaction of the technician pulling off the leads after a very brief look at the monitor, loading me in a wheel chair and taking me to a treatment room. They started an IV right away and took an Xray of my heart. My resting heart rate was well over 200 and very erratic. The attending physician was getting ready to administer another drug (I don't remember the name of it) when it was as though the good fairy threw the wellness switch and everything leveled out. I was hospitalized for 5 days, ate some awful food, needed to have the IV line relocated twice, and enjoyed all of the night time visitors flipping on a bright light and checking vital signs and administering drugs. I did enjoy the latest techology of a wi-fi heart monitor that allowed me to get to the bathroom without calling for a nurse to disconnect me. So, why am I writing about this? One reason is my need to talk about the attitude readjustment this has caused for me. For 14 months it has been pretty smoothe sailing with my PM.
Now the new normal for me is to expect the unexpected and to work at continuing to have a positive attitude. They discharged me with completely new medications to include taking Eliquis and Sotalol, replacing my Flecainide, Bosoprol and baby aspirin. It was like postpartem depression. I was afraid to leave my old medications. The general feedback from my very experienced nurse friend is that the stress in my life is killing me--an exaggeration. But she told me that stress releases hormones that affect the heart. So again, why am I writing this? I have certain inescapable stresses relating to managing the care of my 102 year old Mother, her recent fall and broken bones, a mentally ill younger sister and the recent death of my older sister after years of suffering with a rare incurable disease. How do you put these things aside? When I was in the ER, I was amazingly calm, just accepting the situation, turning myself over to fate almost like the attitude I have when I fly. I do meditate and record my own relaxation music, but there is a little, unrelenting voice that keeps telling me to keep tying to help my Schizophrenic younger sister although no amount of Therapists have had much of an impact over the last 40 years. So I am working on a new outlook/attitude and accepting the unexpected. I also finally bow to the need to stop procrastinating when I feel bad and to get to the doctor. I think that we women often have an illogical fear of making a fuss and just hoping that if we wait things will get better. Lesson learned, don't be afraid to get help.


4 Comments

Know what you mean

by Theknotguy - 2016-01-22 03:01:34

Was in the same sandwich you were. Older multi-need step-mother, younger son, work not good. Unfortunately they can't measure the mental stress. Sorry your stress if off the charts. I didn't have the schizo relative so I wasn't as bad off as you.

The only thing I can offer you is to talk with your EP/cardiologist. Ask what to do the next time your heart takes off. See if he can give you a ramp up set of meds to stave off the high heart rate before hitting the ER. I had a procedure to follow in case it happened me again. Since things have changed yet again, I shouldn't have that specific problem but in case it does, I know what to do.

Been in the ER too. Everyone else off the wall, I'm the voice of calm in the middle. Looks like we've been there and have the t-shirt and hat.

The other thing to ask your EP is if the St. Jude has any programming features that can help with your heart situation. I was going for the pill-in-the-pocket routine but I have a Medtronic with some programming features. EP decided to go the programming route and save me the medical insurance dollars. Don't know if St. Jude has anything but it's a question to ask.

If you have any time or any medical dollars, you might want to talk with a psychologist or at least, a disinterested third party. Maybe they can't help your situation but maybe they can help you unload some of the mental baggage. If nothing else do you have access to a therapy dog, or just a dog? You can't beat a cold nose and a warm heart. A licensed massage therapist has helped me too.

I wish I could do something besides offer you suggestions. Hang in there.

Thanks for your good suggestions

by Artist - 2016-01-22 04:01:20

I have a follow up appointment in a week and definately will ask if there is a plan B if my heart goes into overdrive again, so that I have an alternative to try before going to the ER. I am carrying around alot of baggage and fool myself into thinking it is not still lurking in my subconscious mind. I hate to dump on friends and have always resisted the idea of counseling. I will pose the question of how I can better deal with the stresses that release those harmful hormones during my follow up appointment. Hopefully he will not suggest some sort of a drug. As I type this my little, old pug dog is snoring on my lap. He is a blessing and I have lots to be thankful for. Perhaps some volunteer work would help.
Thanks for your comments

Hormones

by Sheppey - 2016-01-22 06:01:37

I read your post with interest. I am sitting here relaxing ,with fast A/F of about fluctuating to 120bpm HR.
Mine introduction to A/F ... was April 2014... feeling unwell, had a blood test, Doctor advised I had long standing Hypothyroid? Given Levothyroxine: After about I hour- being rushed to A and E ( Resus).
Diagnosis... fast A/F ... bouncing from 40 to up to 289
Controlled after 10 hours ,with multiple drugs back to Sinus Rhythm.
Told attending Cardiologist I think it was the Levothyroxine that caused this? I was totally ignored?
Kept on this drug for further few weeks... in and out of Resus: Finally got a Consultant to stop talking and listen... checked with Lab ... I was not hypothyroid and did not require the drugs.
My diagnosis.. Sick Sinus Syndrome. Sinus Pauses. Brady/Tachycardia. Chronotropic Incompetence.
Loop recorder Implant -one year.
August 2014 Cardiac Dept for PM implant... delayed for more investigation.
PM emergency implant December 2015.
20 visits to A and E, plus admissions.
Medication ... Bisoprolol 10mg ... Flecainide 100 mg x2
Up at 04.30 am. Fast A/F... up to 120 HR.
Passing time scribing this.
Had a Cardiac Catheter Investigation on Saturday.. Now have a Radial Artery Occlusion?
Had a crew of Paramedics with me yesterday-Thursday- for 90 minutes...Decined A and E transfer.. 120 HR.
Stay at home and let my drugs work?

I can affirm that hormones play a part in A/F... they certainly did with me?

All the best ,keep smiling!

Alot to Deal With

by Artist - 2016-01-22 10:01:43

You certainly have alot to deal with. They also checked my thyroid and it was normal. When I was taking Flecainide and Bisoprolol, I was taking exactly half of the doseage that has been prescribed for you. We are all different in how we react to medications. One of the most difficult things is finding the type and doseage of medications that are right for you. It is normal to have a trial period where they they adjust Pm settings and medications. With your symptoms, I would not hesitate to call the ER and/or your doctor when you have troublesome symptoms. It is your life. Better safe than sorry. I hope things level out for you and your PM helps.

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