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POTS & PM
Does anyone have POTS and a pm.
If so do you have a normal social life, working, driving
I have POTS and a pm I am 28 years old and just been to the doctors again to change my medication. I am not coping very good. Any help would be great I NEED IT
Lainie
4 Comments
Is This What you have?
by NH - 2008-03-31 10:03:52
I found this definition of POTS and thought it might be helpful. I don't have this, but maybe one of our members does.
Definition:
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Postural Orthostatic Tachycardia Syndrome
Often more simply referred to as postural tachycardia syndrome, or POTS, this disorder is characterized by the body's inability to make the necessary adjustments to counteract gravity when standing up.
The defining symptom of POTS is an excessive heart rate increment upon standing. However, as you will discover, there are a multitude of other symptoms that often accompany this syndrome. As such, POTS can be a difficult disorder to detect and understand.
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I found this at www.dinet.org Have you checked out this site? it might have some helpful info. for you.
Take care,
NH
Yep, I Got It Too
by TwoCents - 2008-03-31 11:03:56
I have pots and generally do fairly well with it. It seems that there are rough periods and then things will smooth out for a while. There are multiple meds that can help with this problem. I suggest that you see a doctor that has an interest in dysautonomia as this is a type of dysautonomia. Through the years I have discovered that there is a lot of experimentation required to find the appropriate stategies and meds that work. Two Cents
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Member Quotes
I can bike a 40-50 tour with no trouble.
I don't have POTS...
by ela-girl - 2008-03-31 04:03:19
....but I did suffer for over 4 years with blackouts (NCS or called VVS which is also a form of dysautonomia). A lot of the symptoms and such are the same. I also have a SUPER slow heart rate that would drop to 4 BPM during episodes along with the BP drop of at least 60/40. No good! It affected my life like crazy--couldn't drive, couldn't do things alone, you name it. It sucked. You feel alone and if you had a doctor like me, he made me feel crazy because he didn't really believe what I was going through. So, I can imagine your frustration, truly. I was put on Toprol XL 50 mg daily because my old cardiologist didn't know what to do with me and couldn't figure out what was going on. Anyways long story short...I moved to another state and had my pm implanted via emergency surgery. For me the pacemaker has 'cured' all my symptoms for now and I no longer need the Toprol. Not to mention I have a great EP. My new life with the pm is great! I drive, I hike, I work, I feel great.
What medication are you on??? Do you see an EP? I am also close to your age--I'm 30. PLEASE feel free to private message me if you want to talk about stuff. There are many of us on the site with these conditions and can relate, so don't hesitate to share with us.
ela-girl