Hi fellow sufferers

• by ulrike
• 2009-08-03 10:08:59
• Conditions, Meds & Tests
• 1356 views
• 1 comments

Hello again
Thank you so much to all of you who replied so promptly and my apology for my not so prompt reply.
To Dottodot, - i am living in Melbourne/Australia and grew up in Germany, France, Austria and Holland. My family lives all over Europe and the entire mixed bunch has heart conditions of sorts, even though our environment and diets in which we were raised were all very different and none of them has the dilated cardiomyopathy kind. I was 42 when I emigrated to this continent after having backpacked through China, Korea and the rest of Asia on my way down under. That's why it was previously thought I might have had acquired a virsus.
Dottodot, I contacted the Cleveland Clinic following your advice and am waiting for an answer, - maybe.
To cabg patch, - Yes, I know it is heart failure, my EF was never higher than 30% and the fluid retention is concentrated around the waist. Never in the ankles. My atria have dilated too over the past five years and that initiated the occurance of many a Fibrillation. Funny enough, I worked in a hospital at that time and ironically in the Cardiothorassic Ward.
This being rather a disadvantage, because you see and her and read too much about all these trials and those who are unluckier than oneself. Again, my type of condition is mostly met with a vage and ackward shrug and you know that there is not much that can be done.
Therefore, Peter, as my last jump start failed to revert me, I was put on the list for the pacemaker, in spite of two months earlier, when I was told that, for an implant to be considered, I was not 'sick enough'.
As mentioned earlier, i felt pretty good after every Cardioversion and now, that I have that expensive thing in my heart, I still stop halfway up two flight of stairs whereas before on a good day I managed a 45 Kilometer bycicle trip. So turkey one day, spring chicken the next.
I will have a checkup soon and will discuss that dreaded AV node ablation, - perhaps I should take all your answers with me. Meanwhile, if I may, I will cry on your shoulders a little bit longer, especially when I just missed another train on the way home because my legs would not carry me the last meters uphill.
All of you, thank you, thank you, You surprised and humbled me with your kindhearted advice on my first day of joining this site.
Hope, I can be of help to you sometimes.
Cheers
Ulrike