Most Recent Messages

Open MRI with Pacemaker

I am large and need an open MRI and have a MRI compatible RateDrop Pacer. I live in upstate NY and I have no place in all of New York or New England to do one with an open MRI and Pacemaker. I am willing to travel the country if I can find someplace that will do this. I am obese and round and short so I can't fit in any of the standard or extra large machines. 

Read More...

Pacemaker

Hello Dear Friends,

I had my Pacemaker installed yesterday and everything was said to have gone fine and was sent home yesterday itself.  I had pain and redness in the installed area for which I was told to take Tylenol and did so a couple of times last evening/night.  This morning I feel OK with my heartbeat etc. except the installed area (left side of upper chest) is swollen and also I noticed the fingers on the left arm and left ankle area are a bit swollen...not sure if th...

Read More...

Results from my electricity Dr

Hello friends I posted here before that I was going to see a new Dr for electricity..after months of waiting to see him ..he read some papers that my regular cardiologist wrote? I told him all my symptoms n look at paper's n was concern about 2 things ..he ask have you ever been to hospital for fast heart rate ? Me No ! Him I want to find out how fast has it been when you get episodes ? ..so ge tells me I need to do a test abblibation type test ..why did he mention .

There is 1 % ri...

Read More...

Abdominal pacemaker

Does anyone know a Dr. in the area of Florida  that would move a pacemaker from the left chest area to the abdomen. I am having lots of location pain and headaches whenever I use my left arm. My electrophysiologist says he does not implant them in the abdomen. 

I'm a 52 year old very active male, I've had a pacemaker since I was 7 yrs old due to heart block from open heart surgery to correct Tetrology of Falot. My first 2 pacemakers were in my abdomen and I had no pain...

Read More...

Heart rate when cycling

I had my PM implant 17th June 2022, to overcome bradycardia and sick sinus issues.  Resting HR now 60, up from about 45.

I had been noticing increasing fatigue generally, and as a cyclist increasing struggle to keep up with my mates, especially uphill.

Since the implant I generally feel better.  But I have not gained any noticeable benefit when cycling.  After the implant and when riding, my HR would rise to 130 and then 'flat line'.  The technicia...

Read More...

Bruising & sensitivity

I am 8 weeks post-op and overall doing well. I am back ro exercising and feel good during and after. 
My question is about bruising and sensitivity. 
 

I bumped my site the other day. Not real hard but definitely noticed it. Now it seems like a bruise is around part of the site. Also if I tap with my finger around the edges I can feel it. 
 

Any thoughts?

Read More...

Pain during surgery

So I went through the club initiation rites yesterday and got my membership card.  Biotronik dual-lead PM up and running.  Had read about the procedure and got a brief explantion from the doctor but was totally unprepared for how painful it was.  They said I'd have a light sedative and local anesthesia, but I thought I'd be more out of it and feel only tugging and pressure.  Felt the injection of the anesthesia obviously, then I don't think I felt the inci...

Read More...

Hi!

I'm not too sure where this post belongs...SO first I'll introduce myself as I'm sure that would be helpful!

My name is Sarah- I'm 31 years old and I had a dual chamber PM for sudden 2:1 AV block following COVID and the vaccine, placed about 2 months ago. I am an RN in an ED in Ohio, I have 2 swet boys (almost 10 and 6)

 

I'M STRUGGLING. 

I've tried to resume normal activities and I simply cannot. I get short of breath, I get palpitati...

Read More...

Fever

Is it common to get a low grade fever of 99.4 after ICD placement.  Mine was placed yesterday on

8/15/22.  Thank you. 

Read More...

What happened there!

If you can see 4posts of mine I truly apologise. I tried to delete a duplicate and it posted it twice again?? Dearie me. If theres an admin please delete 

Read More...

AF?

Hi there. 

