Feeling fuzzy inside

Morning all

I have a PM fitted well this is my 2nd one in 4 years but the last couple of days I've been feeling fuzzy/whoozy inside...it's driving me crazy and restricting me slightly. Sometimes when I'm resting it feels worse but sometimes when I'm up and about I get rushing feelings and my vision goes black which causes me to wobble.
I know If I go docs they will just send me to hospital and no disrespect but the hospitals don't know what to do with me

Any advice would be muchly appreciated
Thank you

7 Comments

David (doctor)

by Vpainter - 2016-03-30 01:03:20

Firstly thank you for taking the time to read and respond to my post it's very much appreciated

I appreciate and understand what you have said in your comment and going to see someone is something I do need to do but after all the complications and un answered scenario's I've been through I've lost all faith and time. I know this might sound ridiculous and selfish but after time after time of being fobbed off and coming away more confused than when I went I just don't know what to do.
My pacemaker was supposed to give me a better lease of life and it's done the complete opposite. I'm a single mum (34yrs) of 2 and it's an everyday struggle. I had my PM (aged31) because all my life I have collapsed/fainted/blacked out and since the first one have had to have a replacement within 18months due to many complications. The reason they finally gave me a PM was because I had a sinus arrest of 29 seconds! But this has been happening to me for 39 years. I have only gone unconscious 6 times since having my PM which is nothing compared to before so that's good, but I still have blackouts and feel fuzzy woozy inside. It's like my body is a little delayed to my actions it's so hard to explain. I take my medication regularly and do everything that's asked of me but still I don't feel myself. I go to hospital/doctors and all the tests say negative/fine or inconclusive and they send me packing. They don't have the time to understand how this is effecting me and my life. My first daughter died through a heart condition now my present daughter is having problems and there's my situation to, but still no one listens

ROBO Pop is correct

by Good Dog - 2016-03-30 07:03:28

Believe me, I understand what you have been going through. I can't imagine having to care for your children in addition to dealing with your own issues. I only need to deal with myself, and that can be a little overwhelming at times. So believe me, I really do understand.
Here is the thing, you can't take care of your children as well while you are having to deal with feeling so bad. So when you make an effort to find a better doc, it is not just for you, but also will help your children. I have gone through about 5 different cardiologists since I got my PM. When I didn't feel that I was getting the level of care I deserved, I found a new one. That is what you need to do!
You didn't say if you are taking medication. The side effects different medication could very easily be causing you to feel fuzzy/whoozy inside. They might fix one problem, but can create many more. So that is something to consider.
Just don't give-up. If you continue to try to get relief, you eventually will. If you give-up, you never will. Just making a little effort each day is all you need to do. Making a couple phone calls may be all you need to do to find the right doc. You need a doc that will actually sit down and listen to your problems. One that will make every effort to resolve it and work toward insuring that you feel better (all of the time). That is their job, but some doctors seem to forget it. Maybe you can find someone in your area that has a similar problem and can suggest a new doc.
Please keep us posted here and if you need any info or help, there are lots of folks here to help.
I wish you the very best!
Sincerely,
David

Our reason

by Cabg Patch - 2016-03-30 09:03:20

Our whole reason for lurking around this site is to help people like you who are at a loss as to what comes next...

I realize this is far easier for me to say than you to execute but consider this...

Start your attack by finding a new Cardiologist. Hospitals aren't too good at diagnostics without a good doctor to guide them. Create a list of what your goals and objectives are and what is important to you moving forward.

Ask everybody you know who has a Cardiac issue whom they would recommend as a doctor. Keep a list of doctors. Go to the internet and research those doctors who make the initial cut. Find any information you can and whittle down the list to three or four candidates. DO NOT just take a friends recommendation, you'd be surprised how many will just give you a name just to be helpful.

Contact those candidates and let them know up front you are looking for a new Cardiologist and would like to interview them...Don't forget even under the health care system in the UK they are working for you so don't be shy. If they refuse, scratch them off your list.

