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Anybody from Australia
- by Marianyork
- 2013-12-10 01:12:17
- General Posting
- 2801 views
- 15 comments
Hi everybody,
Just wondering if anybody is from Australia,on this site this is such a good site and has been my constant place of reference when things bothered me, I usually have my fears dispelled by knowing I am not the only only going through this. Thank you all for your words of encouragement to members and for your very informative post.
Maz
15 Comments
I am
by Alma Annie - 2013-12-10 03:12:38
Hi Maz,
I am from Adelaide, and have had my pm for 21/2 years. Where are you?
Alma Annie
pain
by Alma Annie - 2013-12-10 04:12:28
I remember only having pain and discomfort for about 3-4 weeks, then I had to remember not to lift my arm above my shoulder, as there was no pain to remind me. I knew nothing about a pm; my EP does not communicate, but saves lives ok!! I learnt everything I now know from this site. I had pm as an emergency after an ablation, when my heart rate went from 200 a minute to 23. pm is part of me now, although it has shifted, and since a mammogram 18 months ago (the new digital ones) my leads are under my arm and are uncomfortable. The radiographer quite violently pushed the pm over to the left. Ouch.
What part of Qld? I lived on Sunshine Coast for 4 years, 1992-96. Buderim.
Alma Annie
From South Austraia
by Roys - 2013-12-10 04:12:32
Hi
I'm in Adelaide. What did you get your PM for? I got mine for the drugs I was taking for A-Fib. Had it 3 years now, I had trouble with my shoulder too. They found I had a torn rotator cuff in my shoulder.
Cheers Roy
From Australia
by Marianyork - 2013-12-10 05:12:25
Hi all,
I am on the Gold Coast in Queensland and have been here for 30 years. I had my PM after SVT since 18years old. Lots of diagnosis over the years including (all in my mind) finally got a diagnosis in 1988, when I had an ECG during an attack. From the untIl now 3 obligations, the last one resulting in heart block, so had SVT and heart block.
Very interested in the rotator cuff diagnosis my cardiologist said it may have been due to the wires being too close to the nerves. But as a nurse I have been explaining the pain as what I thought a rotator cuff would feel like. What was the treatment for the rotator cuff pain?
Rotator cuff
by Roys - 2013-12-10 05:12:39
Hi: I had an ultrasound to find a tear which was 15mm long, and had to go to a Physio for treatment and shoulder strengthening exercises so I can build up enough muscle to support the tendons/ligaments.
Take care of that shoulder!!!
Roy
Rotator cuff
by Marianyork - 2013-12-10 08:12:47
Hi Roy
Thanks for the info re your rotator cuff, the more I think about it the more I think that is what I am experiencing. Seems to get better for a couple of days then I get a bit more adventurous with my movements and it comes back again, so I will try and rest it and also go to the physio.
My cardiologist just nods and says it will improve when I mention it. Again I say this site is just so good, I think I would be in a very dark place if I hadn't discovered it, I have been having a look to see if there is any way I can support it as I would hate to see it close down, it is just so important for us, as PM,s can be scary things.
Maz
Rotator cuff
by Roys - 2013-12-10 09:12:30
If I was you, I would go to my GP and ask him to send you for an echo, so that the physio knows what treatment to use.
Roy
Rotator Cuff
by Marianyork - 2013-12-10 10:12:08
Thanks Roy i will, your comments are much appreciated .
It really annoys me as the PM site/ pain etc is good and if it wasn't for the arm thing I think it would have been a lot easier. I didn't even have any bruising, unlike a lot that I have seen posted. I only had slight yellowing immediately around the site and nothing else .
Will keep you posted on how I get on
Maz
South Aussie
by Gypsie Jo - 2013-12-11 11:12:42
Hi There,
I am in South Australia and have had my pace maker for 2 and a half years
I wish they could put Solar batteries in us, so we can get recharged by the sun at the same time we are getting the all important Vitamin D :)
South hips land
by Marianyork - 2013-12-12 07:12:52
Hi Peter
Thanks for your encouraging words, unbelievably the pain in the shoulder subsided around 2am this morning and I have had a relatively pain free day (no meds) fingers crossed it keeps up. I am still getting used of feeling the PM in my chest but I am sure that will go in time as well.
My one complaint is that the doctors never tell you that you may get shoulder pain, feel uncomfortable etc. if they did it might prepare you just in case. Again thanks for your words and may we all continue to pace!!!!! Well
Maz
Rotator Cuff Info for Maz
by donr - 2013-12-12 09:12:11
My wife had TWO of them repaired. By an outstanding orthopaedic surgeon who does a lot of them.
You, BTW, are the correct age for a woman to spontaneously suffer the joys of a failing/torn rotator cuff. He said he could NOT explain why, but it was a real phenomonem.
There comes a limit as tp the length of tear that you can tolerate & compensate for w/ PT, than it requires surgery to repair.. Wife had one side he was able to go in from the top w/ a 'scope & just trim the very small tear smooth & clean up some calcium deposits in the joint, This happened in 1996 & she has had no recurrence. Her second was beyond simple repair & required a slit in the upper arm & a screw into something to stop the tearing further.
He told her that she would tell him when it was trime to repair it by coming into the office & saying "I'm ready" because the pain of daily living was unbearable. He was correct.
He had a very simple test that you can perform to verify that it is a torn Rotator Cuff. You stand up w/ your arm at your side, elbow straight & locked. He puts his hand on your wrist & you push outward as hard as you can while he restrains your arm. Suddenly he lets go & allows the restrained arm to move freely. If it's a torn Rotator Cuff, you will tell him by your scream of agony at the excruciating pain in the cuff. He will then say "I'm sorry."
Cheers!
Don
I'm from Tasmania
by shellbell - 2014-01-07 08:01:15
Hi Maz,
I'm 48 and live in Burnie, Tasmania..
I'm 15 weeks post op from having my P/M fitted for Sick Sinus Syndrome....
I have found this club so helpful before and after my surgery...
I hope you fellow Australian s are all happy and well
Regards
Shellbell
:)
Much better
by Marianyork - 2014-05-18 09:05:58
Hi all, well it has been nearly six months since my PM implant, I have just come back to the club after some time . After reading my earlier posts, I am amazed how things have changed and improved, I guess you forget how bad is was. Thing have improved heaps, sleeping is great, any side is fine. My arm has improved out of site and I am no longer constantly aware that I have a machine in my chest unless I run my hand over the site. I do get tired a little and will check on my meds at my next visit.
I did have to have a couple of tweeks to get things happening as they should, but my life has changed big time. No longer have have faint feelings nor attacks of SVT, can walk up stairs without nearly passing out, am not huffing and puffing on the slightest exertion, so life is good at the moment. For all the newbies,a hang in there it does get better.
Maz
You know you're wired when...
The mortgage on your device is more than your house.
Member Quotes
So, my advice is to go about your daily routine and forget that you have a pacemaker implanted in your body.
From Australia
by Marianyork - 2013-12-10 03:12:07
Hi I am in Queensland and have had my PM for three weeks, so I am a newcomer to this. Wasn't the breeze everybody said it would be before I had it done, but hopefully will settle after time. I have had terrible nerve pain in my shoulder and arm which has been far worse that the PM op site, it has settled a little but still giving me a fair amount of discomfort. Thanks for your reply it's nice to converse with a local as medical systems etc are often different in other countries, but I guess PM are the same .
Maz