Most Recent Messages in ICDs

Anybody have icd while pregnant?

I was wondering and wanted to see what was your points of view on pregnancy and having an implantable icd, if the female were to get a therapy zap, wouldn't that harm the baby? Any stories u guys might of herd or anybody experienced this?


Loud music and big speakers...

Hey everyone! I'm a new member and had an ICD since Oct. 2007. Yesterday I was at a local event to hear my friend's band play and he asked if I would hang out with him on stage. I stood near one of the biggest speakers (along with some small monitors). In about 15 minutes, I felt light-headed and then WHAM-O....I was shocked. This was my second time getting shocked since I had the ICD. I was wondering if anyone has ever heard about really loud music affecting heart rhythms or even being ar...


battery change voltage??

does anyone know if there is a standard batttery change voltage for an ICD? Mine is at 2.6 volts and if I am reading the manufactuerer's info right , the change voltage is 2.61 volts. Am I missing somethimg here??


ICD Test

I had a debfiulator put in me 3 years ago I was a little dubious as to wether I needed on as I had no symptoms at the time.But my ejection errror was 14 and it has since gotten up to 50 and my heart went from being somewhat enlarged to normal a year ago. A couple of days ago I went and had my ICD checked and it showed the bottom on my heart was not working indepentely from the ICD this is a change from last Novemeber, I actually almost passed out when they were testing it. The techincan...


Amusement parks

Hello fellow pacers and icd'ers I was wondering if anybody has been able to go to amusement parks, rides etc, I went to coney island for my birthday 5/29 and was just bummed at the fact that I couldn't get on any rides... It's actually made me stress the fact of what really can I do? Yes I'm grateful for having this magic box, but often just can't help having some of the blues... Anybody have any similar feelings or experiences you'd like to share? God bless & thank you all!


I think somethings wrong

Good Morning,

I have a questions and hope someone can help. This only happens when I attempt to sleep and its only happened a few times. I am drifting off to sleep and then I cant move, I can hear everything going on but I can't move. Tonight and another time I think I heard my box as I call it (Defibrallator 1 lead) BUZZING. The only reason I knew it was the box this time was because I had a mild pain in the chest and when I was finally able to move I still heard and felt the buz...




I am brand new to this site! I have to have my ICD repositioned soon..... it is under my pectoral muscle and continually moves and puts pressure on the wires! And, it is painful. :( My doctor who is very well experienced wants to reloctate it under my breast with a possible breast impant over it beacause I am so tiny. I am 38 and am not having more children. Apparently it will be much more secure there. Has anyone ever heard of this??????? I would LOVE feedbacck!!!!!


Pain around inplant area

I had an ICD implanted in October of 2008, had very little problems or pain, but now some 8 months the implanted area seems to be constant pain if lay on right side, its implanted on left side, and basicly a nagging pain most of the time, there is no swelling that i can tell, has anyone had this same problem, and if so any reasons for it, Thanks


Biventricular Pacing

So this past year I have been going to the cardiologist about every 6 months. He thinks I should have a biventricular pacemaker. I have been paced 100% of the time since I was two weeks old. I have heart block not complete though because I have an underlying beat of 42 bpm. But over the past 6 months my ejection fraction (EF) has been going down. A normal one should be between 55-70% and mine is currently at 44% and going down about 4% every 5-6 months. The reasoning for this is that because I...



  • by JSJ
  • 2009-05-19 11:05:14
  • ICDs

Hi All.
Have a Medtronic icd implanted since Nov 07. Developed what I thought was -and still is- a bad cold or flu for past two weeks. Sunday 5/17 I awoke with pain and swelling around icd and thought it was from excessive coughing.Mon 5/18 awoke with redness around icd site and more swelling. Went to hospital and was told icd and leads were most likely infected and complete removal is generally the only treatement This am redness is reduced but still have swelling. I am hoping...