The interview can and should be relatively brief. Make certain you take your list of goals and objectives with you and discuss them with the Cardiologist. If their approach does not correspond with your needs, scratch them off your list.

Sounds like a real pain in the derriere but well worth the effort, rest assured. IT IS YOUR LIFE TAKE CONTROL. YOU OWE NO ONE

I wish you all the luck in the world and hope you at least seriously consider my suggestion. Whatever, good luck

ROBO pop and GoodDog

by Vpainter - 2016-03-30 09:03:31

Thank you to you both for your responses to my post, it's really great to have someone to discuss things with and to be heard/listened to! Sometimes that's all someone needs.

I understand what your both saying and I know your right, I do need to get off my arse and seek help from else where and in ways I have tried...I will try harder I just find it all a big struggle if I'm being perfectly honest. It's hard when your treated as a number and not a human.

The problem I have is there's so many things going on that they just class me as a complex case and tell me they don't know what to do.

A list of some of my issues are
Subclavian vein occlusion
Lymphodema (sorry can't spell it) in my right arm which I practically can't move due to numbness/no feeling/heaviness/discoloured.
Renal failure
Bipolar
And more.

I'm taken to hospital numerous times each month but always sent away with no answers. It's hard for me to stay in hospital because there's only me to have my kids due to having no family and my friends have lives/work/children.
Sorry for the sob story just trying to get people to see what I'm up against.

Do I first start with changing my doctors? Do I approach the hospital....I just don't know where to start.

Anyway I do appreciate your advice and time it means a lot

Thank you

One step at a time

by Good Dog - 2016-03-30 11:03:30

I too think that you start by finding a new doctor. As Cabg Patch indicated, you are hiring a doctor. Not the other way around. The doctor is working for you. That is the point. If you are hiring someone to do a job, you need them to do it the way you want it done. Just remember that. If they don't, you fire them and hire a new one.
I think that with the many issues you have to deal with, you should try to only address one at a time or you will feel overwhelmed. Frankly, you should have a different doctor for each separate issue. However, you have to prioritize them. Those that you already have under some control should be at the bottom of the list. You should have a good GP doctor to help you determine which are the most important problems to tackle first. But regardless, you need to continue to try to tackle them.
Your bipolar is really important to have under control, because your mental state is a big part of the battle with regard to how you feel and get through each day. I can tell you that a little bit of depression can simply ruin your day. It will make small problems seem like HUGE problems. The thing is, simply doing something for yourself, anything, will make you feel better. The simple act of doing something positive (making progress), no matter how small and/or insignificant, it still makes you feel better about yourself. That is half of the battle. So just get started and try to make some positive progress each day. At some point in the future, you'll look back (and you should) and appreciate how far you have progressed.
All of the problems you have, you have been dealing with them, so give yourself some credit. You can't control what answers you get from any hospital or doctor, but you do have control over persevering until you get the answers you need.
Hang in there.....

Sincerely,
David

Doctor

by Good Dog - 2016-03-30 11:03:53

I know that you don't want to hear this, but you need to go to your doctor (cardiologist/EP) and get checked-out. You need to be clear with him explaining that you aren't feeling well and that you need to get to the bottom of it (find and correct the cause). If he doesn't help you and/or refers you to the hospital, then you need to find a new cardiologist.
This is a problem that must be addressed by your cardiologist and/or GP in an effort to find the cause and correct it. You are correct when you assume that hospitals don't know what to do. The ER isn't there to deal with these kind of problems. This forum will not be able to help you either.
You need to start with your cardiologist to insure that your pacer is working correctly and the settings are optimized. Once that is assured if you don't feel better, then a good GP or internist needs to give you a good going-over to find and correct the problem.

Sincerely,
David

Cabg Patch & GoodDog (David)

by Vpainter - 2016-03-31 06:03:16

Again thank you for your time and responses

Are you from the uk?

I'm going to do some research today on points that you've made me aware of today and see if I can get myself sorted once and for all not only for me but for my children

Hope you all have a great day

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