Faint & Short of Breath

My father had a pacemaker inserted a few weeks ago after a fainting spell and detection of A-fib. Upon returning home from the hospital, he felt pretty good even though his heart hadn't achieved sinus rhythm quite yet. A day or so later, his heart was in sinus rhythm and he started to feel very faint and short of breath while walking. We took him to his cardiologist who did a chest x-ray, blood work, ultrasound of legs (for clot) and everything came back negative. His thyroid was tested and that came back negative. My father's cardiologist believed that his symptoms were not heart related and told him to see his internist. His internist ordered more blood work, renal test and a lung function test. All came out normal. His BP and HR are normal during these episodes as well. My Dad still cannot take a few steps without feeling very faint and short of breath but the doctors have no explanation and are of no further assistance.

Has anyone heard of a patient experiencing this after pacemaker surgery? His new meds are Digoxin (.125mg) and aspirin. He has one kidney due to kidney cancer about 10 years ago. Tomorrow he goes into the lab for a Digoxin toxicity test.

His internist placed him on Xanax to help him relax. We are all so worried for my father. He is constantly pale and his hands/feet very cold as if he is not getting good circulation. We have demanded that his pacemaker be checked, but his cardiologist refuses to do this until later in the month. We don't know what else to do.

Thank you.


5 Comments

:)

by Pookie - 2012-01-07 01:01:24

You're welcome.

I remember when I got my pacemaker back in 2004 and mine didn't go as planned (a very long story) and I remember just how stressed and frustrated I was - one feels SO powerless.

Please don't ever give up hope and keep believing that this is just a bump in the road and soon everything will be dealt with - but as your sister, who is the nurse probably knows, - some doctors are more difficult than others, that is why I personally think you should go for another opinion because if this present cardiologist isn't taking you seriously now, do you really want that person taking care of your father?????

Perhaps the 3 of you should go together to speak with your father's present cardiologist and have a heart to heart - no pun intended. Cuz if you're not on the same page, what is the future going to look like?

Again, I know it's stressful and you probably want to scream, but learn from this and do what you need to do for your father.

Keep an eye on him and if things get any worse - take him to the ER and refuse to leave until his pacemaker is interrogated.

Hugs,
Pookie

second op

by idgie - 2012-01-07 01:01:31

Please get a 2nd opinion... all my best thoughts are with you and your family. Hope your dad gets better soon.

Thank You

by laurajelliott - 2012-01-07 12:01:29

Thank you Vanessa & Pookie for your feedback, it is INVALUABLE! I am grasping at straws as to what to do next. My sister is a nurse and she has been a HUGE advocate for my father and our family. We have pushed and pushed but we aren't getting anywhere. Thank you so much for your time and thoughts.

Laura

Suggestions

by Pookie - 2012-01-07 12:01:30

1) Get a 2nd opinion as soon as possible - if you can.
2) Do some research on the side effects of all of his medications, even if some are over the counter.
3) Ask his family doctor for a Pulmonary Function Test.
4) Obviously his pacemaker settings need to be adjusted. When we get a pacemaker all the settings are set for the "average" pacemaker patient.....however, there are oodles of us who have had to go back to the PM Clinic numerous times to get our settings adjusted for our particular needs.

I went for almost SIX years feeling profoundly exhausted and dizzy until (by pure coincidence) one of the PM Techs just got back from a training course and she turned OFF my Optimization (which is part of the Rate Response feature on my Medtronics Enpulse Pacemaker) = I got my life back!!!!!!!!!! So that is why I am taking a wild guess that is has to be his settings.

Why would his Cardiologist refuse to have his PM interrogated???????????????? Personally, I'd be creating quite a stink about that. Just remember - his Cardiologist has a boss - perhaps you should go over his head.

And lastly, I'd try to get into see an EP as they seem to know so much more about heart patients with pacemakers.

Keep calling the PM Clinic or his Cardiologist until they say they will see him in Clinic. Ask the Cardiologist to explain to you WHY he refuses to have your father's pacemaker interrogated - what is the benefit of waiting since he is experiencing these symptoms is what I'd be asking.

Some times we need to push our doctors.

I truly feel for your father....and you:) Very stressful and frustrating situation.

Again, be firm with the Cardiologist and in the meantime, if you can - try and get into see another one.

Take care and please keep us posted.

Pookie

SOB

by Vmurph - 2012-01-07 12:01:44

Short of breath is almost always related to the heart from what my dad and myself have been through. I would think about trying to get a second opinion from another cardio? Stand up for yourself and him. Some doctors stop looking if the normal tests show nothing abnormal. You are your own best advocate. Ive learned that a lot lately.
Good luck!!!

Vanessa

You know you're wired when...

Muggers want your ICD, not your wallet.

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