Most Recent Messages in Coping

36 years old, LBBB, scheduled for CRT-D, SCARED

I am 36 years old, male, dont smoke, drink, or do drugs. As far as I have known I was always relatively healthy. 6 kids and married for 13 years. 2 years ago I went in to get my gallbladder removed and the staff went into a panic when they found the LBBB. Since then I've had echos (ejection fraction 35%) and heart cath.. no one can figure out why I have LBBB.. 18 months later my ejection fraction still hadn't gone up and medicine wasnt helping, in fact made me have symptoms when I don...

Read More...

Tachy/Brady

This message is for Gemita.  Thanks for your input.  I really am glad I found this forum.  I thank you for the information you posted.  We will keep in touch.

Read More...

Tachy brachy

I was on a beta blocker for many years.  For the past year I noticed a very slow heart rate.  My internist lowered the dosage of atenol.   Everything checked out fine in February.  For the past year my energy level had changed and I assumed it was because  of my age.  However, in March I woke in the morning and felt light headed so I took my blood pressure, my heart rate was so low and my blood pressure was all over the place.  My husband took me t...

Read More...

Recovering after pacemaker implant

  • by Tux
  • 2020-05-07 23:23:05
  • Coping
  • 206 views
  • 3 comments

 It has been four weeks since I received my pacemaker.  Received it due to pauses in heart rate. I also have age of the relation.  Today trying to do normal housework cleaning out cupboards and refrigerator etc. had to constantly push myself so very very tired and weak. Question is this normal ?   Was not this week and tired before the pacemaker.

Read More...

Still tired

  • by Yaz
  • 2020-05-02 10:45:58
  • Coping
  • 203 views
  • 5 comments

Hi everyone! Thanks for replying regards beta blockers, my nausea has settled down somewhat so will persevere as heart rate good. Have another question!!! I still don't have bags of energy, I do a few jobs and have to have a break. I think maybe I've taken things too easy and now have to build stamina back. I still get anxious about pm. I'm 14 weeks now has anyway else felt this way? I have read somewhere on this site that it can take 6 to 12 months to really feel back to old self...

Read More...

Updates

Hello everyone!

I pray that you all are safe and well. As for me things could be better. Recently I've been having more episodes of presyncope. The lights haven't went out yet but boy has it been close. It's been happening at such random moments that it sounds odd even explaining them. I lay down at night on my left or right side and I immediately feel this rush in my chest, this tingling in my neck and head and I have to sit up or else I'll pass out. I bend down to wipe...

Read More...

PM Discomfort with sleep

My pacemaker is only 2 months old. I am having a lot of discomfort when laying down to sleep. I used to sleep on my left side. When I turned on my right side the pacemaker flips vertically and I have to push it back dow flat. Sleeping on my back is uncomfortable too. There just seems to ne a lot of pressure and some pulsing feelin going on at night. Is this normal? I don't know anyone personally that has a PM so don't know what to expect. Have a chk up scheduled next month. Any commen...

Read More...

Zio patch

Just sent back my zio patch hoping finally they can see the issue, last year I had the 24 hour Holter but no episodes other than a 6% pvc burden. I did have four 3 hour Bigeminy and erratic events during this monitor so hopefully I can finally get help. Thanks to my Apple Watch I have been able to see things more clearly. My cardiologist didn't think last year I had enough issues to go to pacemaker even though my bpm is often in the 30's. Events are not consistent but often...

Read More...

Heart beats

This is my 3rd pacemaker, and my heart stopped when they were changing it. Ever since I can feel every heart beat 24/7 and my palpitations are more intense is this normal please help

Read More...

Worst Timing!

Hi everyone!

For the past few days in the morning I have been having episodes of presyncope, weakness, lightheaded/dizzy, chest burning/pain/tightness, sometimes nausea and an overall sense of panic/anxiety. I don't know if I'm having issues with my heart or it's a panic attack. Sometimes hours later in the afternoon my legs feel weak, I feel lightheaded but it comes and goes. I'm terrified to go to the ER because of this virus but I'm also terrif...

Read More...

pacemaker

Hi i had pacemaker on christmas eve 2019  and had first check in march,all is ok.been working hard in garden and took my pulce and it seems to only be running at 52 or 53 beats per minute.is this ok or do i need to get checked out now.My next check is in May.thank you,Martyn.

Read More...

Intro - scared

I have a congenital heart defect and I knew a long time ago that it would probably lead to needing a pacemaker at some point.  I have always had this insane irrational fear and I don't even know what it is I am so afraid of. Well I am going to have to figure it out and how to cope with it soon so I was looking at information online and found this forum.  I probably will just read mostly. were you scared?  what were you scared of?  what was the surgery like - i heard yo...

Read More...

Newbie with another question

Hello to all:

I've had my pacemaker for going on 4 weeks now.  All has been OK and I'm feeling good, aside from being stuck in my house like many of you.

I'm curious about the monitoring capability of my device. Mine is a Biotronik, but I understand many manufacturers use similar monitors. I've been told that the monitor uploads data to the manufacturer at night and if there is a problem, the system will notify the doctor on file and they will get in...

Read More...

LIght headedness

In the last two nights, when arising and going to the kitchen to get a glass of water I was light-headed. They told me I wouldn't have that anymore after having the PM placed. Is this something I should be concerned about? Thanks. 

Read More...

My Corona!

Some levity in a dark world:

Location change: <https://www.youtube.com/watch?v=ojrtwXqqc6g>

Read More...

New to the pacemaker world

Hey everybody.

Got my pacemaker 4 days ago after 15years of syncope with no knowledge of what was causing it. After having a Medtronic Reveal device put in a year ago I found out I was having constant ventricular standstills of 20-30 seconds and so a pacemaker it is (or more hospitalisations for the concussions when collapsing). 

I know it's only been 4days but currently I'm feeling pretty apprehensive about the device and the way it makes me feel. The implant site it...

Read More...

Beyond FRUSTRATED!

Hi everyone!

So I HAD an appointment this morning at 9am to do a Cardiopulmonary Exercise Test to see what else may be causing my shortness of breath and fatigue. Well yesterday afternoon I received a text saying my appointment was cancelled. Needless to say I had a meltdown. I called the VA and with enough pushing I got the tech who does the test on the phone. She told me they are cutting appointments due to the Coronavirus and after reading my file she didn't think...

Read More...

Does anyone know where I stand ..covid-19

I've complete congental heart block, a heart murmur, long qt and high blood pressure and I've been fitted with a dual pacemaker paced at 60bpm. How much am I at high risk with these possible new guidelines of 12 weeks self containment files that could be issued by the weekend. My son attends high school and if he goes to school he could bring the virus home or catch it with out knowing being a carrier so the oscillation I'd be doing wouldn't be any use. Can anyone help me out....

Read More...

COVID 19

My husband is 67 and has CHF and after today is taking the decision to shield himself from everyone for 12 weeks by staying st home.I know he will really struggle mentally if I move out for this time as I still work and we have bills to pay etc,so I am considering isolating with him to keep him sane but just wonder where I would stand with my employer.We live in U.K and I work for a well known chemist but would they expect me to take it unpaid?-is the government offering help in a s...

Read More...

Coronavirus

Am three months post pacemaker and this was done for bradycardia and 3rd degree heart block. Concerned re what is classed as an underlying health condition. The government is talking about the elderly and those with conditions may need to isolate... does anyone know ? Thank you 

Read More...

You know you're wired when...

Like the Energizer Bunny, you keep going.

Member Quotes

It is just over 10 years since a dual lead device was implanted for complete heart block. It has worked perfectly and I have traveled well near two million miles internationally since then.