Pacemaker in UK hospital

Had my dual chamber pacemaker implanted December 2011. The Doctor had problems getting it in and I had a haematoma afterwards. Have been off work since due to extreme bruising (whole of left breast was black and still has faint marks). Went for check up
end of January and was told that the lead to the ventricle was not pacing but only sensing. The technician bleeped for the Registrar who took the results to a Consultant. On his return I was told that it would have to be replaced as the lead was not working and the pacemaker had been placed too high up. I asked about the bruising and was told that they had not strapped my breasts down but next time I would be better prepared for the procedure! I was sent for a chest x-ray and was told by the Registrar to go home afterwards and if it was a bad result he would write to me. I went to see my GP as I was so worried and he wrote to the consultant that I had seen back in November after blacking out in May!! A week later the technician rang me to say that my consultant wanted to see me next week to do another pacing check himself! Meanwhile I received a date for the replacement but not until end of March!
I had the pacing check done again and this time I was told that everything was working normally and that the chest x-ray showed that both leads were fully intact in my heart. I asked the consultant if he thought the other machine in January was faulty and he said he did not know.
I just cannot believe that all is now normal inside me and I know that there will always be this niggling doubt in the back of my mind as to whether or not it is working properly.
I still have bad bruising and the consultant prescribed some anti inflammatory pills for this.
I am too worried to return to work now due to what has happened.

Has anybody else had these problems with a pacing check machine?


1 Comments

Gosh so sorry to read this!

by Hot Heart - 2012-02-18 06:02:53

It's all scary enough and disruptive without having to put up with things like this. Remember that a basic pm is to stop our hearts from going too slowly, as long as you dont go below your lowest setting then it should be working fine. Take your pulse occasionally when you are resting and see what it is. My lowest rate is 70 and my pulse never is below 69-70 when i check it.

The bruising is of course another issue, is it within what would be considered the normal range? I dont know that but it might be worth getting photos taken in case you want to persue a case against the hospital at some time in the future. Make sure that your GP has all your concerns and the problems that you are having on record. You have 3 years from the date of your surgery if you need to make a claim, eg for loss of earnings, pain, etc

Do try to get yourself back to work and get on with your life, the pm is supposed to enhance our lives not stop it!

Good luck

HH

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Member Quotes

My eight year old son had a pacemaker since he was 6 months old. He does very well, plays soccer, baseball, and rides his bike. I am so glad he is not ashamed of his pacemaker. He will proudly show his "battery" to anyone.