Most Recent Messages

Need help reading remote report

A friend who originally got a pacemaker because of vaso-vagal syncope asked me for help interpreting the following:

Scheduled remote reviewed. Normal device function.  
18 new VHR events logged 31 seconds to 12 minutes 25 seconds w/ rates 150's bpm; EGMs suggest SVT
AF burden <1%; longest 1 to 3 hours; V rate histogram shows ~90% binned >110 bpm; available EGM suggest SVT
Next remote 91 days. HB

Q. V rate histogram shows ~90% binned > 110bpm

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Travel right after implant

I had a pacemaker implanted on Monday after two separate collapses a few months apart.  I have a major international trip planned in April, with Dr saying it will be ok.  Anyone else have experience with major travel soon after implantation, and if so how did you handle luggage, etc ( we can only take 20 kilos with no wheels or frame) i know about going through security etc, but logistics may be tricky.  We're you headed well enough to not have incision pain?

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Just thinking

When I had my cardiac arrest 3 years ago, somehow my tongue got cut pretty bad during the whole carcuffle. I thought it would fully recover but often, I really notice a weird sensation/numbness along the scar. I can particularly feel it today...maybe it was something I ate...I don't know. I've basically come to terms with everything that has happened/is happening/could happen, but this sensation in my tongue right now has me feeling angry - angry that I have a heart condition, angry t...

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fatigue after 11 years, 2nd pacer.

I keep reading about all the activity y'all are doing, hiking, walking, sports etc. After 11 years of pacing at 100% ( A year after my 2nd one) I am so tired I can't get out of bed. What is going on? 

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pacemaker

its been a while since last wrote but having this website is like my security blanket always know who and where to ask if ever in need of info updates help or whatever!!!! well just had yesterday my yealy check up with my heart specialist report all seems fine my last battery replacement was in March 2018 Boston Scientific L331/339220 is what printed on my card, my understanding was it`s suppose to last between 10 to 14 years but was told it`s only has 4and half year left! when i askesd why?...

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New to this forum

Hi I am new to this forum. 49 years old and my Zio holter showed advanced grade second degree block with a few pauses (3-5 secs). I am completely asymptomatic, they picked this up incidentally because duting covid of 2020, I got anxious at night and reported palpitations. The EP test revealed no conduction disorder in fall of 2020. But the zio that I wore for the last 2 weeks picked up intermittent blocks, mostly at night but a few during the day. I have my consultation with my EP on Thursday...

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CT angiogram with contrast

Has anyone with bradycardia ever had the CT angiogram with contrast test? Sometimes a drug, which lowers pulse, is administered? Did anyone have side effects from that? Since my pacemaker is to help my pulse, im concerned about that 

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update to my previous post now on page 2 about " AF- either surgery or blood thinners " also triggers

I saw the cardiologist today and she and i spoke at great lengths.

Watchman or other types of plug/cut off surgery: One can have at any age.  If I want one of these surgeries, i have to be taking blood thinners first.  Then if having trouble  tolerateing and would like to stop Medicare would then pay for surgery.  If not taking anything I would have to payout of pocket.  That is not a choice for me.

I will try and  do  deep breathi...

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AF and high blood pressure

Hi 

I was fitted with a duel chamber pacemaker just over 2 weeks ago - for complete heart block / bradycardia, with a pulse of 37 , I also was suffering A/F and blood pressure was managed with 7.5mg Ramapril 

However -post implant my device has gone into AF mode and set a base rate of 70 bpm. My blood pressure also went through the roof hitting 160/120 once but always in excess of 100 dystolic 

Ramapril increased to 10mg and it hasn't made any difference-...

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Is this a concern

I am 3 1/2 weeks post pacemaker implant.  I think I am doing well adjusting.  I have my moments.

My surgical sight is healing well. This weekend it seemed to me that I had a little more bulge on one side of my incision sight.  There has always been a little raised area because of the pacemaker.  It just seems a little more pronounced on one side. (not red or sore)  I don't know if I just notice it more now.

Does anyone know if the raised area can chage...

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pacemaker and echo stress test

Hi everyone. I wonder if there's any problem taking echo-stress test with pacemaker. Last time I had echo stress test, before pacemaker, they pushed the paddles very strong against the heart. 

I wonder if this can harm pacemaker, or leads,

Thanks Bayla

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PIP (UK specific) question

I'm currently filling in an application for PIP -- based on restrictive cardiomyopathy and the resultant heart failure and VT/ICD, plus an Essential Tremor. Does anyone have experience of what works?

I'm particularly interested if the ICD makes any difference -- my suspicion is not.

However, I'd like to hear advice from anyone who has gone through the PIP process.

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More than one communication device?

I have a Boston Scientific pacemaker, implanted in 2021.  I travel frequently to a vacation home in another country and, while the base communication device works fine in either place, it would be easier to have two separate ones and not have to carry the one back and forth each time.    

Has anyone done this before?     I thought I'd check here before contacting the manufacturer.  

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Yellow Pimple

I have a very normal looking small yellow headed pimple on my chest about half an inch below my incision, where the pacemaker is underneath.

It doesn’t look at all like an abscess, just a normal spot. I get these elsewhere on my chest and stomach too sometimes, but not usually so close to the pacemaker. I am wondering if I need to do anything or just treat it like a spot anywhere else. Does anyone else ever get spots on this area and are you advised to do anything? 

<...

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Boston Scientific settings for swimming

I am 73 years old and a long time swimmer.  I had a PM replacement last May after I broke a wire in my Medtronic setup implanted in 12/18 for SSS.  I had been frustrated in the pool but was making progress.  My EP and I agreed that the Boston Scientific Accolade would be a better device for me. At this point, it is not.  I am something like 7-10% off my previous performance levels.  My bad days are really bad and seem to occur randomly. My land based activities seem t...

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Day/night mode when the clocks change - daylight savings time?

Hi, I have a new biotronik pacemaker and live in the UK. I have a day and night mode (because I asked for it, I have the impression most patients at my clinic are not offered this) with my floor HR set to 50 at night. 

I am paced much of the time both day and night, and whilst 50 is OK for lying in bed, it is not adequate for me to get up and function. CLS is not yet activated, this will be done at my next check. 

Can anyone tell me what will happen when the clocks chang...

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Ejection Fraction

Hi Everyone,

I had my pacemaker first placed on Halloween October 31st, 2021.  Right before Thanksgiving I had to have a Revision because the top lead had dislodged. For almost 2-months I was having shortness of breath (especially using the stairs), my chronic cough continued and I had gained a lot of water weight.  My PMD wanted to send me to a lung specialist for my cough. Turns out I had heart failure and just before Valentine's Day I had a 2nd Revision as the lead disl...

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Pacemaker

Hi All

First time posting on here, I had a pacemaker fitted about 14 months ago due to complete heart block and I still on occassions find myself having a very brief episode where you feel you may pass out this also hits me with anxiety afterwards do others find this normal.

PWR

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Atrial High Rate Episodes

My pacemaker is showing numerous AT/AF episodes with heart rates to 640.  The NP says that is not possible.  Any answers?

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shingles vaccine

Hi everyone, just wondering if anyone recieved the shingles vaccine lately and how they felt afterwards. my gp wants me to have one, little nervous. thanks. hope everyone is well.

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You know you're wired when...

You fondly named your implanted buddy.

Member Quotes

I am not planning on letting any of this shorten my life. I am planning on living a long happy battery operated life. You never know maybe it will keep me alive longer. I sure know one thing I would have been dead before starting school without it.