Most Recent Messages

Backpacks / rucksacks / daysacks

Hi I'm new here - I came as I saw lots of old discussions on Google search but no real answers. 
 

I'm on my third pacemaker. This one was put in about three years ago. It's perfectly settled and I don't notice it too much unless it gets poked or pressed. 
 

I do a lot of walking. Just day walks with a 20 litre bag. My walks are what my friends call long - 15 to 20 miles. 

Recently I notice it gets sore where the bag...

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New PM Strange Case

Hi, New to club. I received my boston scientific multi lead PM on 6/4/21. Still Unbelievable it all happened. I'm a recent 60 yr who had no prior history of any heart problems as well as no family history of problems. my last annual physical in march was clean and numbers were fine (HR/BP), and all EKG's up to that point were good. OK, so my story starts 2 weeks ago when I had my every 5 year colonoscopy and when they were prepping me my HR was 35! and my EKG abnormal. They did the pr...

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Pacemaker Check

Does anyone else feel rubbish after a PM check up? It's been a few hours but I can barely stay awake? 

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After Surgery

I had a lead extraction done on June 3rd and a new Defib/pacer MRI compatible put in. Tonight June 9th my incision is leaking a light pink fluid. Is that normal or should I get it check out.

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rate change

Can some one explain this? 

She is very sensitive to rate changes with pacing so the device was reprogrammed. His notes included

Review of the datalog demonstrates 22% atrial pacing and 99% RV pacing with no arrhythmic events. The device was reprogrammed to make response times quicker with activity. 

This is a patient with a long history of vasovagal syncope who has now developed heart block. She is very sensitive to rate c...

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Smoking Weed

Has anyone had experience smoking weed with a pacemaker? I haven't since my surgery but would like to start again. I have complete heart block and had weed before the pacemaker, but I don't know if it will effect my pacemaker.

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Switched off?

Is it possible for a pacemaker to turn off by its self just for a few seconds I felt very weired yesterday again few seconds but it felt exactly the same as when they turn it off in clinic during the test, spent rest of the morning having a huge anxiety attack and sent home from work 😒

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Low potassium…

Tests went all good today.

However my symptoms of muscle cramps, sweating, elevated bp, pain, dyspnea, and nausea had become worse overnight.  I asked them to run a istat blood check on me while I was at the clinic.  My potassium was down to 3.0.  Since my doctor was out till tomorrow the in clinic heart failure doc just wrote me a new prescription for potassium supplements, told me to take a triple dose when I got home and follow up with my regular HF doctor.  The g...

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Anxiety

Hello to All, 

I received my pacemaker in July 2019 due to sick sinus syndrome, however  I have had 2  heart attacks and has 20, 30,  40 percent blockages. I also have leaking mitral and tricuspid valves. 

I am 56 years and lives alone. Since the past week I noticed I have been getting nervous and anxious especially at night regarding my mortality.  I do take medication for anxiety which only happens when I am driving (been taking it for years, not re...

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Pacemaker pain

’m still waiting for my next cardiologist appointment hopefully in the next few weeks , Recentyly my pain has been increasing by my pm, it started as a very mild discomfort on the left edge , every day gets more painful especially after I’ve been reaching up or been more active at home , nothing too strenuous , it’s been 6 months since it was fitted . Today I was walking slowly to take my daughter to the park, only up a slight slope , I’ve felt a couple of tugs is...

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Today’s the big first day and I can’t sleep.

I got so many positive messages from everyone and I want to take the time later when I'm not choking back the tears to respond to everyone!  Thanks for all the support and kindness these last five years!  Your friendships have got me through some tuff stuff.  Hopefully this week is not a total hospital nightmare, I will try to update everyone ASAP hopefully with the news that I am officially on the list! I hope y'all are feeling ok these days, we all have are own diffic...

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Shortness of breath and sweating

Hello this group has answered many questions I've had after getting a pacemaker. For about 2 months now I've been going back and forth to my cardiologist because I had ablation back in October and have gone back in to afib. My cardiologist suggested to shock my heart to maybe get me out of afib. Two days later the afib was back. My cardiologist tried speeding up my PM during a visit maybe to get me out of afib. It didn't work. All I got from that was a sharp pain in...

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Pacemaker

Hello. I had a Pacemaker fitted on March 30 and an ablation to deal with the node on May 6. This followed three years of procedures and medications following a stroke caused by an atrial flutter. That flutter and my atrial fibrillation were succcessfully dealt with by two ablatiions but a second flutter appeared and became persistent.  I think my cardiologist was confident all,would be well immediately but I have had palpitations and the accompanying loss of energy and nausea a few times...

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Pacemaker feels hot

A couple of times a day it feels like my pacemaker is heating up it is much warmer on one side of my chest in the other I have a Medtronic Azur XT. Has anyone else experienced this I put a call out to my doctor but I've  not heard back yet

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Pacemaker and C-pap mask with magnetic clips.

Is anyone with a pacemaker using a C-pap mask with magnetic clips? Is there any danger? Thanks for sharing any relevant information. 

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Post placement one month out

Hello all,

I have had a Medtronic biventricular/icd placed one month ago. Have healed great 1st appt was very positive and integration of device they said was perfect and doing what it should! Have had no pain at site per say incision healed nicely however over the past week I've been feeling like stings or zingers not that the device is going off but as quick as they come they are gone but I've noticed them more. It happens to the left side of device towards armpit. Is this nor...

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Milrinone is working so far…

Wanted to update everyone:

My blood pressure has stabilized in fact in a normal person it might be considered slightly high, this is great no more dizzy spells from low bp.  Unfortunately they had to stop all my other meds (except switched me to turosemide from furosemide in hopes to get my edema under control...it's not gone but better).  Dropping the meds meant stopping the ivabradine which was keeping me in the high 90s as of late for RHR but now without it im back betw...

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St. Jude Pacemaker recall

Anyone else have a defective St Jude Pacemaker? 

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out of breath while exercising.

I had my device installed in February.  Prior to that surgery I had been taking coreg 3.125 mg twice a day.   I was able to frequently get on our ellipical machine for 45 minutes for a comfortable session with heart rate at 120.   After the insertion of the PM, the EP doc took me off the coreg and substituted Metoprolol succinctate 50mg.

Now I have no stamina.   Walking uphill I get winded very quickly.   I am unable to use the elliptical at...

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weird pacemaker issue

I have an oximeter which measures my heart. I noticed that my heart rate went up when I did a casual exercise like raising my arms slowly forward and sideways. I experinmented. It only happened when I did it with my left arm, the Pacemaker side, but not on my right. It would shoot up by 25-30 beats. I've had it in for 3 months. It would also do it  the gym with certain upper body exercises, and once on the treadmill when I had my left arm up on the back of the machine.

Should I...

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You know you're wired when...

Your license plate reads “Pacer4Life”.

Member Quotes

It may be the first time we've felt a normal heart rhythm in a long time, so of course it seems too fast and too strong.