Rubbish again

Sorry to moan yet again, but there is usually some one out there that comes back with a sypathetic comment.

Had my AV abaltion last July for AVRT with PMT and really felt that fianaly I was on my way, but by Christmas I had started to get some of the old problems back, exercise intolerance, unable to to stand for long spells without feeling "drained" and needing a seat, discomfort in the chest/neck .

Have had a check up and a 3day momitor and all was ok !!! the pacemaker was doing its job, changing mode when i got some SN arrythmia. Was very nicely told I'm probably oversensitive and just try to get on and do stuff. I bit my tongue as I appreciate the physiologists dont know me as an indervidual, but for the last 9years that all i've done is get out there and tried to keep doing all the things I enjoy. After each op/procedue you think yeay!! this is it then you slowly slip back again,

See the consultant in 2 weeks but at a loss as to how explain how I feel without seeming like I'm over reacting, we are trying to cut down my beta blocker, on a very low dose which made no difference for the first 2weeks but now I feel as if the dose has gone up!!! legs aching at night (yes I'm hydrated) more short tacchy spells but less pvc/pac's??

Just feeling sorry for myself as have just cancelled a 5 day sea kayaking course with my pal, haven't been able to get fit enough and didn't want to spoil the trip for other folk.

Yes I will keep plodding on, probably end up with another private consultation, they do give you more time to explain stuff.

Lots of love Jane xx

3 Comments

okay

by jessie - 2017-04-02 15:32:50

i know that my friend in toronto bionic beat is attending...she to was not feeling herself. i know that most small centres where i live don't have this.right now i am losing weight because i need to. i do every day exercises for the narrowing of my spine which everyone usually has at 75..it has helped tremendously in my walking. i will be doing these daily till the end of my life if i can. i still have balance issues...trying right now to implement some of these in to my routine also walking on treadmill. my trip to alberta in june is coming to see my grandson graduate highschool. hope this is of some help. jessie

Lets face it...

by RandomICD - 2017-04-02 18:55:43

It's shit having a heart condition.

Sending positive vibes your way!

by AWorth - 2017-04-24 23:17:44

"Don’t let anyone, especially your doctor, tell you that A-Fib isn’t that serious, or you should just learn to live with it."  (Beat Your A-Fib, page 1, Steve S. Ryan)

 

Before I found this site I stumbled across the internet in search of any material concerning heart conditions, how to cope, how to live, how to maintan any semblance of sanity while dealing with the complications and endless ER and dr visits. Its funny because there's so much literature out there, but that has its pros and cons. Its great that all this information is at our fingertips yet oddly enough I feel the more research one does the more you become aware of how wrong you feel. Then anxiety takes over and it seems all is lost. I can say that I fall victim to this, a lot. It happens though. And yes, to agree with a comment above, living with any heart condition is shitty. 

Honestly though, I feel that one of the worst things a person dealing with one has to endure is the feeling of not being heard, taken seriously, or being made to feel that youre overexagerating. I completly understand where youre coming from. But there will always be people out there to listen and offer support. Sometimes thats all someone needs, is just to be heard and their feelings validated. You are not alone! 

Awhile ago I was browing through numerous sites just looking for any reading material that revolved around patients accounts and personal experiences and I came across the above mentioned quotes. It resonated deeply with me and gave me that little spark of hope I needed to keep pushing forward. Doctors arent perfect and are capable of making mistakes just like anyone else, they work long hours and see buttloads of patients on a daily basis, but that doesnt mean that we as patients have to take what they say as be all end all. And thats where we need to be vigilant in our pursuit to better understand our conditions so that when we feel something is wrong, we know exactly what and how it explain without being made to feel stupid or crying wolf. I MEAN THESE ARE OUR HEARTS PEOPLE! And sometimes it seems like have a mind of their own. Dont give up, keep pushing forward and get a second, third, fourth opinion. You are not just a number in a stack of charts or the id number on your hospital bracelet. Youre a human being whos thoughts and feelings matter! If theres ever a time you need someone to hear you out, im on this site and will be regularly! God bless and keep kickin ass! 

 

You know you're wired when...

You name your daughter “Synchronicity”.

Member Quotes

I just want to share about the quality of life after my pacemaker, and hopefully increase awareness that lifestyles do not have to be drastically modified just because we are pacemaker recipients.