Got pacemaker 5 days ago

I just got a pacemaker last Wednesday and have been lightheaded ever since.  I was okay coming home at 6:00 but the next day through today, I am constantly lightheaded.  I think my pacemaker needs an adjustment.  Has anyone else had this experience and how was it fixed?


7 Comments

light headness

by new to pace.... - 2021-08-08 13:51:40

You might remember you should  drink  a lot of water to get flush your body of the chemicals.  That you have in your body.  Then of course keep drinking a lot of water each day.

new to pace

meds

by Tracey_E - 2021-08-08 14:35:06

Are you on any pain meds? Dehydrated? If it doesn't go away, call them. 

5 days out

by Persephone - 2021-08-08 14:39:35

Hi TerraceGolf - I hope you're feeling a bit better today, and that each day gets better for you.  In addition to ensuring that you keep hydrated as New to Pace and Tracey point out, consider keeping a log of how you're feeling - when you have negative experiences and what you're doing at the time.  This can help you have an informed discussion with your medical team when you have your follow up appt.  Yes, I experienced lightheadness but on exertion, not constantly, and I was able to get PM adjustments that helped.  There is a lot of good info on this site about PM adjustments and tuning for each individual's needs.

Got pacemaker 5 days ago

by terracegolf - 2021-08-08 14:47:40

Persephone, how was your pacemaker adjusted for your needs?  Just curious how they do it.  I have an appointment next week with the pacemaker technician.

First visit

by Persephone - 2021-08-08 15:17:55

Terrace - considering that you're not feeling well, I assume it's going to be challenging enough for you to just show up at your appt, in a process you're unfamiliar with, and that you would not be expected to somehow be equipped to ask all of the questions that you need to have answered about this life-altering device you just got. I would suggest going for the basics on this first visit - if you use the search box here you can find much good advice about what questions to ask on a first appt.  In my experience, the first visit was only in the clinic with a tech who checked that the PM was working OK, the wound was healing appropriately.  That person could not answer all of my questions and I had to wait for another appt quite a while later with the EP, who did answer my questions. You may have a different experience.  In my case, the adjustment was pretty simple (turning on rate response, which was not done until over 1 year out; they probably did other adjustments but I'm not that focused on the nuances that I track it).  We all have different needs. There is a lot of discussion on this site about fine tuning.  I would say keep it simple on this first appt and attend to the task at hand - you're not yet feeling well and you want to know why.  Good luck and hope you're experiencing daily improvement.

Got pacemaker 7 days ago

by terracegolf - 2021-08-10 21:57:47

I am very worried and feeling miserable.  I am nauseous and dizzy most of the time.  Thursday I have an appointment with the pacemaker tech but the doctor's office says my numbers all look good.  I have never felt this bad.  I had some dizziness prior to getting the pacemaker but I was never nauseated.  I am concerned about pacemaker syndrome.  Has anyone dealt with the symptoms I am experiencing?  I felt much better before getting the pacemaker which was presented as optional for me but my EP recommended me getting it.

Yes!

by MinimeJer05 - 2021-09-13 23:09:57

Terracegolf,

 

any updates on your situation? I too have felt like crap since the surgery. I would say before I only experienced this (to a much more extreme degree) two times, which alerted them that I needed the PM. Since then, I've felt "foggy" and my vision can't focus and it's something I feel all day, with brief moments where it gets better and most moments it feels worse (pretty much anytime I leave the house and try to go somewhere). 
 

I hope you found your answers! I have a meeting on Wednesday with my cardiologists to hopefully find some answers. 
 

Best of luck 

 

jer

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