Most Recent Messages in General Posting

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help with login to this site

Can anyone help me with login proceedures to this site? When i signed up it said i would receive a verifcation email, which i never did. I was able to post once, but then the next time i went to login it would not accept my password. i clicked the "forgot my password" button, but got an error message with computer text. I then sent emails to both the info and sales email addresses listed at the bottom of the website but got no response.

 

Today i used my w...

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Differences between QRS during procdure vs QRS post=procedure

Trudging through my operative report from recent pacemaker placement, I see that when the LBB lead was being placed they measured QRS at 125ms at the "sweet spot" where lead was implanted.  However, post-procedure ECGs measured the QRS at 152 (down from 164 pre-placement).  Can anyone shed some light regarding the differences in QRS measured during the procedure vs the QRS measured after the procedure (like 3 or 4 hours later)?  Is something like this common?  (I...

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Up Date with New Game Plan

Just home from the hospital . The original game plan was to impant a Medtronics CRT-P but they had to change course mid-procedure becuase they could not find any vessels that would allow them access to the left ventricle lead implant location. The back-up plan called for the installation of a  2-lead, Medtronic Azure system for Conduction System Pacing which is what happened.  I hadn't researched this option quite as thoroughly as the CRT-P but it had been discuss...

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Don't be afraid to take matters into your own hands

It's unfortuneate, but with the health system in the USA, possibly in more areas, we have to constantly research and second guess our care providers. If you take your doctor's word for everything, follow their instructions to the last detail, you might find yourself fighting for your life. 

Lately I've become such an advocate for my own health care, that I check every result, every test, and question every decision made. Why? Because it saves my life! The latest ex...

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The Time has Arrived....

After what felt like much drama and waiting 6 lifetimes, I am due to get my CRT-P tomorrow.  I'm ready, excited,  hesitant  and very aware that my life is about to take a huuge step in what should be a good direction.  I'll meet my new Medtronic buddy tomorrow around mid-day and spend the night for observation. Lucky me get's two incisions: one in the chest for the device itseslf, and another in the groin which they'll use during the procedure to...

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Outsourcing of Pacemaker Monitoring to Third Parties

I received a letter today informing me that my physican requested some "rhythm management" company "assist with the on-going management of your implanted cardiac device by using remote monitoring. ... If you have an automatic monitor, data received from your implanted cardiac device will automatically be sent to us on a routine basis."   

This is not the pacemaker clinic, nor my EP, nor even the manufacturer of my device and monitor.  Evidently, it is...

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Recurrent pericarditis

Does anyone here have experience with the biologic, Arcalyst, used to treat recurrent pericarditis? We are in the process of getting this approved by my insurance. My EP wasn't sure if I would have to have treatment or atleast consultation with an infectious disease doctor before starting it because I have latent TB (positive skin test but clear chest x-ray). His nurse called and said that the Arcalyst rep said that I was cleared to start the process because of this. I'm still a littl...

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update to my question about wearing an emergency pendant

Thanks to everyone for letting me know it is ok.  Today the sales consulant said the same thing.  Did say they had one pacemaker user there with out any problems.  At this time after touring that location decided to keep looking  as it was built in 1988 and we have new ones just being built.   With better curb appeal.

  Athough they did say with my food sensitivites would have a hard time eating there.  Which i knew.

new to pace

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Cardiac scardiosis

Hi, I'm new here. Dual lead Boston implanted Dec. 2023. 48 yr old w/Bradycardia. Just had cardiac MRI...it looks like I'm dealing with Cardiac scardiosis. Anyone here been diagnosed with that? Looking for information, encouragement, hope. Cardiologist thought I have pacemaker induced myocardial due to lower ef (40-45%) that wasn't present at implant 4 months ago. I felt better for a little bit after 1st surgery, then started not doing well with exertion and lots of "...

