Weird pacemaker feelings

Hi everyone. I'm 27 F, I had my pacemaker fitted back in April after I had an ablation gone wrong. I went into complete heart block and spent 10 days in hospital and had emergency surgery to have my pacemaker fitted. I am now 100% paced. 

The whole thing still feels completely bizarre to me. I feel I haven't really come to terms with the fact that I have a pacemaker, it all feels very very surreal. 

I am really really grateful for my pacemaker but even after 6 months I am finding it really hard to comprehend that I am essentially being kept alive by a battery operated box inside my chest. I was never expecting to have a pacemaker, it was something that never crossed my mind as my initial condition wouldn't have been treated with a pacemaker, only betablockers.

I guess I'm asking if other people have felt this way about having a pacemaker and wondering if there was any tips to combat the not so nice feelings. 

I hope I don't sound too negative as I really am grateful to have it and be able to live a mostly normal life, just feeling a bit stuck at the moment. 

Thanks x


4 Comments

Hi and welcome

by Lavender - 2024-10-08 21:03:33

So sorry you're dealing with this. Of course you're still going through the shock of a surprise emergency pacemaker. Yes many of us resented having to get a pacemaker. The body healed long before the brain got to acceptance. I was so disappointed in my heart not being able to carry on without a box in me. I also was glad though there was such a thing to keep me alive. 
 

I have had mine over three years. I didn't settle down and feel better for the first seven months. I'm 100% dependent on mine. I do forget about it at times. I guess I accept it now. Lol. You will too. 

Sorry to hear about the failed ablation attempt

by Rch - 2024-10-08 23:58:48

Hi

I am very sorry to hear about the failed ablation necessiating emergency pacemaker implantation to overcome the AV block! But you would be very relieved to know there are members in this forum who have had pacemakers, some even from birth, and essentially live normal lives! PM these days are mini electronic brains that function in rain or shine 24/7. Batteries these days last for a good 10-12 years despite 100% paced! The only thing that we, as patients have to do, is take care of ourselves and our pacemakers with disciplined life style! We wish you well! You will be fine! 

time

by Tracey_E - 2024-10-10 11:50:39

Different situation, but I got mine at the same age. I'm 58 now, still healthy and active. It's a disorienting feeling at first, knowing this thing is inside us and we are depending on it. As you heal and feel better, those feelings should subside until you reach the point where you don't even give it a thought. I found that the better I felt, the easier it was to trust the pacer to do its job and for me to get back to normal. 

I had two children after I was paced, both are your age now, also healthy and active. Life goes on. Getting the pacer was merely a bump in the road, it does not define me or slow me down. 

Surprise

by Theknotguy - 2024-10-12 23:32:42

I feel the sudden change from being a non-pacemaker person to having a pacemaker makes it really hard for you to adjust to the new situation. And, of course, being 100% dependent makes it even worse. 

I'm walking down the trail, doing fine, turn the corner to go on the exit trail, everything goes black. Wake up six days later with a pacemaker. So, yeah, I understand how you feel. At least I had my first pacemaker for about eight years before I became 100% dependent. So I felt I could rely on the pacemaker even though I was 100% dependent. 

It was nine months before I got out of my car and walked across the parking lot without thinking about my pacemaker. When you get surprised the mental adjustment  takes a while. 

At first I wanted to think I could climb Mount Everest and with the pacemaker I wouldn't be able to it. Even though it's hard to not to concentrate on what you may have lost your mind still goes there. At first it's really hard to concentrate on what you have gained instead of what you have lost. That's a normal mental reaction.

Because of the sudden change in my life I worked with a psychologist for a while. It helped to have an independent, neutral third party to help me look at life in a more positive way. If a psychologist is available I encourage you to work with one.

Life is good with the pacemaker even though I'm 100% dependent. I'm able to do everything I want and most of the time I don't even think about having a pacemaker.

I wish you the best and hope you can adjust quickly to life with your pacemaker.

You know you're wired when...

Your license plate reads “Pacer4Life”.

Member Quotes

At age 20, I will be getting a pacemaker in few weeks along with an SA node ablation. This opportunity may change a five year prognosis into a normal life span! I look forward to being a little old lady with a wicked cane!