Most Recent Messages

TSA concerns

I am troubled by airport security procedures and wonder what rights pacemaker patients have vis a vis TSA and other international security screeners.

Specifically, when not accompanied by a friend or spouse, pacemaker patients can be separated for prolonged periods of time from their valuables in their screened carry-on luggage, such as money, medications, wallets, passports, etc.

In the chaos of airport security it appears that anyone could easily steal or mistakenly walk off wit...

Read More...

Getting Back to Running

Hi all.  I am a newbie, with an implant date of 7/18/19.  Sick sinus syndrome, bradycardia...with very mild heart block.  I have a Biotronik Edora 8 DL, that is set at 50 lower level and 160 upper level.  i am 59 years old and have always been a recreational runner (mostly 10ks and 10 milers) biker, and swimmer.  So far i feel great!  However, I have a couple questions for anyone who might be able to help:

1.  When i run, my heart rate goes up aft...

Read More...

Anybody have a nickname for their pacemaker?

I call mine "Sparky".

Anybody else got got a pet name?

:)

Read More...

Does having a pacemaker prevent CPR certification?

CPR Certification is being offered through work, and while doing the prep exercises, it struck me that having a device might actually prevent me from being able to get my certification.

Does anybody else have any experience with this?

 

Thanks in advance...

 

 

Read More...

Introduction

Hi All! I just got my pacemaker 5 weeks ago! It all happened quickly and I was diagnosed with Sick Sinus Syndrome and AFib. All of this is so new and confusing and overwheming. I don't really understand what my pacemake settings are (I have a duel lead, St. Jude). I am a little unclear on exercise limits. Any advice what be so appreciated!

Read More...

Introduction

Hi Everyone,

I'm new to the club -- thank you to the gentleman who responded to my contact regarding trouble joining... trying again worked.  Don't know what happened the first time, but happy it went through the second.

I got my first pacemaker at 6, almost 50 years ago, due to nerve damage from a VSD repair.  I'm about to get my 9th...10th? (yes I've lost count)...this Friday.  

I'm so grateful to have found a place where I can...

Read More...

Pacemaker problems

I’m being constantly zapped when I touch things etc, so loud my partner can hear it not sure why

Read More...

Electric Cauterization

I have to see a dermatoligist soon to remove a basal cell issue. They wil be doing a ED&C procedure, which involves cauterizing the area with an electric probe. 

Has anyone with a pacemaker had this done? Any issues? 

Read More...

rate response

Can anyone explain how rate response works?  I don't think my PM is set at a high enough level and I get so short of breath I have to stop walking until I recover enough to continue.    Still having shortness of breath almost two years later. Medtronic PM 12/17 for 2:1 AV block, followed by PE 3 days later. 

Have an appointment with EP in a couple of weeks and have asked for records of all my PM checks so I can be prepared to ask questions. &n...

Read More...

pacemaker surgery

I am getting my pacemaker tomorrow.  This is all new to me.  Can I expect to feel differently almost immediately.  I feel a little tired all the time and cannot excercise strenuously as my heart rate does not stay up with my level of exersion.   I'll find out soon enough but was thought I'd ask.  Thanks for any replies. 

Read More...

Twitching after last visit

Is it normal to continue to have twitching in your chest after they adjust your AICD? It’s been 2 months .. I had it in the very beginning after surgery ( January) , it went away but now this time it didn’t ??? 

Thanks for any help 

Read More...

Throat pain

  • by MEB
  • 2019-09-08 10:25:35
  • Coping
  • 103 views
  • 0 comments

I am grateful to hear other people with post op throat and neck pain.  I also thought about it being related to thyroid?  I have the same pain with moving from laying down and from getting up.

 I had some fainting while swallowing solid food which was the root of my arrhythmia. I wonder if that’s perhaps what the pain is from?

I see my Doc Friday and will mention this posting. She has been great at listening to me pre-op.  We will see.

 Thanks...

Read More...

airbag grocery store

Hi today did finally drive.  The airbag was not my concern.  I have a right shoulder that either should be replaced, or have bone graft.  I have Avascular Necrosis in it.    For the past 6 months my left arm was doing all.  Which is one of the reasons i did not drive sooner.  Needed to be able to use the left one some.    Which i did , of course could not figure where to place the seatbelt,  let alone how to attach the belt.  Now as i get...

Read More...

Electro therapy for haemorrhoids

Good afternoon, posting for my Husband who is wondering if anyone has had Ultroid (USA) or Exroid (UK) therapy to treat haemorrhoids.  He will speak with his EP about this but wondered if any one else with a pacemaker has had the procedure. It is something he desperately needs done as is not a good candidate for surgery. Thank you.

Read More...

Biotronik pm

I'm extremely petrified. I have a dual lead pm for a third degree cardiac av block, after an overnight, get the hell out cuz you don't have insurance, hospital stay, I was told that I have a displaced lead. My cardiologist office set an appointment for post release, but it was one day outside of the grace period. I can't get insurance, or any other kind of help to get it fixed. Has any one had this issue!? Is it dangerous!?  Thanks in advance for anyone who has any info

Read More...

outside body electrical shock

Accidently crossed and hit an electric fence and jolted me pretty good. I felt it shock inside of me where the pacer and wires are. My Bosten scientific pacer is in my abdomen and has epicardial leads. Im dependent but seem to be ok. Could this have harmed my pacemaker.?

 

Kay

Read More...

Office visit (rant)

If there's something harder than communicating with medical professionals, I don't know what it is.

Oh and I have some choice words for St Jude's while we're at it.

I tell them I've been having PVCs accompanied by wheezing. My pulmonologist assures me it's not asthma and is probably heart related.

They tell me my pacemaker is working fine.

I tell them yesterday afternoon I had such a bad "PVC storm" I was close to collapse an...

Read More...

Website My EP Gave Me

https://patientdecisionaid.org

Read More...

Colonoscopy with polyp removal

Hi All

A couple of questions on behalf of my Husband who had a pacemaker inserted earlier this year. Has anyone had a colonoscopy with polyp removal and / or a treatment for haemorrhoids called Ultroid therapy in the USA and Exroid therapy in the UK? John needs to have these treatments but is waiting for an appointment with his EP to check. Just wondered if any other pacemaker friends have had either treatment. x

Read More...

Tingling

My cards doc says I tingle from the placement of the pacemaker over a nerve enriched part of the chest.  I had new devices implanted into the pec muscle as the first would ride up and hit the clavicle.  But I tingle constantly from head to toe.  Does anyone else have this problem?  

Read More...

You know you're wired when...

You have a new body part.

Member Quotes

I wouldn't be here if it were not for this amazing technology inside of me.