defib implant

I just got a defib implant on 1/5/17. Having so many problems that I want to tell them to take it back out and I'll take my chances! Diaphram jumping (as I write this), still have premature beats at random times but mostly as soon as I lay down. In the ER on the 20th due to afib and a subsequent shock- a problem that I have never experienced before. Doctors keep saying they don't know why any of this is happening and just keep adjusting the stupid thing but always the symptoms return. I know 4 other people that have the same implant and experience none of these problems. I can't seem to find any answers anywhere from anyone so I am reaching out to the community!! If anyone has any ideas please let me know- going bonkers!!

2 Comments

Comeback

by oldearthworm - 2017-02-10 10:47:19

On the surface  ...a comeback ... the thing doctors and mechanics fear..A qualifier  ..  POOR quality doctors fear this  ..  but I doubt if this is the case .  But, if it is  . . .  

Interesting , but this diaphram  jump ?    and what is it  ?   Kindly elaborate ..  I think, what makes a ''doctor ''  poor is an inability to communicate ..  They should never leave doubt/suspicions in the mind of a patient ..and its more than just answering questions ...

 

Welcome to the Club

by dumb - 2017-02-10 11:35:32

Four days is not enough time for your body to adjust. Defibrillators are complicated, it takes time for your body to adjust. Also your device has a lot of options, your doctor or tech needs to find the correct setting for your needs. Your diaphragm jumpping or twitching is probably from a nerve being irritated.  Did you have a EP well experienced,  do your implant?

In my case a messy little pig came into adjust my CRT-D after the implant, he made adjustments to my CRT and left a trail of junk food behind him along with a comic book to explain about heart failure. Twenty minutes after he left all the warning bells and buzzers were signaling I was having an arrest. Staff came running in from all directions. No one knew why my defib did not correct the rhythm. I went home two days later, four days after implant.

The reason I have a cardiac. Condition is unknown, lots of guesses by assorted doctors. I am sure it is a genetic cause.

Unfortunately, Buyer's Remorse, is not allowed, you buy it you own it.  You do have the choice of not having your device Replaced when the battery dies.  Maybe some place between 18 months to 3 or 4 years. Life span of your device is flexible, just depends on useage.

My suggestion is to drink lots of water, slowly regain  your life, cardiac rehab is very helpful. Keep your dr. appointments.

Life should settle down as time goes on. It was over 8 months before I felt a slight improvement.  

My CRT-D is only in place to act as a defibrillator. Sort of insurance against heart stoppage.

Hope this helps a bit.  I suggest you not compare your recovery to the recovery of your friends if they have pacemakers and you have a IDC or CRT.

 

 

 

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I just want to share about the quality of life after my pacemaker, and hopefully increase awareness that lifestyles do not have to be drastically modified just because we are pacemaker recipients.