Hi all

Just checking in. I'm shocked to see that Frank passed away.
God speed Frank.

Well I'm still in the hospital. They are still pumping meds in for the infection. At the same time they are reducing the dobutamine. I do feel tired all the time now with only one more day with the dobutamine left.

Just maybe I might get out an a couple days

Take care and God Bless,
Paul

8 Comments

Hi Paul!!!!!!!!

by Pookie - 2013-04-22 04:04:44

I too am shocked that Frank is gone. He was one of the anchors of this site for so many years. He will be dearly missed.

I am glad to hear that you may be getting out in a few days, you must be excited as there's no better feeling than being at home in your own bed at night.

Thanks for always keeping us up to date, as we all care about you so very much and we continue to cheer you on.

Take care,
Pookie

good to see your post

by Hope - 2013-04-22 07:04:06

Hang in there Paul. Home is in sight. Hopeful Heart

Hi Paul

by TalkinCardio - 2013-04-22 07:04:31

Thanks for checking in with us. Sounds like some progress is being made. I'm glad to hear you are getting some help. Take care and you'll be home soon.

Cathy

Cathy

by fishfighter - 2013-04-22 08:04:37

They are just fixing what they can and sending me home to die. Nothing has been said of up grading me to 1A. So, at this time, I just don't know.

But, you know what? I'm going to out live all them. LOL

Take care,Paul

Thinking of you

by Janey L - 2013-04-23 07:04:47

Hi. I am thinking of you & praying for you. You have been through such a tremendous fight. I truely hope & pray something can be done to help you win this battle.
God bless you.

Best wishes
Janey

Hope

by Many Blessings - 2013-04-23 10:04:37

Okay, we will all hope & pray that you get relisted so you are a higher priority for a transplant. Please let us know when you hear an answer from your doctor on what the next plan is for that.

Take care

God Bless

by Many Blessings - 2013-04-23 10:04:39

Hi Paul,

With what you have been through, and are going through, none of us can even imagine. I only wish I could give you hope that all will be well. I know from what you've said, the prognosis is not good. It breaks my heart each time I read your posts, wishing there was something we could all do or say to you, that would make everything okay.

As I do with everyone else on this site, you are always in my prayers. Since I'm not the best behaved person here on earth (I probably "misbehave" a little to much - LOL), my prayers are probably not the quickest to get where they need to go, nor the fastest to be heard or answered, so please know others out here are all praying too! That will hopefully give you the strength you need to hang in there just a little bit longer, and keep the faith.

As I read quoted once: "We are only as strong as we are united, as weak as we are divided.” This is a very strong, united group here on the PM Club. You don't ever have to feel alone, or think you're fighting this on your own!

God bless you always, and even if just for today, please feel hopeful that things can turn around for you. Sometimes, you're closer than you think for things go in more positive direction.

Now, if I'm not mistaken, you are waiting for a transplant, is that correct? If you do get one, will things be much better? Are you on the transplant list right now, just waiting for an available heart? Is a full mechanical heart an option at all? I'm sure you've posted this information in the past, but I'm just not sure I remember it correctly. Please forgive me for that.

Blessings

Thanks all

by fishfighter - 2013-04-23 12:04:38

Well, it looks like they are going to send me home today. They pulled me off the dobutamine all together this morning. And yes, I feel the difference big time. The infection is under control, but will be taken a bunch of pills for a couple weeks to come.

They still trying to get me set up at my local hospital for a once a week iv drip on dobutamine and of course blood work.

Tammy, I'm pass the point of a LVAD. I'm listed as 1B. For some reason at this point, I wasn't told if I will be relisted to 1A. Still waiting on one of the doctors to come in and I will ask what is what. I kind of feel that they are just throwing out the door. Yesterday, one of my Dr's came and just flat out asked if there was anything that she could do for me, holding back tears. Came away with a very bad feeling when I was asked that.

So now, it is a new chapter in my life. What tomorrow brings, I just don't know.

God bless all,
Paul

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