Most Recent Messages in Coping

Biotronik identification card

Hi I'm a newbie, 41 having (very suddenly and shocked) had a pacemaker fitted 12 days ago.  I left hospital with my "identification card" which was a piece of half a4 paper, looked like recycled paper which is no way going to last 10 years!

I contacted Biotronik to see if they issue cards he said no unfortunately not. 
I feel I need to have a card for longevity can anyone advise of where is best to get one and what details I need on it exactly? Xx<...

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Emotion Gene is Missing

I have an Abbott dual chamber heart pacer implanted that beats my heart 100% of the time due to my 3rd-degree heart block.  My pacer beats my heart exactly at 60 bpm 24/7 except when I exercise it will automatically sense and speed the rhythm up.

Now that I am paced my heart does not react to adrenalin rushes like a normal heart in flight mode.  Today I was in a situation that would scare anyone and cause a sudden rush of adrenalin but since I am bionic I don’t get the a...

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Pain around pacemaker pocket

I am on my third pacemaker in 19 years. I have third degree heart block and feel wonderful.  Except for this last pacemaker. I received it May 19 and had lots of pain post placement.  My two previous pacemakers were no problem, almost no pain. This one has hurt since placement. Wakes me up at night pain.  And it itches constantly.  I contacted my EP and was told that they had to go through a lot of scar tissue so it will be uncomfortable longer. Don't worry.  But...

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Frequent premature ventricular contractions

Hi,

I have a dual chamber pacemaker insitu for 2:1 AV block. Recently I've been having palpitations and monitoring shows sinus rhythm with frequent premature ventricular contractions. Does anyone else have experience of this?

I'm already taking Bisoprolol 5mg and Lisinopril 2.5mg daily. 

Many thanks 😊 

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Placement of the pacemaker

My pacemaker was fitted 2 weeks ago... it was a complete shock. I knew something wasn't quite right, but wasn't sure what it was. I had chemo 2 years ago and it seems this has affected my heart. I'm a bit concerned about the location of the actual pm... it seems to be very close to my shoulder and I it seems to obstruct the movement of my left arm across my body... anyone else had this experience?.. thank you 😊 

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Flutters when pacemaker cuts in

I had a pacemaker implanted a month ago and am getting light flutters in my chest and occasionally in my stomach when it cuts in.  I've been told the pacemaker sets the voltage automatically at 125% of the threshold voltage for safety so it can't prudently get reduced. It isn't as strong as PVCs but can be annoying when reading and doing other quiet activities. Is this something that one eventually gets adjusted too or are my expectations too high? I cut back on my...

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Tired

Hi, I received my pacemaker 10 days ago. My symptoms had been shortness of breath and being very tired. Also I had had 3 or 4 dizzy spells over the last year. Since getting the pacemaker the shortness of breath has improved quite a bit but I am still quite tired. Is this normal? I will be seeing my dr. on the 18th and the rep. from Boston Scientific on the 24th. 

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Alone?

Hello all,

I'm not sure if this is appropriate to post because it's not directly related to the pacemaker itself, but I'm just terrified and so afraid.

As everyone knows, my cardiac journey has been an up and down road. Recently, physical therapy and medication adjustments have helped keep the SVTs and general visual disturbances mostly at bay, to the point of experiencing them less and less, but still weekly.  
 

Now the topic of my post...

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Heart Failure

I’am a semi-retired 69 y/o female. Last Oct 31,2021 I took my blood pressure at home and my pulse was only 39. I work in a senior care facility as a Med passer/caregiver so as I would often take vitals on the residents I was used to taking my own daily, so I knew 39 was too low and something was wrong. I called Triage. They suggested I go in to ER. The ER doctor did some tests; an echo etc and told me I had complete heart block, I needed a pacemaker right now. I could not...

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Pace macker

Hi I had a pacemaker fitted 3 weeks ago got a complete heart blockage. Had a 3 wire 1. I’m only 38 and found out I was born with a congenital heart disease. My heart is the wrong way round.late on I will need heart op.I carnt stop crying . And 1 else been in this situation thanks x 

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Pacemaker/defibrillator placement

I received my pacemaker defibrillator 5 weeks ago and I am still getting used to the location and the feel of it.  It seems very close to my armpit and I feel it every time I move my arm.  Will I get used to this?  Also I can see the outline under my skin and feel every ripple, so close to the surface of my skin.

thank you for any info 

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PACEMAKER IMPLANTED 2 WEEKD AGO

I had my pacemaker inplanted 2 weeks ago yesterday. I was supposed to see my doctor who is 2 and 1/2 hours away from us but had car trouble and had to cancel. Unfotunately my car needs a new alternator which we cant afford until my husband gets his SS check next month. 2 nights ago I woke up and my heart felt like it was racing. Should I notify the doctor of this immediately? I really don't know if I should be ultra concerned about it or not. 

I dont have an extablished re...

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Flying

Had pacemaker 3 years ago. Having flown yet. Is there anything to be aware of ? Thank you 

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Still Fighting The Good Fight

Hello all,

Figured I'd drop in to provide an update. After several rounds of SVTs and PVCs I was fitted with a heart monitor for 2 weeks. The results were lackluster. 
 

My Cardiologist and nurse went through them page by page and noted nothing too concerning or crazy. Some times, when I pressed the button and logged my symptoms, my heart was functioning as expected/normal, while a few times in the middle of the night, they noticed it was elevated, but not alarm...

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Going into Paroxysmal AF

This morning I have gone into AF and my CRT -P pacemaker has done that mode switch thing. My heart rate is steady at 70. I felt it flip in the same old way when I turned onto my left side in bed. 

My heart feels different. Sort of like its pounding....a harder beat.  And I feel a bit wierd... lightheaded and breathless when I walk around. But I guess the beauty of this pacemaker is that it eliminates the irregularity. Also, It seems to be stuck at 70 even though they said it w...

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Minor (I hope) setback

Life is sometimes a b'atch. I was starting to feel a tiny bit more energy--Was sleeping better at night & not napping dring the day, accomplishing more with both chores & liesure activities, feeling some kind of normal. Then, in spite of faithfully getting vaccines & boosters, my husband & I managed to get covid-19. I know that without the vaccines it could have been much, much worse, but it was bad enough for me! Slept for 2 days straight. Now I'm up & around but...

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Hi

Hi everyone I had first pacemaker implanted in July this year after discovering I have a complete congenital heart block and my heart rate for years has been 45 bpm my resting rate was about 35bpm  can I ask is it normal to feel ok one day then tired and sore the next. I am 7 weeks post op and still get chest pains is that normal? 
 Thankyou for reading this 

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Wearing compression Stockings

Hello all, just a brief message to see if this works as I am having trouble logging in. Does anybody have to wear compression stockings? How to cope with this? Thanks for any support

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AF?

Hi there. 

Still getting used to the aftermath of my Pace and Ablate procedure. (AV node ablation 19/7/22)

I'm still getting a few single ectopics and I've found out that my settings are currently DDD with a min/max rate of 60- 130.....Yesterday I was working and when I came home I was eating my dinner and I absolutely swear I went into AF except I didn't get that fast ventricular rate. I monitored my heart rate and it went up to 130, my max setting, but it wasn&#...

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Update on feeling tired

There have been various posts on various topics in which the subject of feeling tired comes up. That makes me prick up my ears, because this is something that I have been dealing with for a while. I had my beta blocker dosage increased maybe a year ago, and it seemed to me that from that time I began to feel extremely sleepy. I felt like I needed to sleep not only all night but most of the day as well. My PCP and my cardiologist both seemed convinced that it was something other than the med (...

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