6 days post pacemaker implantation

Hey everyone. I'm 38 years old and had to have a pacemaker placed 6 days ago. I can honestly say I wasn't expecting my week to end like that. Then again, 2019 has been a year of unexpected events. My 16 year old son had a heart attack in January.  That lead us to find a congenital birth defect known as an anomalous left coronary artery with an interarterial and interseptal course. He had open heart surgery to repair it in August. He is already back to wrestling and doing amazing. My husband nearly dropped dead from a heart attack in February.  He was found to have an 85% blockage in his LAD. They put a stent in and he is doing wonderful. Two knee surgeries later (one for me and one for my 14 year old son) we thought we were finally done for the year. Last week I started showing symptoms of CHF so I went to the ER. They hooked me up to the heart monitor and found my heart rate to be in the 30's. I've always ran a low heart rate (40's-50's) and would have occasionally near syncope, dizzyness and shortness of breath. I've noticed a decline in my energy level in the past few months and during the time of my knee surgery my heart rate was noted to have dropped down in the 30's but I still seemed to be compensating at that time. I guess I just quit compensating.  The cardiologist performed an echo, looked at all of my EKG's and bloodwork, reviewed my medications and said there was no other cause for my bradycardia other than sick sinus syndrome and said I needed a pacemaker right away. A few hours later it was in. I can honestly say I feel like a new person. These past few days I have had energy. I had been dealing with pain from inflammation every day for so long. My joints hurt so bad that I didn't want to move. I had knots forming on the soles of my feet to the point where it hurt to walk. All my bloodwork came back fine and we just couldn't find the cause for all the inflammation.  I can honestly say i have been pain free for 6 days!!!! I feel like I've been given the gift of life. Now I am just trying to adjust to life with a pacemaker. I've noticed a thumping feeling every once in a while. It feels like there is something inside my chest flicking my heart. Sometimes it feels like a double flick, like a gallop. It usually doesn't last long but this morning it has gone on for about an hour and a half. Has anyone felt this with theirs? My follow up is on december 30 and I have my box next to my bed. I assume they can see if there is a problem.  Does the box download information automatically every night or only when I submit it? Still trying to get used to everything.  I'd appreciate any input.


3 Comments

Doing great

by AgentX86 - 2019-12-18 12:23:13

Hi CM, Welcome to the group.  Sorry that you had to be here.

I'd say that you're having a bad year!  Yikes! But it seems things are getting set right.  You're doing amazingly well - one of the best recoveries that we've seen here. Thank you for sharing.

As far as your ponding feeling, it could any number of things.  From what you've said, it could be PVCs, or perhaps PACs.  If you can catch it, use your monitor to send your pacemaker's information to your PM tech and EP.  Pacemakers don't save all inforation internally.  Your doctors program what they want it to trigger a recording of.  However, if you initiate the transmission, it transfers everything it's seeing at that time, inclding a (1-lead) KG.

It could also be that the wires leak electricity and when the wires cross muscle it "paces"  in places it's not supposed to. It's rather common for the leads to pace th diaphragm. Any of this can be positional, as the wires move about in your body.

The BostonSci remote monitor (Latitude) interrogates your box every night

by crustyg - 2019-12-18 14:49:41

But it doesn't send back to base unless there's something to report.

You *can* do a manual interrogation, but usually you need to ask your EP clinic for an upload, otherwise your monitor will report an error. I would start with that.

You've been shown how to use the Latitude's patient-initiated interrogation feature?

Crusty?

by AgentX86 - 2019-12-18 21:31:25

What's the difference between a "manual interrogation" and a "patient-initiated interrogation"?

Mine doesn't automatically upload at all.  I have to do it manually.  It's there so that I don't have to go to the device clinic as often and can send a report if I notice anything strange.  I've never used it in leiu of a device clinic visit. The DC visits are my chance to tune the PM more to my liking. I did use it a number of times to figure out what another arrhythmia was (bigemini PVCs).

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You run like the bionic woman.

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