transplant story
- by jorawarrachel
- 2013-08-16 05:08:05
- General Posting
- 1847 views
- 6 comments
Hello, My name is Rachel Jorawar. I'm 18 years old, at the age of 16 I was diagnosed with restrictive cardiomyopathy, I've had it all my life but no one knew. one day I was walking with my friend, next
minute I'm on the ground. next day the doctors at st Joseph hospital tell me that I have a huge hole in my heart and other problems, so they sent me to at Christopher's in Philadelphia where they tried to close the hole but it was unsuccessful, my mom didn't want to tell me right away that I needed a heart transplant but she managed to tell me. my friends and I were torn. for the mean time the surgeons at hahnemann hospital implant a diffibilator. I applied for a heart transplant there but was denied, they said I was fine. so I started seeing my doctors at st Christopher's which refered us to the children's hospital of Philadelphia & they told me I needed one immediately. July-August I was getting evaluated for one, but September I was on the list, days later an offer came up!!!! I went under anesthesia but was woken up minutes later to find out the other heart had failed. so a week later I get another offer & it was successful !! god really blessed me, I'm lucky! now I'm 11 months post transplant an i feel wonderful!
6 Comments
hi Rachael...
by lubro - 2013-08-17 04:08:46
What a wonderful story... You're here...you feel great...and you've shared this lovely saga with us. Just want to say welcome and wish you the best...
Lubro
Hi Rachel
by TalkinCardio - 2013-08-17 05:08:38
What an inspirational story. I am currently on the waiting list for a new heart and there are a few others in this club that are waiting and one I know of for sure that has already received his heart. Welcome!
Rachel
by KathyB - 2013-08-17 09:08:08
thank you for sharing your story with us. Yes God really did bless you and you now have your whole life to look forward to with a smile on your face. I know another heart recipient who is much older than you but he is feeling so much better than he has in years and is doing everything like nothing was ever the problem. Enjoy you have so much ahead of you
Hello
by Bostonstrong - 2013-08-17 10:08:54
So glad you got a heart and are feeling better. What a miracle. It's good to hear you are feeling wonderful after all you have been through.
Hi Rachel
by jeanlancour - 2013-08-17 12:08:18
You have a wonderful story to share, Thank you for sharing it here. Hope you will come to this forum often to share your continuing story. Bless you Jean
You know you're wired when...
Your heart beats like a teenager in love.
Member Quotes
I am very lucky to have my device.
Rachel
by cans624 - 2013-08-16 06:08:42
Hi my name is carie you are a true miracle glad you joined the group and shared your story I hope you have a good and speedy recovery and all goes well for you chat with me anytime