PVC's, Shotrnes of Breath, Dizzy Spells, Need help

It seems we all have some issues with our PM’s but I am having several issues with mine. I have had a history of irregular heartbeats for past 12 years and in June 2011 I passed out while driving. I had a halter monitor on for testing and my heart rate dropped into low 20’s and them would race to 180 throughout the day and night. I was diagnosed with Tacky Brady Syndrome and in July I had a Medtronic Pacemaker installed. I felt some better after getting it and my energy level did increase but nothing to where it was before the PM. I also experienced shortness of breath after walking short distances. I told my Dr. this but he simply shrugged it off as me needing to exercise more. In July 2012, a year later, I experienced another round of major fatigue and would spend 2 to 3 days sleeping. In August the symptoms to continue to worsen and I began having radiating chest pains and I was hospitalized for three days. During this time they ran many tests on me and the cardiologist all said my heart was fine. The ER Dr did a blood gas oxygen test and found it to be only 70%. I met with a lung doctor who made we walk the halls of the hospital for him and while I was walking my oxygen level dropped into low 80’s but would quickly return to 98 when I stopped walking so he knew I had a major problem somewhere. They checked for blood clots in my lungs and found nothing and he sent me to see lung specialist at Vanderbilt thinking I might have rare pulmonary disease. I also had a sleep study and my pulse dropped to 35 (my PM is set at a low of 60 BPM) and went as high as 145 during the test and my oxygen level dropped into the low 70’s. When I went to Vanderbilt the lung test showed nothing wrong with lungs but the lung Dr was very concerned about my fluctuating pulse and sent me to see heart specialists. The heart specialists read my PM and it showed I was having 50 to 60 PVC’s per hour which he said was moderate to severe. The heart specialist put me on new stronger meds to help with the PVC’s but he had to answer for the drop in oxygen. So here I am four months later and I’m still having the PVC’s but not as bad. I am oxygen at night now and that seems to have helped more than anything. I am still having the fatigue, shortness of breath, dizziness, I’m easily confused and just don’t have energy to do much of anything. Has anyone else experienced all these symptoms? It’s been very frustrating not knowing what is wrong with me. All the doctors I have met say there is no doubt about my problems, but none have an answer to what maybe causing it. All I know is it all started with the pacemaker surgery. I am only 40 years old and prior to all this I owned my own business, was chief at a volunteer fire department, and I was very active in my community. Now I’m barely able to do anything. Any suggestions?


3 Comments

Shortnss of Breath

by Dina - 2012-12-16 04:12:11

Hi Regie,

I had shortness of breath before my pm was fitted and my Bradycardia would drop very low and I nearly passed out many times. I also suffer from Atrial flutter ,Ahrythmia and Tachycardia. My upper ventrical is a mess with so many electrical disturbances that my lower chamber just cannot fathom out what is coming next, and last week I went into tachycardia for 5 days, I gasped most of the time had no sleep and eventually got back to the pm team and have now been reprogrammed until I can go back to see the cardiologist to discuss further ideas. I am thinking that the only solution is going to be ablation which I had hoped to avoid, but we shall see.
I am writing this to you as the pm team told me that they could see that my pm was picking up the hectic electrical messages from my upper chamber and was so confused it was mimicking them thus causing my heart rate to race into the 120's and above which was making me breathless doing nothing and gasping a lot of the time. I am wondering if your pm is doing the same thing. Can you get the team to try another variant on the programme to stop this? IOr maybe they have made some error in setting your programme up.
I am fine at the moment since they have reprogrammed me to stop this and I have also increased my bisoprolol to 7.5mg, I am sleeping at night again, it is absolute bliss. My only problem is now that I have puffy ankles and still am breathless when climbing stairs and bending down, but that is nothing compared to being like a fish out of water last week.

Good luck, at 40 you should not be suffering like this, you need to go back and complain.

Dina

Man, you DO have a problem

by donr - 2012-12-16 08:12:14

I'm surprised that they have not been able to solve it w/ tweaking the PM's settings.

Did you hear me laughing at your Cardio saying that 50-60 PVC's per hour is "Moderate to severe."? I have them at a rate of about 2-5 per MINUTE & suffer no oxygen deprivation or SOB.

I know Vandy has an outstanding cardiac dept, but they are not showing it off for you.

I'll bet that the smart money among us here is that the PM needs adjusting. MY humble opinion is that the A-V delay is too short, making your ventricles contract too soon after the Atria.

You did not say, but are your Ventricles paced at near 100%?

Don

Thanks for responses...

by regie - 2012-12-17 10:12:01

I have started going to Vandy just last month and I am very impressed with the doctors there. It is my local hospital that I'm not happy with. My local cardiologists keeps telling me that there is nothing wrong with me and I need to exercise and that will make everything ok. It's hard to exercise though when your oxygen level hits 80 as soon as I start walking. The specialists at Vandy took me off the Antelol and put me on a new drug to control the PVC's better. I have been taking the new meds for a few weeks now and I am starting to feel some better. I think I am going to make the 5 hour drive to Vanderbilt for all my future appointments. At Vanderbilt the Dr did tell me that ablation is my next option but he wants me to wait as long as possible as there no guaranties that will fix my PVC's either. I am pacing at 70 % of the time and during that 70% I am pacing at 98% in my right atrium and only 2% in my ventricles. I am curious now if I might have the arterial flutter as well. The Dr told me that once the signal fires from the atrium it is able to flow throughout the heart. I go back in a few months for another check-up and I will ask about changing the pm settings. Thanks again for your comments. If you have any other suggestions please keep the coming!

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Member Quotes

A properly implanted and adjusted pacemaker will not even be noticeable after you get over the surgery.