Still getting used to the aftermath of my Pace and Ablate procedure. (AV node ablation 19/7/22)

I'm still getting a few single ectopics and I've found out that my settings are currently DDD with a min/max rate of 60- 130.....Yesterday I was working and when I came home I was eating my dinner and I absolutely swear I went into AF except I didn't get that fast ventricular rate. I monitored my heart rate and it went up to 130, my max setting, but it wasn&#...

Read More...

Two Questions

My pacemaker was implanted on July 13th, so a bit over 4 weeks ago. Two friends who have pacemakers, both having had them for years, tell me that they really aren't aware of their pacemakers, only notice them when I've asked about them.  Mine is quite prominent on my left upper chest and I feel the weight of it when I stand up or change positions. How long before I too can be unaware of it? Will it flatten out?

Next question: seatbelts! My seatbelt falls exactly over my pac...

Read More...

Question about settings

It's been a while since I've posted, now 2 in one day! Another post reminded me of a question that I have had in the back of my mind, so here goes: A lot of people discuss having settings adjusted or "tweeked", usually because initial settings are not quite right or they feel they need a change. Most recently I learned that settings may be different while leads settle in & need to be dialed down later. Well, as far as I know, my setting have been the same since day...

Read More...

Update on feeling tired

There have been various posts on various topics in which the subject of feeling tired comes up. That makes me prick up my ears, because this is something that I have been dealing with for a while. I had my beta blocker dosage increased maybe a year ago, and it seemed to me that from that time I began to feel extremely sleepy. I felt like I needed to sleep not only all night but most of the day as well. My PCP and my cardiologist both seemed convinced that it was something other than the med (...

Read More...

Anxiety / feeling off

Hello,

 

I am a 43yo female, I got my pacemaker on May 11 for an AV heart block. The doctor has me coming back in August because as they described it it's like there's fog lights on but the fog has cleared so they have to adjust settings possibly.

I do feel that I am experiencing stress in a heightened state. So in a situation that would previously have caused me some stress is causing me to express myself and appear more agitated than I am used to. I was taking...

Read More...

Well the time has come....CCM Therapy Optimizer Smart Research Study

Hi All,

Well, I've been selected as part of a research study group for the CCM Therapy Device called Optimizer Smart by Impulse Dynamics.

The study will last 3 years, all costs will be paid for by Impulse Dynamics, insurance and the hospital. There are only 600+ study participants in my region. 

I am excited and scared at the same time. Having had a tough recovery from my ICD implant - both mentally and physically, I now embark on another implant. I am hopeful thoug...

Read More...

Pacemaker

Is it normal to have like a cramp sensation around pacemaker I feel a bit uneasy when it happens ,has anyone had anything similar ? Thanks

Read More...

Ventricular Lead Placement

Hello everyone there has been some great discussion from our experienced members on the pros and cons of where the ventricular lead is placed: RV Apex, septal, HIS bundle, para Hisian, LBB, possibly more. Let's assemble a knowledge base and make an easily searchable thread for the future by simply looking for "ventricular lead placement". Please, everyone with something to share, please add your great insights into the pros and cons of the several sites ...

Read More...

30+ year old leads?

Anybody here have or know of someone who has leads over 30 years old? Mine are 29 years old so I was certain that they would change them this time around but they said they were working fine so they felt no need to change them. I am 100% pacemaker dependent, so it makes me a little nervous to continue riding on these leads. I am in ERI so will be getting a replacement in the next two weeks.

Read More...

Pacemaker battery being replaced

Hi there, I'm posting on behalf of my wife.  She is due to get her battery replaced as she has between 2 to 10 months left in it.  they say the replacement may not be like for like and maybe a bit smaller.  If this is the case they'll put it in a different spot as the existing one may have too large a pocket. My question is 'when the batteries for pacemakers begin to run down are they as efficient at the end of their life as they are at the beginning' ?

Th...

Read More...

You know you're wired when...

You are always wired and full of energy.

Member Quotes

I had a pacemaker when I was 11. I never once thought I wasn't a 'normal kid' nor was I ever treated differently because of it. I could do everything all my friends were doing; I just happened to have a battery attached to my heart to help it work.