It's been a while since my last post but I've been narrowing down my issues and I wanted to get anyone's thoughts on AV DELAY. When the PM was first placed it was set at 50/120 and nothing else. I felt fine. Then from there I've had the CLS turned on, then turned off, Rate Response turned on, then turned off. I had the AV DELAY HYSTERESIS turned on with I believe a 300ms delay but according to my EP it was causing occasional Retrograde Conduction. Now I have the AV DELAY HYSTERESIS with a 200ms delay. With all that said I truly feel the AV DELAY is my issue. Allow me to explain.
Last PM check (10 days ago) I was using Atrial Pacing less than 1% and V-Pacing over 11%. My original diagnosis was for nightly pausing, Bradycardia and intermittent heart block. ALL of this happened ONLY when I slept. Now since my Atrial pacing is less than 1% that takes care of the Brady and pausing. The 11% for V-Pacing seems excessive and I know based off my continued intermittent symptoms this has to be the issue.
I still INTERMITTENTLY have trouble with chest discomfort. It feels like my chest is clogged. At times it feels like I'm drowning/suffocating somehow. It's horrible! The real problem is that it only happens out of the blue and at odd times. Sometimes I am moving around. Sometimes I am turning on my side in bed and sometimes I am just sitting still. There is no rhyme or reason, it just happens. I am starting to wonder if they turn off this AV Delay will it help or if they play with the timing will that help?! The other way I can explain what I feel is if my heart beat is 1,2,1,2 normally, when I feel the issue it's like a 1,2,1,1,2,2,1,2,1,2 it's like the rhythm is off. I feel like the AV DELAY is coming in at the wrong time or is not needed and is causing me these issues. I hope this makes sense.
Also please keep in mind I had NO IDEA anything was happening to my heart prior to the PM. I never felt anything prior to the PM. I was able to exercise and I felt great. Now anytime I exercise or do something trivial I feel this awful chest discomfort it's so hard to explain. It makes me not want to exercise or do anything very active. I am beyond frustrated and I just want the docs to get this right already!
Does anyone have thoughts on this? I don't find many AV Delay posts on here so any input is greatly appreciated. Thank you all in advance for reading my post. God bless!