Afternoon everyone

Well no new news from the doctor appointment other then they want me to go back on the dobutamine 24/7 again ASAP. Told them I will hold off a bit longer even though I know I need it. I;m trying to build myself up some.

Other then that, I been getting outside early each day before it heats up for a short walk when I'm up to it. Pushing myself to eat many small meals every day. I did put on a couple pounds which is a very good thing for me.

I did tell the Dr I was planning on beating this. Also, for my next appointment, I will be seeing the Head doctor. No more pee on's at this point!

Take care and God Bless,
Paul

5 Comments

Hi Paul :)

by Pookie - 2013-05-08 04:05:54

You sure are a fighter and I admire that.

Knowing nothing about dobutamine, I'll have to google it to see exactly what it is, but I will assume that if the doctors want you back on it, then they must think it will help.

Glad to hear you are getting out. Sometimes it is the smallest things in life (or things that most take for granted) that when we can do it, it does boost our morale. Plus you'll be getting a bit of Vitamin D :)

Wishing you nothing but the very best and thank you for always keeping us up to date cuz we do care about you.

Pookie

Hi Paul

by TalkinCardio - 2013-05-09 04:05:53

So good to hear from you. I am assuming that if the Dr. wants you back on Dobutamine 24/7, that means another picc line. Sorry about that.

I'm glad you are working on getting some strength back, that will help you with no matter what you decide to do. When is your next appt at the tx clinic.

Take care, Cathy

hi Paul

by jeanlancour - 2013-05-09 12:05:58

Good to hear from you, makes my day a little brighter. God bless and keep on doing what makes you feel good, hear that southern sun gets hot. As for us far northern Minnesota folks we"ve still got ice on the lakes and snow in the woods. Keep on keeping on Jean

Thanks all

by fishfighter - 2013-05-10 05:05:13

Been feeling real weak. Very bad week. I was almost at the point of going to the ER today. After a Xanex and some Demeral to knock out the chest pains, I was able to rest.

My uncle that I reported with CHF passed away yesterday evening. Thank God for not making him suffer anymore. Bad thing is that I think I don't even have a suite that fits me anymore due to all the weight I lost. So I will have to go shopping if I want to or not.

Cathy, the transplant team appointments now are every two months. I was going in once a month before. But they did tell me if I need them to just call and they will see me at any time. As far as the dobutemine, I been feeling so bad and I wanted to wait a couple months, but now, I think I will call Monday. I don't think I can wait two months or even a month now. It is getting that bad.

God bless all,
Paul

Paul

by TalkinCardio - 2013-05-11 03:05:05

I am sorry to hear about your uncle passing away.

It does sound like you need the dobutemine right away. Please dont wait.

Cathy

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