Some discomfort

Hi Everyone! I am 6 months post op with pacemaker insertion. I am still having mild discomfort. I was told it could take 6 months for the nerves to settle down. Scar looks good, no infection, or temp. It feels a bit itchy still and tender. I can feel the device which surprised me. When I move or lie on my side there are times can feel it. Its still achy. I have a high pain tolerance but this is a bit unsettling. Surprised I'm feeling discomfort still. Did anyone have this experience? My checkup is in 2 months.


6 Comments

Discomfort

by AgentX86 - 2023-06-13 16:25:32

It can take a while for the last vestigases of the surgery to dissipate competely.  Nerves have been cut and it takes a while for them to reconnect to the brain.  Mine was sensitive to the touch for seven months.  The reason I say seven is that one day I  thought "Hmm, I don't feel that anymore".  I didn't remember when it stopped because I didn't think about my pacemaker anymore.

You may "feel" it forever because it is a lump in your chest but any pain or itching (a sure sign of nerves stitching together) should be gone soon.

Hi💕🌸

by Lavender - 2023-06-13 19:00:30

Like Agent said, my experience was at seven months post surgery-I suddenly realized I felt pretty much ok! I had some left arm soreness and massage helped that. It's fine now. I'm two years in and I am too busy living life to dwell on the pacemaker much. The only time I notice it is when lying down to sleep. I finally can lie on either side, but I always put a small pillow over the pacemaker and lean into it because I don't like the sensation of the pacemaker kinda tipping forward on one end.  No pain. Just don't want to bump it. 
 

You are doing well. It will improve and like I often say-how you feel today isn't how you're going to feel in the future. 

Took a while.

by PacedNRunning - 2023-06-14 04:29:06

Took a while for me also. 6 mos to fully heal. But a good year to have less soreness. I'm pretty active and sleeping hard on my PM side wokld leave me sore sometimes. Give it a year at least. 

Post op implant pain is common. More realistic advice and better pain management needs to be given

by Gemita - 2023-06-14 05:03:22

Hello Shop Girl, since we are all unique with very different health conditions and since we will all have a different implant experience depending on the expertise of the surgeon, we can expect healing times to vary quite a lot.  We did a survey on post op device pain and managed to get this published, and I attach a link in case it is of interest.  You will need to copy and paste the link into your main browser to open.

The take home message that a pacemaker implant is a simple procedure can be misleading and not always the case for some of us, since some patients are not fine after a day or always back at work after a week and more realistic information and better pain control might be needed.

My personal experience was that I needed neuropathic pain medication for several months following my implant since I experienced intermittent electric shock like sensations in the chest, going into my upper back which were uncomfortable.  I also experienced vein trauma where the leads were placed, which caused pain across my collarbone.  Actually trauma/obstruction of a vein following pacemaker lead placement is not all that rare nowadays and is a known complication and this may cause a lot of discomfort.  Many of us are fortunate enough to develop good collateral vein circulation around any trauma/partial obstruction to help bypass the area.  I did and have a network of large purple veins around my device which is nature's way of helping. I am now free from pain.

There is a lot that could go wrong with any surgery/procedure, but of course the majority of us thankfully have straightforward implant procedures.  I was relatively pain free at around 8 months, although at 5 years, I am still reminded occasionally that I have a pacemaker.

I hope your forthcoming check up will go well and that you will soon be discomfort free.

https://bjcardio.co.uk/2022/07/pain-after-pacemaker-icd-implants/

Thank You!

by Shop Girl - 2023-06-14 10:02:36

Thank you everyone! I posted a response yesterday but it looks like it went into cyber space! :) I appreciate all the feedback. It's been a bit unnerving because I usually heal so quickly without discomfort. Glad to hear this is all normal. I also agree there is not much literature for expectations or consistency out there. Even at pre and post op while at the hospital, I was getting different answers from different people about what to expect... the drs, nurses, Medtronic tech.  I was given written post op insructions that seemed too carefree. When I questioned it at my post op appt, I was told, I still needed to be careful for a few more weeks so as not to pull the leads out. It was a very reputable hospital. I tend to fly solo and this is a great reminder for me to not sit in silence - rather reach out because this is a great community with so many resources. Many thanks!! 

November 2022 Post Dual Chamber implant

by JrScorpio - 2023-06-25 06:39:33

I thought I was the only one who had discomfort from the pacemaker.  I was trying to avoid getting one but didn't make it thru to finish the preop for another procedure.  I had no cardiac history until suddenly August this year will be 3yrs.  I went into complete heart block and CHF with no known cause of why to date.  I continued having multiple issues from then on to the point of collapsing last November on my death bed.  They placed a dual chamber Medtronic and wow that was an experience I wouldn't want to do again.  I got very sick afterwards and they thought I may be rejecting the foreign object but I went on antibiotics for some time and the issues resolved.  My scar has healed fine but it still does have what I would say the mad itch and when I lie on my side at night I have to be careful or it will push up on my collarbone or is I move my are the wrong way it will do it.  When I talk about the itch everyone just looks at me with the deer in the headlights like I don't know what I'm talking about.  I worked in a hospital for 25 years so I'm not dumb to medical stuff.  I've even mentioned it to my wife who is a cardiac icu nurse and she has no idea.  So I feel much better knowing I'm not the only one.

You know you're wired when...

Your pacemaker interferes with your electronic scale.

Member Quotes

We are very lucky to have these devices.