CLS & exercising

Hey there!

Since I have the feeling that there have been more questions on the CLS sensor (rate response) lately, I wanted to share my experiences of the first couple of months with this sensor with you. At this point, I should say that I do not have the rate response switched on as a backup, I need it for every move I make as I'm 100% paced in the atria and ventricles. My sinus node has been modified by catheter ablation several times, and I have had an AV-node ablation to induce a complete heart block, too. So, here we go:

It's now been 11 weeks since my last pacemaker surgery, and today I passed the 5k mark when running. I needed 35 minutes. Yay! Started interval training running/walking four weeks after the surgery. Since last week I had been running for 30 minutes straight, no more intervals.

When I had this pacemaker put in, I was a bit shocked at first because my heart was racing whenever I moved a bit. I was up at the max. programmed rate in no time, and with having barely walked 10-20 metres. It was aweful. But instead of avoiding activities and exercise, I forced myself to move.

As soon as I got home, I started to go for 30-60 minute walks at least 3-4 times per week. The effect was amazing: from day to day the CLS sensor learned and adjusted, so that I soon no longer walked with the max. rate, but am now down to 80-100bpm when walking.

With regards to running, I needed to be a little more patient. During my interval training I always hit the max. programmed rate and stayed there, often even during the walking intervals. Again, I hung in there and continued the training. Since last week, when I finally started to run 30 minutes without pausing, the sensor has learned and adjusted again. The first 30 minutes run was with an average rate of 160 which is the max. CLS rate; the second was with around 150; third with 135, fourth with around 145 (it was much hotter outside today than during the third run). So, that's a pretty good and quick adjustment :-)

I'm also back to bicycling. Usually, I ride my bike to work and back, it just takes about 10 minutes each way. CLS reacts properly, no issues like weak legs or shortness of breath at all.

Last, but not least, I do have the impression that this sensor indeed reacts to mental stress, as Biotronik says. Unfortunately, there has been quite some stress and annoycance at work, but the good thing, I now get a pounding and faster heartbeat again when I exasperated with my bosses. I haven't had that ever since my sinus node ablations back in 1999!

So, for now I'd say that the CLS sensor works really well for me. However, it's probably not a good sensor for people who do not exercise regularly. You need to move, and you need to have patience and stay positive, because it can take a while to automatically optimize. However, compared to standard accelerometer and minute ventilation + accelerometer sensors, I'm very impressed with this automatic optimization. With the other sensors I needed lots of fine tuning manually in the doctor's office; with this one, I don't think my cardio will have to do much. But I do have an appointment with him and a Biotronik tech soon to go through settings, and see if anything needs tweaking.

Hope this helps those of you with CLS sensor and those who are considering getting a pacemaker with CLS.

Inga


13 Comments

Thanks everyone!

by golden_snitch - 2014-06-08 03:06:36

TM, I'm definitely keeping your words in mind, and not pushing it too hard too soon. A friend of mine said today: if you can do 5k now, you'll be able to do 10k soon. But I think for now the 5k is the perfect distance, and the only thing I might work on is to do it in 30 minutes or less. Thinking about signing up for my first 5k which could be the annual "City Night Run" on July 26th, up and down the Ku'damm and Tauentzien in the heart of Berlin (city west, near the zoo).

Patty, I have had my ups and downs. I have been and still get discouraged and frustrated and angry and sad at times, I'm not always the tough woman everyone here thinks I am. You'll be fine, and learn not to worry too much.

Inga

Rock on Inga........

by Tattoo Man - 2014-06-08 03:06:45


...............so pleased to hear of your news...make slow steady progress. Its all too easy to increase your work rate too much too soon...a recipe for injury.

Take care...

Tattoo Man

Inga................

by Tattoo Man - 2014-06-08 06:06:09


.........here, and in many countries round the world there is the fantastic institution called PARKRUN....punch it in and join in this unique experience..

