heart tranlsplant

just got my yarely review,my ef 66 percent,better then the doc,she said,now we just have to my kiddneys to work,other then taht feeling graet with a new heart,woul like to help if any one has questions,if they wrer every told they might need a transplant

7 Comments

Perspective

by ILoominatedEKG - 2012-09-02 02:09:05

Wow! ANd I'm gripping about this silly little pacemaker!
That just puts things in perspective doesn't it?

Congrats on your new ticker. Hope your body likes it. I'd imagine you're really erlieved right now. Prolly feel a lot better too. I hope your kidneys kick back in too. It's hard on all of your organs when the natural kidneys don't work. I'll pray for you!

Best wishes - Dave

Congratulations!

by ldebaugh - 2012-09-02 02:09:18

Fabulous, I'm very happy for you!
M'Liz

Heart Transplant

by TalkinCardio - 2012-09-02 08:09:30

Congratulations Franko! I have been told I will need a heart transplant. I am not on the list yet. My current EF is 25%. Since you offered to answer any questions, I do have a few.

How low did your EF get before you got your new heart? Also, how long were you on the list and did you get the LVAD?

Thanks for the help, Cathy.

Transplant

by fishfighter - 2012-09-03 08:09:34

Myself, I'm listed right now as 1B and will be heading to my transplant team Wensday. I was told they will be relisting me to 1A at that time.

They were ging to put an LVAD in me just a couple weeks ago, but had put me on hold due to my heart swelling to much.

My question is, did they put you on a IV drip like dobutamine or premacore? If so, how long did you stay on it?

Also, as Cathy questions too! My last EF scan was down to 12 which I know is getting lower by the day.

So, another question is, how long were you listed before you got your transplant? Any health problems other then heart trouble?

Any trouble with the rejection drugs?

What transplant center you used? Were you listed at more then one center? If so, how did you go about doing that?

I had asked a ton of questions from my doctors. As we all know for some reason they just can't talk in laymens terms.

Thanks and good luck, Paul

heart transplant

by franko1966 - 2012-09-03 09:09:32

yes i was on a iv but cant rember howlong,iwas listed in three weeks,for transplant,jun 9 iwas in the hospital,and on aug the 3 i got my heart,but had 3 before that,but no matches or bad.as for any other problems,it was my kiddneys,they had to keep taping my stomach,but still was urinating,before surgey.for meds im on prigraf,an predisone,and pravastaion.and i take adcerca for my hypertasion,for lungs,.For the hospital,it waas ny pres,coulmbia,as for rejection,just 1,all they did was bust predisone up back down to 5 mg,only problem i had was with my kiddneys after surgrey,they say the ae sleeping,on diyalsis,three times a week,other then that im fealing great.hope i answered all your question,be feel to email if you like

God Bless ~ ~ ~

by Carolyn65 - 2012-09-03 11:09:17

My Prayers and thoughts are with you during your trying times, but what a 'ray of sun' to know you are and can get better ~

We all will be thinking of you ~ Keep us posted of your Great progress ~

Carolyn G. in TEXAS ~ Beautiful Flower Bouquets to You ~

may happiness be yours

by Hope - 2012-09-05 10:09:26

Hi! So wonderful that you are now able and willing to share your transplant journey with others. Keep smiling and, I wish you many happy years. Hopeful Heart

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