Connective Tissue Disorder

I'm wondering if anyone on here as a Connective Tissue Disorder and has a PM? I have Ehlers Danlos Syndrom and they have told me that my PM could wander because of the collegene deficiency in my connective tissue. They said that basically because I don't hold stitches well, the pacemaker could begin to wander. I know this could obviously happen to anyone but I'm wondering if others with CT disorders have experienced this?

4 Comments

Placement of pacemakers

by Selwyn - 2014-05-06 01:05:00

If you already have a pacemaker and it is OK, then it is OK.
Sometimes pacemakers can wander in anyone. There is no end to the 'could' of life. Best to take things as they are.

Forethought is always a good idea for prevention. If you do not yet have a pacemaker, I would consider discussing with your doctor a sub muscular site. I would think this would reduce the likelihood of pacemaker migration. There is a choice to be made of site and depth of insertion. Perhaps a few extra stitches at the time of placing the pacemaker would be a good idea as well?

The cosmetic result of a sub muscular ( under the chest muscles or between them) insertion can be better than the normal subcutaneous ( under the skin) approach.

attach deeper

by CCBlock - 2014-05-06 04:05:22

Thanks for the Advice Selwyn. I knew there must be someway to make it more secure. Unfortunately when I mention my Connective Tissue disorder and history to my EP he doesn't ever give it much consideration. Again perhaps another indication that I need to put this on pause and find someone that will consider everything when they put this in.

EDS

by CCBlock - 2014-05-06 04:05:35

Jane32 I have a history of not healing well over the last 5 years, I was fine before that, but now I have all kinds of new problems now. This all makes me think even more that I need to just tell the Dr put the breaks on. I know he's offering this because I've been admit to the cardiac ward twice in the last 3 months, and had to call ambulances to my home 4 times in the last 4 months....but PM is still not going to fix the Atachs that are landing me in the hospital. Thank for your help.

Hi there

by jane32 - 2014-05-06 04:05:51

my 24 year old grandson has ehlers danlos and has never had any trouble with healing. He was told that he would have trouble with stitches etc but so far he has been lucky. I don't know if you have had trouble healing before. Good luck with pm, I hope someone with experience with pm and ED can help you.

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I have had my pacer since 2005. At first it ruled my life. It took some time to calm down and make the mental adjustment. I had trouble sleeping and I worried a lot about pulling wires. Now I just live my life as I wish.