Most Recent Messages

Low BP while exercising

Hi All,

w e have the best gathering of experience dealing with medical situations that the average patient could go to for advice or comfort.

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Anyone have an abdominal pacemaker?

I was born with a heart defect that resulted in me being implanted with a pacemaker at 18months of age. I'm now thirty and my leads require much higher voltage to pace than when I was implanted with my device. I'm using pacemakers rather rapidly, and approaching my fifth pacemaker change. I started having complications and pain in my shoulder area, so in 2015 I had an extra set of leads implanted in the abdominal area, incase my leads broke after being repositioned. (These are on the...

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High Altitude Skiing and ICD device

Had an ICD device put in June, 2019.  Plan on going sking in two weeks to Colorado.  Height of where we are going around 12,000 feet. 

Other than falling and damaging the device.....should I have any concerns about the device and the altitude?

 

Bill

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Heart Block - 100% Pacemaker Dependant

Sorry for the long back story but I am quite concerned, scared, upset, etc.

I had my pacemaker/ICD put in June, 2019 due to the ventricular tachycardia episodes I had due to a virus called sarcoidosis that somehow got into my lungs and heart.  It damaged my heart and the result was ventricular tachycardia.

The pacemaker has been pacing me at the low end to 60 bpm and at the high end around 175bpm.  All this time since June my heart was beating on its own power, but a tad...

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Just venting

So, I have (apparently) an MRI-conditional lead. And an MRI-conditional pacemaker, following an AV node ablation (for longstanding persisten atrial fibrillation).  However the combination is not MRI-conditional (according to Boston Scientific and my current EP/cardiologist) so I can't have an MRI. (As an aside: What????)

Which matters, because I have heart failure (HFpEF) and my cardiologist thought to order a set of blood tests so obscure the vampires at the hospital...

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Alcohol

Hi everyone,

I have just gotten my pacemaker implanted 2 days ago. I am only 20 years old. Being so young I still would like to be able to get out and have a drink with my friends but I am wondering if that is possible now that I have a pacemaker? When could you start drinking again and how much was it okay to drink? Did drinking affect your pacemaker and how?

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surgery

thanks, unfortuately this is the only hospital this doctor operates in Sarasota.

  I am not concerned about this virus as much as i want to be able to use my arm freely without pain.    Have had the blood tests and MRSA test last week and was deemed healthy.

This virus thing can go on for many months.    what about others who are awaiting Pacemakers or ICD's.  should they wait?

One of my friends said now was the right time as the hospitals a...

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safe to have surgery with this virus floating around

hi all . am currently scheduled for reverse shoulder surgery on friday March 6th. the hospital am using in fl.  is one of those that had a confirmed one of those virus cases.  Is this a good time for surgery,   Pacemaker seems to be ok.

mary

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7 week check

Just reading Joanne's checkup and settlings issues. I have been for 7 week pm check with the technicians and was quite taken back that my pacemaker wasn't kicking in as it should however, they've changed a lot of things but wouldn't say I feel great tonight. Have anxious feeling back and just weird feelings. I was told it can take a while for a settings change to settle so good to hear others are having similar issues. Have been dizzy some days nauseous others, just want to wa...

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Exercise and fast HR

Hello 

I am 25 years old, and I've had my icd for about 4 years. All was well, except lately I've had some palpitations after I workout. After exercise my heart rate dips into 90s but then all it starts racing in 140s. Of course I'm going to call my cardiologists office, but before I do has anyone experienced anything similar? Thank you 

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?? LVF

Hello! havent checked in for quite sometine, just tring to get on with life and forgeting about having a device  

Had a great year last year after more alterations of settings post an AV abaltion 2016....cant belive how the time has passed. However a started feeling less good at the end of the year and after seening new consultant she is sending me for another echo and referal to another electrophysisologist.Getting lots of fluttrts and longer spells of palpatation like feelin...

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Night sweats

Anyone else had these after PM ?  Had implant two months ago yesterday and have had night sweats lately.  Is it my body unhappy with new resident?

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loss of appetite after implanting pacemaker

I got a DDDR pacemaker planted on 22.02.20. but right now  I dont feel  like  eating anything .Is  this normal after pacemaker implantation?

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Sinus Node Ablation?

Has anyone here had either a Sinus Node Ablation or Sinus Node modification done? 

If so i'd be interested to know if you had any benefit from it... and were you able to stop or reduce antiarrythmic drugs afterwards? 

My Dr has suggested it to me once again... just not sure about it. 

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Leadless pacemakers

Has anyone heard about leadless pacemakers directly implanted into the heart? 

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Recovery and raising left arm in sleep

I raise my left arm over my head when I sleep. Is there a way to keep it below my shoulder? Thanks. I am having pm placed tomorrow.

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new pacemaker

Hi everyone! 
 

i just got my first pacemaker after experiencing quite a few episodes of prolonged syncope with asystole theoughout the years. I also have hashimotos and a slew of other issues that aren't quite bad enough for treatment yet- we are just "watching". I just got my pacer last Tuesday and was able to go back to work today (also I am 23 F, so any tips about getting a pacemaker at a young age are appreciated!). i have way more energy than I ever ha...

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Flue after reporgramming

Had Pm (biotronik) checkup and reprogramming today.  I am wired since October 2018 and have had at least 10 (lost count) reprogramming of my Pm since.  Some reasons for this are a lead which placed in an unussual spot (due to too much scar tissue in the atrium), junctional and nodal pacing and feeling of general fatigue.   After my pacemaker repogramming my body seems to have to get used to the new setting.  Last time it was at least taking 3 weeks.  It...

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post surgery one yr ago

still trying to cope after one yr feel constant soreness in left arm as well as soreness in underarm sore this doctor yesterday and his answer ws u have a forein item in your chest but nothing is wrong and go get medtrtonic cheched out on friday my blood pressure is slightly high i walk 5miles daily when i feel up to it  i now have been diagnosed with blood anemia which i was put on iron pills for 2months then will need colonoscopy to see why are my blood levels ar low  well thts it...

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Under the muscle

Hi I am due to have my battery changed in the next 3 months I go to whiston hospital Merseyside l asked today if it could be fitted underneath the muscle as mine protrudes and affects my confidence in relation to cloths, now I know we are lucky to have our NHS and I do appreciate it but have any of you gone from under the skin to under the muscle in the liverpool area, my tech says she doesn't think they will do this as I would have to go to the Royal so that's changing councils what&...

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