Subclavian Steal

I have been told by 2 Vascular Surgeons that I have an 80% Stynosis of the Left Internal Carotid Artery with Subclavian Steal Syndrome . Is there anyone else out there who has experienced this ? This condition could not be found by/through a CT scan and was picked up with an Ultrasound search . Seems it is behind my device ICD that is , and the lead may be making this situation worse due to it's location . What a conundrum !

Thanx for your input .

Love to all ,



  • by pacie
  • 2009-04-07 04:04:52
  • ICDs

One of the members asked some questions about the shock of an ICD while holding a baby or driving, etc. I am going to ask again because I would like to know too. Can some of them be so powerful that the baby could be dropped or you could wreck the car or cause an accident? It IS something to think about, huh? Thanks for the input.



What do they feel like

hi i just got my icd half month ago, can any one telll me what they feel like when they go off i mean what will happen to me and how will i feel
From newy pete



Had icd installed beginning of february 09. First 2 weeks felt fine. Good appetite etc. Am on Diovan .cardeviol,lasix and potassium. still experiencing shortness of breath at times, and fatigue.increasing and lowering lasix and potassium has not relieved the appetite so cant recover excessive loss. Any help?


Wonder If My Heart Doctor Reads These Post

I had sought help in getting information to ask my doctor at my scheduled appointment of March 18, 2008, I have an ICD since October 2008, on that date as I always do I called to make sure my appointment was still active to learn that the doctor that morning, a few min before I called changed my appointment to March 25, and ordered a ecco gram prior to seeing him that day...of course some members gave me questions to ask him, now apparently he him self wants more information, I did find out that...


wii fit

  • by tel
  • 2009-03-14 04:03:34
  • ICDs

Hello all,

I have just joined the club on behalf of my wife who has a defibrillator fitted. Is she safe to use the Wii fit.

I mean will the electrical part of the wii fit interfere with the workings of the defibrillator

My wife has also suffered some brain damage so I have joined on her behalf.



  • by Beef
  • 2009-03-08 07:03:52
  • ICDs

Hello all. I'm new to this club and here's a bit about my experience in this subject-
I have been unlucky enough to have had 38 shocks from my ICD in four separate episodes of VT over the past 8 years. Recently I had six shocks in Jan 2009 whilst on my way to the hospital to have an procedure called an Ablation because some recent irregular heart activity.
I am glad that I have the device and I will say that I consider myself lucky to still be alive today because of the treatment I hav...


ICD Experience

  • by GAC
  • 2009-03-07 02:03:55
  • ICDs

I had a Medtronic ICD implanted on December 15, 2008 after a V-Tach attach. I have had three Trerapy Shock since then. Jan 4. Feb 5 and Feb 27. I just started Sotalol medication last week at 80mg. I don't know what to espect at this point. I can't drive and work from home. My doctor says it's wait and see.

Any comments?


More Info

I thought some of you may enjoy the following as it discusses the devices and heart problems we discuss here daily. Part of it came from Medtronic (for some reason I'm on their mailing list - I;m kidding I asked to be put on the list) and the last two paragraphs are from another article on the subject of
CRT (cardiac resynchronization therapy)

Heart Devices

Did you know that there are different heart devices that treat different heart conditions? When people think o...


Have you ever felt your ICD move?!

I was wondering if anyone has felt their ICD move. I was sleeping the other night on the couch, I have my left arm (my ICD is located on my left side) under my head and went up the side of the couch. I was suddenly awakened when I felt as if my ICD moved up. After inspecting it, it looks and feels like it did move. It hurt really bad at the time but now is only sore. I am wondering if it is still making its spot within all the muscles as I only had it implanted in June of 2008. Does anyone...


You know you're wired when...

You always have something close to your heart.

Member Quotes

I finished 29th in London in 2 hours 20 minutes 30 seconds which is my fastest with or without a device so clearly it didn’t slow me down ! I had no problems apart from some slight chaffing on my scar - more Vaseline next time.