Old Pacemaker Scar on Stomach - feels like it’s tearing...
i'm really happy to have found this site. My name is Jordan, and I was born with Complex Congential Heart Disease. As such, I've had many pacemakers throughout my life - if I had to give a rough estimate, I had about 5 temporary ones (all in my stomach) before I was 3 years old. Upon turning 3 I was flown to Mott's Children's Hospital in Michigan and had a surgery known as the "Double Switch" performed on me. Honestly, I don't even truly understand it all myself!
when I was 11, I had another surgery to replace the battery of that pacemaker. When I turned 18, I had the surgery that defines my current life - my pacemaker in my stomach was removed (but not entirely, we'll get to that soon!) and the pacemaker that I use today was implanted into my left shoulder. The usual stuff for us here. That being said, they DID leave some of the old pacemaker wires in my stomach...
However, starting around the end of last year (I'm now 22, for a time estimate), I began to feel... complications all centered on the scar of my stomach where my pacemaker used to be. I can only describe it as a "tearing" pain - it started in the beginning of November and got increasingly unbearable, to the point where I was soon sitting in the passenger seat of my friend's car and couldn't take the pain (the pain is the greatest when I was sitting up straight). I made him pull over and I opened the car door and fell out and just keeled on the side of the road in pain. My dad came to pick me up and took me to urgent care, where I suffered another extreme attack. We then went to the ER and they did a CATscan and found... basically nothing. No scar tissue that they could see, no hernia, no wire inflammation as far as they could see. They told me to come back in about 2 weeks and report how I was feeling. I reported back in pain, but not nearly as much... for reasons I don't totally understand. The doctors then prescribed me pantoprozone, which I later would believe is simply a placebo. I took the medicine and - wow, I had never felt better in my life?? I was so happy! I went on with my life until mid January, when I tried working out and running on my treadmill for the first time since the pain had started. I woke up the next morning and the pain was back and in it's very ugly and brutal form... yet I was still taking the pantoprozone.
Fast forward to now, the pain has mostly gone away but will return if I squat, or basically do things that would excerise those exact muscles that the scar is near. I was supposed to go to a gastrologist this week to get us closer to what the answer could be, but the coronavirus has ruined those plans, and I'm done sitting around and not knowing what this pain could be, so I joined here.
if you have an idea of what could be going on with me or what my next step should TRULY be, please feel free to leave a comment and discuss things with me. I'm open to answer any questions.