New to this & not really happy
Hi to all!
I am only 1 week from impant (just had my "wound check" appt & it's healing well). My biggest problem is the total lack of instruction/education that has been made available to me about a device that is now inside my body & connected to my heart!
My doctor was pretty good about explaining the reasons for the pacemaker & the expected outcome. I am in a-fib about 13% of the time--that's with medication (tikosyn)--but when going in & out my heart would pause & cause extreme dizziness. I never passed out but felt like I could. I was told repeatedly that the pacemaker would do nothing to correct afib, but would make it easier to treat by reducing the risk of slow or paused beats.
I was in & out of the hospital same the same day, sent home with a general information packet & the standard after care sheet of do's & don't's. It was up to me to contact the pacemaker company (Medtronic) & set up montoring. The folks on the phone were very little help & kept insisting that the app on my phone was all I needed. When my own clinic was unable to send/recieve a transmission, they ordered me a different sort of monitor. I have not yet recieved it, but i was assured that it is much simpler. I found the Medtronic website difficult to navigate and basicallly just a huge advertisement for how great their equipment is with no useful information.
To top it off, even though my doctor did stress that the pacemaker would have no effect on afib symptoms, I almost feel like they have gotten worse & more frequent. what's up with that?
I will not have an in-office evaluation for another 3 months, but hopefully when i get my monitor it will provide a bit more information. Right now I am mad, upset, even a little depressed. I feel that support is just not there, and I am wondering if I took things a step too far in getting a pacemaker when I actually felt better overall without it. Hmmm....
You know you're wired when...
Intel inside is your motto.
I am not planning on letting any of this shorten my life. I am planning on living a long happy battery operated life. You never know maybe it will keep me alive longer. I sure know one thing I would have been dead before starting school without it.