Most Recent Messages

Biotronik CLS pain

I had a biotronik CLS pacemaker placed 6 days ago for orthostatic hypotension.  I have been having severe back pain and shocks.  They are worse than labor pains.  I ended up in th Er the day after being discharged from hospital.  All tests were normal.  Chest xray, labs Ekg.  The device rep interrogated my pacer. They released me to home.  The Dr that placed it thinks its not the pacer but nerve pain for the shocks and the back pain for being on surgica...

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Recalls

Does anyone know if there has been any recalls on the metronic pacemaker that was inplanted in 2017.

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Pacemaker

Good morning my pacemaker friends, I have been having a lot of pain around my pacemaker site. My pacemaker was implanted 2yrs ago, wondering is this normal? I have been having a very rough time I was diagnosed with Addison a year ago this has been one of the roughist battles I have ever faced. Wondering has any of you been diagnosed with Addison's? God bless! thanks in advance. 

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Replacement pacemaker

I had a replacement pacemaker a fortnight ago and had a very calcified removal. Developed a hematoma and  now have a very swollen site. Should I worry? 

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Medtronic Micra - Anyone part of the Marvel 2 study?

I had a Medtronic Azure implanted 1 year ago with just the lead to the lower chamber. I am still struggling to get back into running etc. and the doctors believe it is because of the asynchrony between upper and lower chambers of my heart because of just one lead. I have normal sinus rhythm and a complete AV block. 

It looks like the Medtronic study of patients with leadless Micra that received an accelerometer-based atrial sensing algorithms was a big success and my doctors are re...

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SSS and brady - tachy

I am at the stage of taking a 30 day event monitor from EP  for possible pacemaker. Have a right bundle branch block and I think I am brady - tachy,  Interested in different pacemaker choices for SSS and any experiences anyone has on a pacemaker for brady tachy.

 

Curiousd

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QOL Decision re pacemaker

This is my first post so I will paste my bio here.

66 year old active woman, but not an 'athlete' per se. I have always had a very low 'normal for me' resting heart rate ~37. It is rare but normal. In recent years congenital issues with my aorta and functionally bicuspid valve (pure aortic regurgitation in mild to moderate range) have stressed my heart. Was put on a low dose beta blocker in hopes of helping my medial tissue of the aorta (not for BP). Developed aFib. I fe...

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Under muscle?

Hello I'm 40 and enjoy hiking kayaking and have 4 young kids. Getting a pacemaker in 2weeks. Will under the skin suffice or does anyone suggest under the muscle? My EP doesn't do under the muscle so I have to be put out and a surgeon does it. Seems more risky. Kind of rather have my EP do it but not sure if under muscle is worth it or not. 

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What are you paying for Eliquis

I've been quite fine on Warfarin for the last 8 years. My EP though is now recommending Eliquis as a "better" option. He says the America Heart Assoc is also now recommending Eliquis over Warfarin. Slight problem: Warfarin is like $10 a month, Eliquis is $500 a month (yes five hundred $). I'm on Medicare and with Part D drug insurance either the premium is outrageous or the co-pay is.

The $500 is for 60 tablets 5 mg. Twice a day for a one month supply. How mu...

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Cycling back to fitness

Hi all, a week ago I had a dual chamber ICD fitted as a precaution for my hypertrophic cardiomyopathy.  Still sore & swollen but getting better everyday & now starting to get some better sleep.  

I am a fairly keen cyclist but more social than competitive. A couple of friends & I have already booked a weeks cycling next September on the Camino Trail in Spain. I know i have time to build up slowly to this.

These forums are great to see you'r...

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Does anyone wake up when paced overnight?

I am 2.5 weeks post pacemaker implementation now back to work taking things slowly. I am waking up during the night a few times and "think" I do feel my heart going slightly faster. I am also going through menopause. So wondered if anyone feels the pm kicking in overnight ?  Thanks to everyone on this site. Since joining this has provided me with lots of info and a great deal of reassurance. 

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Could it be ???

I have been on here plenty complaining that my heart rate doesn’t get high enough to deliver and meet my body’s demand in the gym.

Sunday will be two months since implant. 

Rate was maxing out around 130. I was interrogated - to check in my arterial status I had an echocardiogram and nuke stress test - even had my corartid scanned .  All were great . 

My PM is set 60-170.

tonight I tracked my rate for 3 hours while I played racquetball. ...

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Medtronic or Boston scientific

Getting a PM January 2nd for second degree AV block. EP nurse says he puts in Medtronic PM's. I'm not certain if he would put anything different in but am curious from you all what would be the best PM for a 40 year old who enjoys being active. Kayaking, jogging, etc... I have 4 young kids. 
 

thanks 

 

Philip 

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Has anyone ever been a super responder

I was diagnosed with heart failure in April of 2019. My ejection fraction what's 31 and after 14 weeks of the drug therapy my ejection fraction did not change. So I had a crt-d device implanted on September 4th. On the 13th of December I get a call from my electrophysiologists saying that my heart was normal and my ejection fraction was that 50. Was diagnosed with non ischemic dilated cardiomyopathy with an enlarged left ventricle. Has anyone else been a super responder in such a short. O...

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Fitbit Inspire HR

After haveing a Alta HR for over two years, I have been bought an Inspire HR, I am concerned about the fact that the charger conects magnetically. Has anyone had any problems with the Inspire and a pacemaker.

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Dizziness

Had my PM since 2013.  Am having vicious dizzy spells.  Rare, but terrifying.  Feels like the first time I had bradycardia which brought about the implanting of the PM.

.  PM is set at 60.  Does anyone think having it set higher would be helpful?   I have to travel 200 miles each way (snow and wind in the winter) to see my EP, so don't wish to make the trip if not necessary.  I had an interrogation 2 months ago and have regular (quarter...

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Settings

Hi everyone,

Could someone answer a question for me please! Having a tough time adjusting to the pacemaker!

Had settings changed from 60 to 70 due to very low bp! At 70 bp raised and felt very wired and couldn't excercise with lightheaded feeling! Felt the pacing in throat and had nausea with it, set at 65 now blood pressure stabilised somewhat still getting spikes! 

Could someone explain the pacing in throat with nausea, is there a setting I could request turned on...

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6 days post pacemaker implantation

Hey everyone. I'm 38 years old and had to have a pacemaker placed 6 days ago. I can honestly say I wasn't expecting my week to end like that. Then again, 2019 has been a year of unexpected events. My 16 year old son had a heart attack in January.  That lead us to find a congenital birth defect known as an anomalous left coronary artery with an interarterial and interseptal course. He had open heart surgery to repair it in August. He is already back to wrestling and doing amazing....

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High BP after PM Check

When I go to the EP for a PM check they do the interrogation and then while my heart is pounding away the nurse checks my BP which is always high while good otherwise.  Could the wand cause raised BP?

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Pacemaker firefighters?

Hello, 1st post.. I'm currently in hospital awaiting the fitting of a pacemaker hopefully before the weekend.

I had my loop recorder downloaded following a nocturnal faint and it showed a slowing rhythm with a 15second pause.

I'm an on the run firefighter and would like to hear from any others out there who can share positive experiences of getting back to normal?

I'm 41, fit enough and still in a bit of shock!

Ta,

Dan.

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You know you're wired when...

You have a high-tech ticker.

Member Quotes

I am just thankful that I am alive and that even though I have this pacemaker it is not the end of the world.