My ICD saved my life!

I occasionally log in and see many people question the necessity of having a pacemaker/ICD. I just wanted to tell everyone that feels that way of my latest experience that shows that if an PM/ICD has been recommended by your doctor for arrythmias, cardiomyopathies (my diagnosis since 1991) or any heart disease that affects the heart rhythm it is a very important thing in your life.

On Thursday the 28th of January I had an appointment with my cardiologist for a followup to a hospital visit 2 weeks prior. I have been having a problem catching my breath during normal activities like walking. It turned out to be more fluid retention than anything else and I seemed to be OK after that hospital stay. However, after the visit to the doctor I went home and had some dinner and was sitting in front of my computer when all of a sudden I felt a rapid heartbeat, my upper body felt like it was on fire, and I then experienced tunnel vision which made me feel like I was going to pass out. After several minutes of resting, I felt better, but didn't understand what had happened. I had an appointment 4 days later with my ICD doctor and during those appointments the representative from the ICD company always gets the readings for the device. I mentioned the date and time of this occurrence and the first thing the nurse told me was that the device had done its job...meaning it had fired at that time because I had experienced ventricular tachycardia. This is usually the cause of sudden cardiac death! usually I can handle bad news, but the reality of this event really affected me. Three days later I was working and I had walked a short distance and couldn't breathe very well and then all of a sudden I broke down and cried uncontrollably for quite a while. This and the breathing problem caused me to go the ER. The ER doctor said she has encountered many ICD patients that have reacted to this near death experience in the same way. She recommended that I seek some counseling to deal with it. Later that day the emotions had ceased and after talking to the doctor, my wife and my adult children about the feelings I had I seem to be in a much better place with it.

I know this is rather long winded,but I wanted to share my experience to show people how important these devices are and it is also theraputic for me as the more I talk about it the the better I do feel.

THANKS FOR LISTENING!


4 Comments

:)

by paulb - 2010-02-09 11:02:04

That is a really great story. That would be an emotional experience for sure. That would really make me glad that I had one. Thanks for sharing your story.

Glad you're still around Andy

by cbaker - 2010-02-09 11:02:29

Andy, thanks for writing. You're a hero to be dealing with it the way you are. Not everybody who gets an ICD needs one. Some docs seem to pushing the technology when the indications are not clearly there. But you're an example of how technology can work, too. Congratulations for being brave and honest. It will help other people deal with it.

Keep it up

by ElectricFrank - 2010-02-10 01:02:45

There's nothing wrong with having intense feelings after an event like that. The important thing is that you experienced them, shared feelings with your family, and then moved on.

One suggestion..any time you have have the experience of the ICD firing it would be a good idea to call or see the ICD doc right away. Even though the ICD did it's job, there may be something going on he needs to check into. At least talk it over with him on how to handle it.

best wishes,

frank

Living with a firing ICD

by mrag - 2010-02-10 02:02:15

My icd has fired some 8 times over the past four years. It is a hell of an experience. My cardiologist/EP said "you need about a year without a shock" to adjust to the situation. I've heard of people though where it fired and they pretty much immediately put it of their mind. I know others though where I'm not sure they will ever get over it.

I've been told if it fires once, take it easy and go back to sleep (ha ha). If it fires twice or more during a 24 hour period, go to the ER. My personal experience has been, if it fires, it's because something is wrong (one time I had a GI problem/infection which they said caused something which then caused the firing). Consequently, if mine fires even once, I am off to the ER.

Check your local cardiologist and or hospital, they might have an ICD support group. Counseling is not a bad option (and I typically don't like counselors). Welcome to the club! You do realize very few people with an ICD are ever "lucky" enough to have their heart basically tasered.

You know you're wired when...

You need to be re-booted each morning.

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