Post Surgery Issues

I’m 40 and got my pacemaker a month ago. I have went from sinus brah. to tachycardia. My blood pressure goes from high to low, pulse rates of 125-150 sitting down. Doctor have checked everything out and indicate pacemaker is fine. Pacing 30% of the time. I feel terrible, blurred vision, headache, insomnia, fatigue, I get hot and can’t stand being outside in the heat. My health was perfect before all this. I honestly thought I had the flu, and a week later was diagnosed with sinus brach. With a pacemaker. I’ve done the doctor thing and not getting any results. Doctors have dc all medications 

Any help would be greatly appreciated. 

2 Comments

another opinion?

by Tracey_E - 2018-05-10 10:50:48

It might be time to get a second opinion. All the pacer can do is add beats when your heart goes too slowly so it can't directly cause what you've described. Is it possible more was going on from the beginning than just the slow heart rate, maybe a virus?

Are you on new meds? Heart meds cause all sorts of side effects.

When they say the pacer is fine, that means it's in position, leads are working, and it's pacing. That doesn't necessarily mean your settings are where they need to be. They start with a good guess, then fine tune as needed. 

Second opinion! Get one.

by Gotrhythm - 2018-05-10 13:40:52

I must echo Tracey's comment. If your doctors aren't helping, get a second opinion.

Your case reminds me a lot of mine. I too had a "flu" I coudn't seem to recover from. I was diagnosed with bradycardia. In the beginning I was paced 34%. Sometimes I felt fine, better than before the pacemaker, but sometimes I felt terrible, my heart racing and pounding. I was given test after test and told everything was "normal."

Here's what I found out. Even when a pacemaker is working "fine" and only pacing 30%, there can still be things wrong with how your heart is responding to being paced.

Here's what else I learned. If the specialists don't know how to treat whatever is wrong, there's no point in going back. And I was advised by a medical doctor, there's little point in going to another specialist in the same town.

Of couse, you might not have what I had at all. Still, even if you have to travel, go to a major medical center.

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But I think it will make me feel a lot better. My stamina to walk is already better, even right after surgery. They had me walk all around the floor before they would release me. I did so without being exhausted and winded the way I had been.