Can anyone help

Hi all, please can anyone help. I had my pacemaker fitted in June 2012 due to 100's of collapses and then my heart stopping for 30 seconds. Since having my pacemaker fitted I've had numerous problems but the main problem is my right arm (which is the same side as my pacemaker was inserted) has become very weak turns bluey/grey and swells. I had been on warfarin for just over 4 months due to having (DVT) blood clot but had to come off that due to problems it was causing me. I have been in hospital and seen doctor after doctor but all test come back normal. This is really getting me down and is effecting my every day life and being a mum with 4 children can prove really difficult at times.
Can any one out there have any idea what it is I'm dealing with.
Thanks for reading this x
Many thanks Vicky x

3 Comments

Start with this

by ElectricFrank - 2013-03-19 01:03:00

The first thing you need with a stubborn problem like you have is to get a doctor interested in doing some real diagnostic work. Most don't have the time to do some serious work so just throw a list of things at the problem. After each they get you out the door with a friendly "try this for a couple of weeks and see if it helps". Hopefully, after a few tries the patient gives up (or dies).

Most doctors would have flunked my first semester troubleshooting class. They would have tried 5 different sizes of light bulb to fix a lamp, when the wall switch was off.

Seeing multiple doctors and having lots of tests is a money maker for the hospital but as you have discovered isn't very effective. The place to start is to make it clear you want one doctor who will put a real effort at tracking down the problem. Good luck!

frank

Lady Kate

by Vpainter - 2013-03-19 01:03:12

Lady Kate thanks ever so much for replying to my post, I have looked up what you discussed on my post and from what I read sounded just like what's going on with me. I've been to the doctors today and she is gonna send me back to see my cardiologist so I am going to put this to them straight away :)

Venogram

by Lady Kate - 2013-03-19 12:03:11

I had a similar experience 8 years ago...I had developed a blockage in the left subclavian vein with symptoms like yours...an ultrasound of the site was negative. Fortunately I had an excellent Cardiologist who requested a venogram. It turned out my Left subclavian vein was occluded. The story goes on and I am still on Coumadin.....but for now I would suggest a venogram.

Good luck!

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The experience of having a couple of lengths of wire fed into your heart muscle and an electronic 'box' tucked under the skin is not an insignificant event, but you will survive.