Should we wait two weeks...?

Hi again.
Since my last post (palpitations after pacemaker)my daughter has begun taking up this squatting position again after very short spells of exertion.We were at the park on Sunday and she only ran for a couple of minutes playing with her brother and she was immediately bent over and breathless,then she started squatting down to the floor which we haven't witnessed her doing since 2011! The question is,do I wait 2 weeks or call them now? She's just missed a swimming competition as she's struggling to complete just one length.Am I being impatient and over-reacting or do I just keep on at them until they do something to address the problem? Any advice very gratefully accepted.Thankyou so much.Deb

5 Comments

YES call them

by Zia - 2013-10-08 01:10:34

Better to be safe than to wait and be sorry.

Call

by Pacemum - 2013-10-08 05:10:30

Yes I would call. I would report any changes like this.

Another thing

by Kady12.5 - 2013-10-08 06:10:05

Ok...went off to my daughter's routine Paediatric review so mentioned what was happening(they had notes through from Cardiac too) and guess what,her Thyroid Meds need increasing.This could be part of the problem.However,the Paed did advise that to be safe,I should call the specialist unit tomorrow so that will be my first thing to do in the morning.Thanks for all the advice.Even though I know I should always go with my gut,when Doctors keep sending you away it gets harder to be resilient....that's where all you guys play an important role.You reassure me that I AM right to be concerned and push for answers.At the risk of sounding very repetitive,this forum is great.Feels like we have so many new friends already and we don't feel anywhere near as alone as we did.
Deb

Concern

by Pacemum - 2013-10-08 07:10:08

Really hard when you are seeing so many people to get to the route of the problem. Keep pushing and hopefully it will be just a case of tweaking pacemaker or meds.

Now!

by golden_snitch - 2013-10-08 10:10:11

Call them now! There's something wrong, and it needs to be figured out rather sooner than later. If you call, and they don't agree to see her now, you can always take her to the E.R. But I'd definitely call now. Also, if you experience any problems with her cardiac care, you can call the "Arrhythmia Alliance"s helpline. They might have some good advice how to deal with NHS -->
http://www.heartrhythmcharity.org.uk/www/index.php

Best wishes
Inga

You know you're wired when...

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