Newby

I just joined this site, I'd been meaning to join a support group since receiving my ICD. I received mine in 2008, I've been 'kicked"
7 times! Once I was kicked 4 times in one night in 2011, while performing at a Music venue ( Blues /Jazz Club ) I've experienced tremendous anxiety from time to time, but I've gotten better, after finding out that my "kicks" were valid and saved my life! I was concerned about playing live concerts, so I stopped for while, I've since regained my confidence and have continued performing, whenever and wherever. I hope to meet and converse with other Musicians / Artist who share this wired lifestyle we're managing and living with..moment by moment. Peace!!

1 Comments

Sunnywishes

by windflight - 2014-02-26 11:02:53

Thanks!
I was beginning to think no one had noticed my entrance.
appreciate your acknowledgement and I wish you the same joy. One other thing I would like to mention here is, the response I've gotten from family and acquaintances, after they realized what I've experienced so far, at first I thought I'd receive a modicum of understanding of what I'm experiencing, boy was I surprised when that did not occur, what I found was indifference or folks who assumed that they knew for sure what was going on with me, without asking questions, they've compared me to some other person they know at work or that they may have heard about, really completely uninformed altogether about what occurs when implanted with an ICD. "you're fine", you look great! can you still do "everything?" we all know what the everything is and the jokes that accompany that inquiry.I've always held extremely stressful jobs or parallel careers, other than being a Musician, out of the fear of poverty more than anything I'm sure; USAF, Boston Transit Operator, Social work, Public School Pupil Transport Administrator, and a few others, the pay was great on most, they also avail me the time to continue to perform Music and buy equipment. Now I'm retired from my Day Jobs, my time is pretty much my own, my lifestyle is dialed back, but my thinking is now clearer than ever, funny all the stuff I paid no attention to is now amplified, I've realized that most people were around me, because of what I had or what they thought I could provide, now that that's dialed back, their affection and attention is also..like they are waiting for me to die. now that is an awful feeling and predicament. I am handling if pretty well, but it does hurt, I've communicated this to all involve, but I fear a lot of my relationships will not survive this period in my life...probably for the best. Peace

You know you're wired when...

You’re officially battery-operated.

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