Intro

Hi everyone,
I've been trolling around this board for a bit and decided to join to get some input if possible. A little background: I am 29 years old and was diagnosed with 1st degree AV Block at age 8 and was told I would never need treatment and would live a normal life. I played sports and was very active but always felt off. As I got older I continued to be active but started getting chest pains that would limit my activities. I didn't know anything was wrong until I applied for law enforcement and failed my medical due to a cardiologist refusing to clear me for that type of work. I did the echo, ekg, and holter tests. My HR dipped into the mid/high 30s many times at night and averaged about 50-55. I was told I had congenital heart block and bradycardia. I got a second opinion and was told I would need a PM in the next 3-5 years. I was not given any sort of medication, follow up or treatment. I finally was able to get a job in corrections that I passed and have been working graveyards for about a year. That has taken a toll on my body and I have been having symptoms and episodes of severe fatigue, difficulty breathing, feeling off balanced, can't sleep, weight gain, numbness in arms when I drive, chest pain, heart fluttering etc. I guess my question is why do you think they said I had to wait 3-5 years? Is something supposed to change before then? I feel like I've aged 5 years working the last year on graves. Maybe this has damaged my health? I have an appointment with my cardiologist at the end of the month but just wanted some opinions before I saw him. I feel I am too young and active to feel this way! :(


9 Comments

:-0

by pacergirl - 2013-08-03 10:08:24

Hi, your symptoms are very similar to mine. Mine became steadily worse at a very, very fast rate. Mine nearly ended my life. I'm no doctor, but you need a pacemaker. After you get one and only then you will come to realize just how sick you have been.

At the end of the day, only you can make that decision. I know I felt 100% better after I woke up from my surgery! I was ready to dance and laugh and most of all, Get Back to My Life!

Best Regards,
Pacergirl

Hi Rosy

by IAN MC - 2013-08-03 10:08:35

It sounds as though you weren't having symptoms when they told you that you would need a PM within the next
3 to 5 yrs and now you ARE having bad enough symptoms so the time has arrived.

Last time , they didn't give you any medications or follow-up treatment because there aren't any drugs that do much for bradycardia; it really can be a case of playing a waiting-game until the symptoms become bad enough to justify having a PM fitted.

Best of luck

Ian

ditto...

by lubro - 2013-08-03 10:08:44

After reading the following statement from you ... "severe fatigue, difficulty breathing, feeling off balanced, can't sleep, weight gain, numbness in arms when I drive, chest pain, heart fluttering etc.".....I would encourage you to try to see your Dr as soon as you can...numbness in the arm... chest pain... heart fluttering... these sound to me like symptoms you should not ignore. I'd call the doc and try to get in earlier if it were me...just saying...

Young Lady !!

by donb - 2013-08-03 10:08:55

Good morning Rosy !! From your posting your description of your past health is so very common to so many of us. On yur Dr's opinion that "you would need a PM in the next 3-5 years" sounds so familiar. My Cardiologist told my "nurse" wife that I would need a PM when I got old. She replied, "Don will not get old if he doesn't get a PM now". So I ended gettting my implant the very next day as I was in the hospital without an episode similar to what you described. My PM offered me a complete life "turnaround" as it has slowed my ageing process that at age 81 I'm still doing most activities I was doing at half my present age.
From your description of your present condition you will be most rewarded by getting proper care with a PM & possibly some meds. See your Cardiologist & be well again !! Good Luck !!
DonB

Don't Wait

by Grateful Heart - 2013-08-03 11:08:15

Don't wait until the end of the month. That's a long time to away when you are not feeling well.

Talk to you Doc and let him know how bad you are feeling. They could be wanting to wait because of your age. Your age should not matter, there are newborns with pacemakers. If you need one, you need one.

I had a lot of your symptoms too and was shocked when told I needed an Bi-V ICD. I feel so much better now. It's been almost 5 years.

Let us know how it goes, hope you feel better soon.

Looks like I'm following lubro again! :)

Grateful Heart

Thanks

by RosyEatWorld - 2013-08-04 05:08:58

Thanks everyone for your input. I'll be calling my cardiologist on Monday and see what they can do. I might go to urgent care today (Sunday) if it keeps up. Man I just feel terrible something isn't right.
I don't want to wait until I have a bad episode to get this taken care of. I just feel helpless sometimes without a conclusion or treatment.
Thanks again for all the support I'm glad I found this site to get good advice from those of you who have gone through similar experiences.

wow

by RosyEatWorld - 2013-08-04 08:08:01

Thanks to your advice and some not good symptoms I came to the ER last night and my first degree av block has progressed to a third degree and here I am in ICU as I type waiting for my pacemaker tomorrow. Scary but optomistic about a new chance to feel like myself again. Thanks again for your support!

Rosy

by Grateful Heart - 2013-08-05 11:08:00

Wow is right !! Glad you got the help you needed. Prayers for you and your Doctor today.

You will be fine. Here's to feeling better.

Grateful Heart

Recovery

by RosyEatWorld - 2013-08-07 12:08:21

I so got my pacemaker implanted yesterday. I feel amazing and so much better already. Can't wait for the soreness to go away so I can get back to my day to day activities. As for now I'm trying to learn as much as I can about my new little friend so I can have the best quality of life.
I'm glad my stubbornness didn't end my life. Dr's said most don't last a month with third degree/complete heart block.

You know you're wired when...

You need to be re-booted each morning.

Member Quotes

Pacemakers are very reliable devices.