Most Recent Messages

Unexpected side effect of weight loss -- just venting

So, I saw the Heart Transplant team last September and they said I pass all their tests for progressing to the next stage of assessment except for my BMI (and eliminating amyloidosis as a cause of the problem). I needed to lose 6kg (13lb) and be signed off by the National Amyloidosis Centre [NAC] before they would move me on. 

Not a given I'll decide to go for it -- major surgery, and I'm not sure I've got the support they want -- I live alone for example 75 miles from...

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pacemaker fractured wires

I live in Tucson Arizona. My first pacemaker was placed in Oct. 2002. In Feb 2007 my atrial wire fractured. A new pacemaker and new wire were placed at that time. In August 2014 my battery ran out and a new pacemaker was inserted. Now in Feb 2021 my second atrial wire fractured. A doctor I was referred to said he wouldn't take out a fractured lead but rather would add a fourth wire to that vein and also he refused to put in a new pacemaker at that time so I will need to hav...

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Concerns about data sharing with Privacy Statements from Medtronic

Hey everybody.  This is my first time posting, but I've found a wealth of info from this forum as a viewer, but thought I'd jump in to the discussion.  Maybe this has been covered previously, but does anyone have issues with the Privacy Statements that PM companies use?  I literally don't have a choice to allow them to collect and sell my data.  

A little background.  Turned 40, got the surprise of a lifetime getting a PM installed for an AV II...

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Not sure what to think

Warrning long post but I need advice. I am a 41 y/o female who was sent to a cardiologist for abnormal EKG and elevated heart rate at resting. So echo cardiogram, stress test, holter monitor came back normal. King of hearts showed that I had a resting heart rate of 112. The cardiologist at the time decided to refer me over to an electrophysiologist. With that appointment the whole 5 seconds he spend in the room stated my blood pressure was to low and if I can get my blood pressure up then my...

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Sports Cardiologists

Have anyone consulted with a sports cardiologist? 

With the passing of my EP cardiologist I don't have anyone adjusting my pm. With on-going struggles with it while running I thought maybe a sports cardiologist might be someone with whom I can consult. I run ultra slow but get out of breath, fatgued and feel chest pressure. Recovery is near instant but the 3 not-my-amigos are repetitive. Post run I can feel this, at times, more intensely. It seems as if the pm is...

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HIS Bundle leads with Boston Scientific pacemaner

Hi.  I'm asking questions for my 66 year old brother who needs to get a pacemaker and is getting conflicting information from his doctors.

He wants a Boston Scientific pacemaker because he is an avid cyclist and wants to continue doing so.  Yesterday he was told by his EP that he needs the HIS Bundle leads that only Medtronic has, along with a Medtronic pacemaker.  This doctor has been pushing Medtronic's for several years to my brother.

I guess he needs the...

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first visit tomorrow after surgery

any advise for the visit. I know I will  get the  bandage remove. any else wi.l will  happen?

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Anyone have a sample ecg strip of a crt patient with a fib?

I can't seem to find any examples online. Thanks!

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CPET testing in paced patients?

I have a prognostic CPET scheduled and I am wondering how they complete these fully in those who are 100percent paced?  I would think it would be impossible to run the full test for my age since I can only pace up to my upper limit which is not the max HR for my age (unless I go into pacemaker weinkebach). Do they mess with the settings during the CPET or just evaluate under different criteria?

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Absent P waves?

Hey all,

Still getting used to my CRT-P device.  This week I have been having palpitations more than usual.  I took a number of readings with my Kardia 6L device and from what I can see the palpitations appear to be happening when there is no visible p wave on my recording.  I will have several beats with a distinct p wave then several where there appears to be no p wave.  Anybody know anything about this?

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Pace and ablate

Hi all

End of November 2020 I had my PM fitted for continued AF,  I have done everything I was told like no raising your arm above your head etc, 7 weeks ,after implant  I had AV-Node Ablation which was done mid January 2021, everything with heart is going well just got to go back end of this month to have lower rate lowered to 60 from 80

Unfortunately I am suffering with a frozen shoulder which I was told could happen plus slight tenderness around the armpit a...

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mode switching due to far-field R wave

 

 

Visit from new EP,  I think understand most of it, however a few things are unclear.  Such as ventricular escape and do not fully understand what an R wave is and PVAB.  

 

There have been numerous episodes of mode switching noted. It appears that these are actually due to intermittent far-field R wave over-sensing rather than true atrial fibrillation.    Of note, it appears on interrogation today that the patient is in...

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Pacemaker tracking during exercise - can it be adjusted?

Hi all

had a really good conversation with a new EP technician last week and he explained a lot and is very open to changes. He was very patient and let me ask a lot of questions.

I could sense he was busy so I let him go before asking him to explain one point he said that I have since looked up and still struggling to understand.

He said that he could see I was getting my heart rate up nicely and that it "was tracking consistently at 1:1". I know that 1:1 to...

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Svc

I got PM in 2017 now 100% blockage. On the 16th they are removing the PM and leads and putting in a stint. I had trouble with head and hands swelling,breathing,headaches. I didn't know what SVC syndrome was. Has anyone had a lead extraction?

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Flecainide

My doctor prescribed Flecainide for my arythmeia  Inam  afraid to take this med because if the many side affects I have read.  Is anyone taking this med? If so have they had any bad affects? 

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HR monitor that works

I have been experimenting with a range of heart rate monitors for exercise but struggle to find one that would constantly give readings. I've gobe through Garmin and some unbranded straps, and had no luck with them.

With optical readers I've tried Garmin forerunner 35 and 220, but both work once or twice, and after its pot luck if they record more than few minutes.

I've gone for Polar OH1, which first few times worked perfectly, and then again no reading. That was retu...

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Help with pacemaker selection for cycling

Hi, I'm trying to help my brother who has bradycardia and sick sinus syndrome.  He is also in a-flutter.  He had an ablation for a-fib about 4 years ago and now needs a pacemaker.  He is 66 and is an avid cyclist, he goes mountain bking up very steep trails.  He wants to keep riding until he absolutle cannot.  His doctor has told him he will put in whatever pacemaker he wants.  He is considering Biotronik or Boston Scientific.  Two of the doctors he has...

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transmission monitor

I have a medtronic monitor.  Last night i noticed the the glowing green light on it was out.  Would come on when i  put the overhead light on or in the daylight.  Should that be of  concern to me?  I know many have theirs underthe bed with a towel over to block the light.  

  Surprised it went out as for me has only been used since Aug 2019.  Thought the light would have lasted longer.?

new to pace

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light headed and dizziness

Hello clubbers

After week of having my CRT-D installed, my recovery is really not too bad. No excessive pain, and my 8 cm scar seems to heal ok.

A nurse will check the stiches on Monday,  and I seem good to go.  I am having problems trying to leave my arm down.

But my over-all health is way worse than before the surgery.

I saw my house doctor Wednesday, and my symptoms made him think a had Covid, and he asked my to do a test.

Soo happy that came back ne...

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pacemaker/defibrillator lead/coil questions

Hello everyone. My name is Cory and I just found and joined this group yesterday. I really don't voice much in the way of my health, outside of my sweetheart wife; but, I am taking a shot now feeling like there might be someone out there who can give me some perspective, information and maybe even prepare me.

I can handle most anything if I know what I'm dealing with.

So, my pacemaker/defibrillator was placed in 2013. I just turned 48. I am due for a battery/device ch...

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You know you're wired when...

You can take a lickin’ and keep on tickin’.

Member Quotes

It made a HUGE difference in my life. Once I got it, I was finally able to run, and ride my bike long distances.