Driving to work with thoughts

Driving to work this morning for some reason many thoughts went through my head about my issues and how I ended up here. First I would like to say I read everyones post daily and find them all interesting and some helpful to my situation.

First I was diagnosed with Junctional Escape Rhythm around 2008 and was told not to worry it is a "Normal, abnormal heart beat" nothing to worry about. So a few years later and symptoms becoming a little more intense my doctor on base did a few EKG's over time and insisted I needed a pacemaker and said I had a lot of issues with my heart, "Heart block type II, which was causing my chest tightness and breathing issues. My pulse at this time stayed in the upper 30's to lower 40's. He sent me to a cardiologist, a different one from the first time as my husband is in the AF and we move a lot. So this cardiologist looks at my EKG and said no it is "Isometric AV dissasociation". Said nothing to worry about right now as he felt I was too young for a pacemaker and the pauses in my HB were nothing to worry about right now. Well about a month after that visit I had a tumor taken out of my breast and my heart issues got worse for some reason. I constantly felt like someone was sitting on my chest and I would wake up in the middle of the night gasping for air. During the day I had to shake my head a lot to focus from the dizziness. While in recovery the nurses kept panicing as the BP machine alarm kept going on as my pulse kept dropping in th 20's.

So I went back to my doctor to find out why I was having a hard time breathing and he did another EKG and said it was because of my heart, but sent me to a pulmonologist and back to the cardiologist. Well the cardiologist said if you lost 15 LBS that would help your breathing issues. While I am not skinny I am not fat either. I am 5'5" and weigh 155. I broke down in tears when he said this to me. Next was the pulmonologist appt. she said I was fine on her end, but she looked at my EKG and said your problem was with my heart. I told her what the cardiologist said and she said get another doctor.

Well we moved to OKC right after that appt. and the doctors here on base sent me to a new cardiologist here after he did an EKG and took my BP, which always stays high(another story..lol)

So this cardiologist said lets start over, he did an eco, stress test (which at that time gave me nitro pills) the results were not good with my chest tightness and then he did a 48 hour holtor monitor. When he got the results he said you should have had a pacemaker a long time ago. My pulse got down to 27 with about 2346 pauses lasting 3 seconds, my average heart rate in 48 hours was 42. There was a lot more things but this was the part that I understood...lol

So one week later I got my PM(October6th)I still have a few issues that need to be taken care of, but I am moving forward.

I guess my point is keep asking questions, just because they are doctors do not mean they have all the answers or some do not want to take the time to find the answers. It has been a long ride for me, but I am greatful for where I am at right now and greatful for everything that is posted here and for those who take the time to answer all those who have concerns!!


6 Comments

Artist

by Tinkergirl - 2015-02-05 01:02:11

Actually my night time breathing and the weight on my chest has gone away since I got my PM. If it had not checking on sleep apnea was going to be my next avenue. My heart rate stayed low even during the day before dropping real low at night. The pauses happened all through out the day too. Who knows I may have sleep apnea too, heck I have enough family members on my dads side that have it that it would not surprise me...lol

The issues I have now even with the PM is chest pains, tightening of the chest and when I go to exercise after 15 min. my chest gets soooo tight I have to stop. They adjusted the PM, but it still does it. My cardio is concerned my cirrculation is still not good. I have another interigation tomorrow and see my cardio on Monday, hopefully we can fix the chest issue!!!

Thanks for your thoughts..

Gasping for Air

by Artist - 2015-02-05 01:02:20

Waking up gasping for is a very classic symptom of sleep Apnea. Untreated Sleep Apnea can have a direct impact on your heart and contribute to the development of arrythmias. Throughout my various cardiac evaluations my cardiologist, EP and general practitioner repeatedly asked me how compliant I am in using my CPAP machine at night. Now that I had a PM implanted 3 months ago, I am more aware of feeling noticeably more fatigued and prone to bouts of Afib if I have skipped using my CPAP machine the previous night. My somewhat long winded point is that you should definitely have a sleep study to determine if you have sleep apnea. I was stopping breathing more than 17 times every hour and had an extremely low heart rate at night. Lack of sufficient oxygen can contribute to all sorts of health problems.

Finding the right Doctor

by Grateful Heart - 2015-02-05 10:02:43


It's so important (as you know) to find the right Doctor who will treat your condition based on your heart and not your age.

Good for him for starting over.

Grateful Heart

Welcome to OKC

by Busdriver - 2015-02-06 01:02:56

Tinkergirl, I live in the OKC area, Norman to be exact. I have what I believe to be a good cardiologist in OKC at Integris. His name is Dr. Alan Puls. He is one of those people who is great at what he does but his bedside manner is not the greatest. He's all business, no bs. I f you want a doctor to hold your hand, he isn't the guy! But, I thank God I was referred to him because he saved my life. My heart rate was down to 35 bpm and he immediately took me off some meds that could have been causing the condition. When that didn't work, he implanted the pm and I feel great. Maybe you want a second opinion. If you do, I would recommend Dr. Puls. Lucky for you, there's a lot of good heart doctors here. I hope you find one that gets you taken care of and back to living!

Busdriver

by Tinkergirl - 2015-02-06 11:02:21

Thanks!!! So far so good here in OKC. Also thanks for the name of your cardiologist, so far I like mine, but you never know. He actually has taken more time with me than the other cardiologists I was sent to especially the one in Little Rock.

Again thanks and have a great weekend!!!

GingerVa

by Tinkergirl - 2015-02-09 10:02:32

Yes we are stationed at Tinker AFB, so I tried to be creative with my name...lol

Yes it is nice when you find someone that wants to figure things out!!!

You know you're wired when...

You are always wired and full of energy.

Member Quotes

I had a pacemaker when I was 11. I never once thought I wasn't a 'normal kid' nor was I ever treated differently because of it. I could do everything all my friends were doing; I just happened to have a battery attached to my heart to help it work.