So very tired still

Wondering if I will ever get my energy back. I wake up at 5:30 a.m. and by 10 a.m. I'm ready to go back to bed. I am only 57 and feel like I'm 100. I got my pacemaker in April of 2020 and have yet to be able to get my energy back that I had before I feel better because I'm able to actually get out of bed before the pacemaker I can hardly even get out of bed my heart rate was 32 beats a minute. I don't think I would mind so much if I didn't need to go back to work but I can't work and be this tired. My cardiologist said I should have enough energy to go run a marathon right now haha can't get through a day without being tired. Don't know what to do been to many doctors and they all say it's cardiac related. Maybe there's somebody out there that might understand how I feel and have a suggestion on what I might be able to do. Thank you Genny



by AgentX86 - 2021-05-17 23:12:13

Has your tachy phase gotten worse?  It's also possible that your paceaker needs tuning but I wouldn't expect it to cause fatigue. You might need the PM's minimum rate raised.  These are all guesses though.

It's quite possible that it's not cardiac at all.  Anemia?  I'd be pushing for answers and not taking "we don't know" for an answer.  This isn't right but often you do have to stick up for yourself. 


by Julros - 2021-05-18 01:33:39

I agree with AgentX86 about getting other issues checked, plus optimizing your pacer settings. Anemia, thyroid disfunction, diabetes and or other endocrine disorders come to mind. Plus, you may be depressed if you have not felt well for so very long. 

I know what you mean about being so profoundly tired that you were ready for bed right after breakfast. I felt this way pre-pacer, when my heart rate was in the 30s. I was put on thyroid replacement and got motivated to finally lose weight, and started jogging once my incisional pain abated. I did seek counseling, but that was a wash. Losing weight and achieving small goals really seemed to help me. And lots of mindful breathing. 

Please don't lose hope. Most of us here have felt pretty low, but it does get better. 

You have a lot going on

by Gemita - 2021-05-18 04:48:36

Genny, if I am not mistaken, I do recall answering an earlier post from you but there is no trace of this in your history.  

You do have quite a lot going on (SSS and Blocks) and this may require further work on getting your pacemaker settings optimised for you.  Of course as you will probably know,  the “tachy” part of your tachy/brady syndrome cannot be fixed by your pacemaker as can the “brady” part, and a higher heart rate could still be giving you problems as AgentX86 points out.  At higher heart rates I can quickly feel worn out.  Maybe you could ask your doctors to keep monitoring for changes in your condition (worsening arrhythmias) as a cause for your tiredness or you could keep a diary and take the evidence to them.  Periodically feel your pulse for fast, regular/irregular rhythms and get to know what is normal for you.

I also agree this could be due to other health conditions since tiredness is one of the most common reasons we visit our doctors.  Not everything is pacemaker related or fixable by a pacemaker.  Do you have any other symptoms other than tiredness Genny?  Weakness, breathlessness, dizziness, perhaps some of the symptoms you had before your pacemaker, which might point to poor control of your symptoms in general and the need to make those pacemaker adjustments sooner rather than later?  Apart from the advice given by AgentX86 and Julros, I would also go along to see your doctors and get your electrolytes checked and maybe ask for additional monitoring of your heart since you say it is cardiac related?  A general blood test looking for chronic infection might be a good idea too as well as checking for sleep disorders.

I hope you will soon feel better and that you will stay safe, particularly if you need to work and drive to work.  Tiredness can cause accidents, as I well know, so please follow up with your doctors as soon as you can


by new to pace.... - 2021-05-18 08:33:41

Sorry to hear you are sill tired. A couple of things: You might check your medications might be having a reaction. 

  Or the foods you eat are causing you to be tired.  I know when i stopped eating bananas i became a morning person.  Was causing me to feel drugged and i slept after eating.  Has tryptophan in it.  Or maybe the wheat, you are eating etc. I have many foods that cause me to sleep.   You might see an allergist to get tested.  Or take a food sensitvity test that the insurance companies usually do not may for.  Or try the elmination diet.  If you have any questions you can PM me.

new to pace

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The pacer systems are really very reliable. The main problem is the incompetent programming of them. If yours is working well for you, get on with life and enjoy it. You probably are more at risk of problems with a valve job than the pacer.