A Painful Story

Hello group.  My name is Matt and I am a new arrival here.  My wife had an ICD implanted in August 2015 following unsuccessful EP studies and a subsequent out-of-hospital cardiac arrest which I ressucitated her from (and implanted again in September 2015 and again in May 2016 because the first two procedures had been messed up). The second procedure left my wife in life-long chronic pain.

Arrhythmia-wise, she is now very stable (touch wood) but the complications from her treatment have ruined her life and there have been times when she has wished that she hadn't survived. Evemn now, she has on average two or three medical appointments every week to try and get her into a better place. As I have failed to get the hospital Trust to acknowledge their errors or (more importantly) to do anything to prevent them from happening to others, I have started to tell the story publicly. It can be found here: https://arrhythmiastory.com/

It is probably not a tale for recent implantees because it is, I hope, far from typical and it tells of many very negative experiences.

Together, we have been through quite a lot and perhaps our experience might be of value to others. I'm happy to try and help where I can.

 

Matt

2 Comments

So sad

by TAC - 2017-08-16 08:07:39

I woke up in the middle of the night and before going back to sleep, I decided to check the forum for new messages and found yours. I decided to read only  the beginning of your story, but I instantly became hooked to it until morning. A sad story described by a very talented writer. It could have been a "best seller" book. Good luck with your wife and congratulations for such a magnificent piece of writing.

A painful story

by Loonylil - 2017-08-16 11:44:45

so sad to read about your experiences

i do hope you and your wife will find peace of mind and a better quality of life soon

with all best wishes ❤️

You know you're wired when...

You have rhythm.

Member Quotes

But I think it will make me feel a lot better. My stamina to walk is already better, even right after surgery. They had me walk all around the floor before they would release me. I did so without being exhausted and winded the way I had been.