Parkrun ..here in the Uk happens at 9am every Saturday am.

5k in a safe park setting.....experience a 5k challenge..be it at county level..or pushing a kid in a buggy..dog on a lead..with a stick.

Be part of a unique experience where you can stand next to those that can do 5km in 18 mins and those who will finish, to great applause, whatever the time

Parkrun.....the very essence of effort, be it at any level.

Parkrun....come and join in

Parkrun....a great way to meet great people

TM

wow!

by Tracey_E - 2014-06-08 07:06:25

it's great to hear how much you're able to do now!!

Congratulations, Inga.....

by donr - 2014-06-08 07:06:32

.....you have confirmed what I have suspected for a long time.

You are one tough lady - rational; courageous, dedicated; persistent; indomitable; patient; dedicated; willful; smart; understanding; unnerved in the face of adversity....

You have set the bar high for the rest of us - in short you are made of the same stuff as champions.

Please take the highest level on the podium for champions & receive your accolades.

Don

an inspiration

by capecod - 2014-06-08 10:06:57

there are no words! what a remarkable woman...and i sit here afraid to lift my arm too high! i ditto everything don said. :)
patty

Great post Inga

by KAG - 2014-06-08 11:06:11

There's nothing better than hearing from someone first hand on how things work.

Thanks for sharing your experience.
Kathy

my hero

by HoneyBadger - 2014-06-09 02:06:34

Congratulations! I'm so glad you are having such progress- your 5 K time rocks! If I had your courage, I would be a much better person. Thank you for being such an inspiration.

TM...

by golden_snitch - 2014-06-09 03:06:33

Sounds great! I looked this up, but unfortunately we do not have those park runs in Germany, yet. So, I have to do my own park run for now :-)

Thanks, honeybadger! It's rather about determination and discipline than courage. And also about knowing what your device can do and putting it to the test.

Inga

Paul

by golden_snitch - 2014-06-10 02:06:50

Glad to hear you are doing well, too :-)

I have had exactly the same thing happening after interrogations, even when no settings were changed: The pacer forgot all the previous learning, and I had that racing heartbeat again whenever I moved. After a couple of days, it settled down. Going to ask the Biotronik tech about this on the 26th, because it's really odd and a bit frustrating.

Inga

Night rate

by golden_snitch - 2014-06-11 02:06:59

Hi!

Stillrunning, I have no idea, and you have a different rate response sensor. Medtronic pacers have accelerometer only, not the CLS Paul and I are talking about.

Paul, I knew about that night rate thing before, so it was a compromise I was willing to make. It just doesn't work with CLS, but if you have the accelerometer on, then you can get a night rate setting. It's a bit odd that it's possible with one sensor, but not with the other. Something else I might ask the tech about. I have my base rate at 60 and that's perfect, I don't need it lower than that at night.

Inga

Sounds familiar

by Stillrunning - 2014-06-11 12:06:35

My best runs have always been the day of or the day after a adjustment or interrogation ,,,what's up with that ???

Pacing percentage & battery

by golden_snitch - 2014-06-12 02:06:08

Hi Paul,

you can't say for sure how much battery life that would save. There are much more important settings/parameters than the pacing percentage, that can shorten battery life, for instance thresholds and lead impedance. With my dual-chamber device, when I went from 100% atrial pacing only to 100% atrial AND ventricular pacing, there was no change at all in the projected battery life. I expected it to shorten, maybe even to be cut in a half. Doctor said it's because I have low thresholds, and these matter much more than the actual pacing percentage. Friend of mine paces a lot less, only one chamber and mostly at rest, but he has high thresholds (due to scar tissue from heart surgeries), and so he wears his battery out every 5-7 years. He will never get the 9-12 years that I have.

I'll report after my meeting with the tech.

Inga

You know you're wired when...

You have a little piece of high-tech in your chest.

Member Quotes

Life does not stop with a pacemaker, even though it caught me off guard.