Clots

Two days after my pm implant I developed DOT (clots) in my left arm. Now three months later I have developed SET clots in the same arm. So I am back on the warfarin, but it makes me pee blood. I am worried about the clots cause that is what killed my dad at a young age. Dr says mine is from the lead in the vein...?

7 Comments

Correction

by billylittle - 2013-07-10 07:07:40

DVT

Similar

by Shepheart - 2013-07-10 11:07:54

I too had blood clots in the lead entry vein. My pm was put in 9 months ago. Two weeks in and my jugular vein became swollen. Now it has progressed to having other swollen veins in my shoulder and arm and my whole left arm is swollen. I was told the problem is scar tissue at the clot site. I think the disorder is called post thrombotic syndrome. I am on warfarin for life, partly because I have Afib and also this clot thing. I try to keep my INR between 2 and 3. The last test read 2.7.

If you are peeing blood it sounds like your warfarin level may be too high. Do you know your INR level?

hi

by Karen - 2013-07-11 02:07:40

My urine was red too when i started warfarin. They discovered I had kidney stones. You may want to get checked out for kidney stones.

Warfarin

by KathyB - 2013-07-11 10:07:09

I agree with Jax, if you are peeing blood you must tell the doctor. Warfarin is sometimes a hard drug to control. why were you on it in the first place? There are other alternatives to Warfarin which are better drugs. I was placed on Xarelto when I developed my atrial flutter, I have not had any problems except for prolonged bleeding if I happen to cut myself but that is expected as it is doing it's job.

re

by billylittle - 2013-07-11 12:07:17

I was originally put on warfarin due to clots from pm implant. I was peeing blood then. My Dr took me off of it. I have developed more clots in my arm since stopping it. Now Dr has put me back on it. While taking it I stay in therapy level but pee alot of blood. Urine looks like fruit punch or sweet tea. No warfarin = clear urine...

Warfarin

by Jax - 2013-07-11 12:07:44

If you are bleeding while urinating something is not right. I don't know what yr INR is but I would let my doc know whats going on. Warfarin can be tricky to control but you should not be bleeding-- who is monitoring you???
For afib yr INR should be between 2-3. For a replaced valve it usually is a little higher 2.5 to 3.5.

Warfarin should be closely watched

by LuCas - 2013-07-20 10:07:22

Hello,
I'm under warfarin for 5yrs now. In the beginning of treatment, I was having a hard time adjusting the dose. Once, my INR was 5.0 and the doctor got scared and rushed me to hospital to have injection of vitamin K. He also suggested my to eat some specific vegetables to help lower INR level, stay quiet at home and within one or two days (I don't remember well), it was 2.3 and dropped even more to below 2.0. We had to start all over again but with a reduced dose, of course. I only managed to keep stable after two or three months after usage. However I never urinated blood and never the colour of my urine was reddish. after 5 yrs, I had some ups and downs in my INR. In january this year, it raised again to 4.5. I suspect that it was a diet change. I think that I was eating less vegetables than before. If you change your diet, it will affect the INR level. After including regular portions of green vegetables, my INR is back to therapeutical levels, 2.3. I searched the net for information and found out that the most active spice (rich in vitamin K) is parsley, followed by asparagus and other dark green vegetables and leaves. My advice now is to have a diet which is balanced and eat regular portions of green to have the important amounts of vitamins. If you change your diet, you'll have to adjust the warfarin dose.
I have also read that, senior citizens will have to ask a nutritionist to help them better organise their daily diet.
Lucio Castro (LuCas)

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