New* EOL and these palps

Hey y'all! So I have a boston scientific pm.. I'm at EOL. 😒 it's happened quicker than expected (to me) and I wasnt ready for the size effects. I am 70% paced top chamber & on demand bottom.. The palps SUCK!

History... 7 years implanted, in November i was told 6-9 months, at 6 mo (for diminishing) start coming monthly.. Well I'm 5 months in and can barely walk room to room with out heaviness and crazy thumping in my chest. The last 2 weeks it's been worse each day. I hate this! It's like life before my little gadget. 😥 

I went to ER & they did an ekg.. Based on that i was not in distress.. So the left me in waiting for 5 hours & we left ANGRY. 

What do I do? How do I go till Tuesday feeling like im being choked and jumped on? Oh and the dizziness is crazy! 

Thanks. 

(Headaches, dizziness, shortness of breath & no appetite)

5 Comments

palps

by Dexter - 2018-04-08 13:47:33

You need to follow up with Cardiology to review your read-outs to see if your PM needs adjustment.

New* EOL and these palps *update*

by brookie1028 - 2018-04-08 17:57:19

I'm in the hospital now. Not ling after posting we called 911.. My overall symptoms got worse.. Turns out, my pacemaker is NOT registering. At all to Boston Scientific.. Meaning it died! The doctor said, I couldve passed away at home. Good thing, my bottom chamber fires fairly well so, surgery is tomorrow. Top chamber doesnt fire at all. 

So, my pacemaker battery died. 

wow

by Tracey_E - 2018-04-08 20:42:04

Usually when it hits EOL you have about 3 months of limited pacing. Bells and whistles are cut off and it paces at a steady rate. We don't feel good during that time, but we are safe. Unless we totally blow off follow up appointments, it's rare for it to totally shut down. You might want to have a chat with your doctor about cutting it close! I'm on my 5th and only got to EOL once, the other times we were able to schedule it when it was still in elective replacement (the 3 months before EOL). So sorry you've had to deal with this! Good luck tomorrow. If this is your first replacement, it's super easy. 

Wow is right!

by Grateful Heart - 2018-04-09 09:48:53


This just proves once again that everyone and everyone's experiences can be different.

I should be due for a CRT-D replacement within the next year, probably less.  It will be the  first replacement after 9 1/2 years so far.  Interesting....I have been having more palps than usual, my nurse even saw it when I was in for an interrogation.  

It's a good thing you went back to the ER.  When we aren't being listened to, we have to listen to our bodies and be our own advocate...go with your gut...and you did!  We are not all a "text book" case.

Grateful Heart

I had to trust my instincts

by brookie1028 - 2018-04-11 00:33:11

Well got my new PM yesterday afternoon and let me tell you, OUCH!  The doc had to remove a lot of scar tissue just to remove the old PM, then even note to insert my new one. 

I am so thankful I called 911 when I did, it was even a mystery to my cardiologist as to why, it died.. Her records showed i had at least 3 - 6 months left... And I was out cold before the EP guy could see why. 

But, as my hubby says, "my alternator has been changed " and despite pain and swelling.. I feel so great! 

You know you're wired when...

Your heart beats like a teenager in love.

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