Whether I need a pacemaker or not

• by Strange
• 2018-08-11 06:35:59
• Complications
• 1460 views
• 4 comments

Hello all

i am a 15 year old boy , i live in chennai india ,

when i was 2 years old i was found that i had tacecardia and it was serious , my heart rate used to be 240 bpm .

i came to chennai for treatment from Dubai , the doctors told to abliate

i underwent abliation but at that time they said the actual signal producing node also got damaged and my heart rate was too low . so they fixed with a pacemaker , in the year 2004 .

then in 2013 i had to change my battery and i got an upgradation to dual chamber .

then in 2017 jan month i suddenly started to have a paplpatation in my pacemaker area and i felt it serious .

the intorogation was not ok .

the doctor said one of my leads were not working so we need to put another lead

and again i went on that .

so tottaly i had 4 leads .

but, after that my wound in the site was not healing

i went through exploration in ot .

in the year 2017 i went to OT 12 time for site exploration

in mid 2017 june the surgeon said that it is infection and i went through a open heart surgery .

but even after that wound did not heal .

and after OHS i did not have a pacemaker .

and yes, I used to, I am facing a lot of probs with this low heart rate .

my heart rate goes max 58 or 57 not more than that , so when i climb steps i get coughs and get exausted very soon .

echo was normal as per doctor said .

My LVEF got improved to 70 % in last months echo .

but, today i got a call from my juniour doctor, who is a very caring and lovely person, he said that we doctors have decided to fix a pacemaker on you again , he asked me how do u feel , it is u who shud tell whether you need a pacemaker or not , it is based on ur symptoms , then  i asked him why is my heart rate not increasing , he told it was due to COMPLETE HEART BLOCK and ur atriums and not working with a sync which was there from starting , then i asked him whether i can stay like for a longer period with CHB and no pacemaker , he replied , no at any point of time u will have to fix a pacemaker , but after some time u may tend to show symptoms of heart faliur or ur pulmonary pressure will increase with is already present from the start , i got worried , but seniour docs are not saying that it is cumpulsory to fix a PM , as of last visit , he says the seniurs has told to fix , so when r u coming for a checkup .

last visit my cardiologist told me that they wanted to do a treadmill test , but nothing was told after that , i was not called and said later .

my questions are .

- can i live for a long time with COMPLETE HEART BLOCK and no PM ?

- will i face any issues in my later stages ?

- r there any complications of staying like this with CHB and NO PM

- do i need a pacemaker ASAP ?

- now after one year of no PM will fixing a PM work . because i remember my doc saying this to himself while talking to us and when i asked he said nothing

at present my symptoms are

coughs and gudiness while climbing steps

gudiness while sitting simply too ONLY IN A WHILE

inner slow palpations afer a stress job like climbing steps . it is like my heart is punching me

pls give me suggestions

myself and my parents are worried

and i am in class 10 CBSE

pls suggest....

regards