New ICD owner
I am a 46 year old firefighter diagnosed with Cariac Saroidosis. I have a Boston Scientific Resonate EL ICD DR. I am post op 3 weeks and had my first visit to the Pacemaker Clinic at Vancouver General Hospital. I have an AV block (I'm a little uncertain what degree AV block it is). Prior to my visit I was feeling great and that the recovery was going well. Yesterday I felt horrible. I felt light headed and a little out of control. At the pacemaker clinic they added a delayed response from the atrium to the ventricle. I believe this is the cause to my lightheadedness. So I had my appointment on Friday morning and I am now dealing with the symptoms over the weekend.
I have questions that should be for my cardiologist but it is near impossible to speak with him. I don't know if its the COVID crisis or if he is just a busy man? Perhaps both. I do plan to speak to him Monday and also to speak to the PM clinic but thought I would ask questions here as well. Perhaps others have the same questions? So hear are a few questions.
Are adjustments just that? How much tweaking is needed to zero in on a pacing that works? How long did it take for you to feel normal or your new normal?
Does the heart need to pace as much as possible on it's own? If 100% pacing is required what does that do to the heart overtime?
Will the heart adjust to the new pacing or is it necessary to be tweaked at the clinic?
Does time of day play a factor in severity of symptoms? In the morning I feel better but in the evening I seem to feel more lightheaded and tired. I felt better prior to the adjustment at the clinic.
Does the native signal come back (at all) after steroid meds (again I have Cardiac Sarcoidosis) If the heart inflamation goes down one would think the electric signal would improve?
Thank you in advance. I do feel isolated at the moment given the COVID crisis and the fact that I am unable to drive. I have a great support group of family and friends but they ask questions that I don't yet have answers for. Any help would be greatly appreciated.