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In-road vehicle charging

I wonder how this will affect us? The article is behind a paywall but there's sufficient to get the gist of it. https://www.transportxtra.com/publications/local-transport-today/news/75822/coventry-university-pioneers-electric-ve?etid=5958450&artid=75822

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Changing Password

I've very recently had to delete part of one of my posts on Good Dog's recent thread.  This was to remove words / sentences / changes that I did not write or make.  Somebody had accessed my account. 

I decided to change my password immediately and could not do so, because the system wouldn't allow it.  

Clearly, this means that we cannot use our usual means of deterring hackers on this site. 

I have written to the administrators...

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Wireless VHF Microphone

dear members.

I hope that all who read this are doing well.

I am doing quite well myself and my heart failure issues seem completely stabilized.

(CRT-D and Bisoprolol/Epleronone)

Im writing this post today, because I had some strange episodes I think might be related to my new Seinheiser VHF Wireless microphone. I am a part time singer.

I THINK I had palpitations during  different gigs

(Not sure what is was, I had while being on stage, and  I had...

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wearing a help i have fallen pendant

Is it ok to wear a "help i have fallen pendant" for  someone who is a pacemaker user.   I am thinking of moving to an Independent Living  facility and they provide an Emergency Pendant.  Have asked the sales consultent to check for me.

new to pace

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Blink cameras

Today my guy brought some Blink cameras into the house to learn about setting them up 
 

As soon as both were plugged in, I got a weird feeling sort of like when a lead is tested at interrogation. I immediately left the room and called Boston Scientific to ask about interference with my CRT-P. The gal I spoke with said that anything that uses Bluetooth or wifi can potentially interfere but just stay six inches away. I was probably five feet from the cameras. She had...

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Spring Covid-19 booster dose

Hubby and I have been offered a Covid-19 Spring booster vaccine because we fall into the vulnerable group:  People aged 75 years and older, residents in care homes for older people, and those aged 6 months and over with a weakened immune system will be offered a dose of Covid-19 vaccine this Spring, 2024 in the UK.

I know the Covid vaccine has been discussed over and over again on this site, but it just never gets any easier to know what to do for the best, es...

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Verification of Email Address

Hi, How do I get my email verified? On initially joining I seem to be logged in, when I log out it will not let me back in because the email is not verified. Sent two emails to info@pacemaker and had no reply, I have to change my username and password each time I log in which is not great.              Thanks Frustrated Nearly A Member

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AV Junctinal Ablation Procedure

Has anyone had an av junctional ablation procedure in conjunction with insertion of a pacemaker?  How did it go?  DId you have to stay on meds after procedures?  

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PaceMaker Club Forum Suggestion

The "New Comments!" notice doesn't seem to be helpful for me. I stay logged in and it always says New Comments! even though I clicked on the post last time and saw them.  Logging out wasn't helpful either because if I am not logged in, there is no notice, and logging back in no notice either, assuming I saw them all last time.  It would be great if there was a link for "Today's Comments" or "Last 7 Days Comments" because somet...

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Recycling pacemakers

I had made an appointment with the funeral home to prepay my own funeral. Mom had done so decades ago, and it really made it nice on us kids to have it already lined up how she wanted. 

Today I went and settled my funeral arrangements. I'm so glad that it's done. I even wrote and turned in my own obituary for future use. 

I asked about my pacemaker. The funeral director said they remove the pacemakers and donate them to a company who picks them up and sends...

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Medication mishaps in the USA

Have you ever wondered if what your doctor is prescribing you is the best combination and the right amounts? For instance, the last time I tried to take Entresto, it didn't work out because my doctor forgot to tell me to quit taking Losartan, so my blood pressure bottomed out and I almost went to the hospital. Then he decided I didn't "tolerate" it well... but didn't bother to investigate further. As a result, I missed an earlier opportunity to get better. 

Th...

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You know you're wired when...

Microwave ovens make you spark.

Member Quotes

So, my advice is to go about your daily routine and forget that you have a pacemaker implanted in your body.