Most Recent Messages

Pacemaker to Defib upgrade

Hello. I am a 44 year old male who has a Medtronic Dual Chamber pacemaker for complete heart block.  I have 12 months left of battery and have been told that I need to have it upgraded to a Defibrlator in the near future.

Can anyone who has also had this done give me any advice on the procedure and living with a Defib compared to a Pacemaker.  

Thanks in advance

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CRT-P placement

It's me again. CRT-P implanted Nov.19th. I can't get over how much bigger and visible this thing is :(  It also seems a lot closer to my side/armpit. My bra strap irritates it and it feels like little pinches or shocks. It is also extremely uncomfortable when reaching for things and trying to sleep. (I'm a side sleeper)

Do they ever go back qnd reposition it? It feels ans looks as if it is directly under my skin. My dual-chamber didn't look or feel so close to the s...

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Muscle twitching in left arm

Had pacemaker implanted 3 weeks ago.  Now having some muscle twitching in left arm.  Is this from the pacemaker.

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Flecainide

Has anyone else had flecainide cause tremors? I have developed tremors over the past two years and I looked up flecainide and it appears to me that one of the side effects is tremors but my doctor disagrees. So I was just wondering...

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Nausea and migraine like headache in my left eye

Hi again! I could use some help trying to figure out why I'm feeling the way I am. Today in the morning i woke up feeling very nauseous and my head had started hurting only in my left eye. I checked my blood pressure and it was at 55, could this be causing my symptoms? If so why isnt the pacemaker picking my heart rate up? Have any of you experienced this before and could it be my body had had a syncope and the pacemaker tried to help me? I appreciate your open responses it means alo...

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Crt

73 years old with a dual chamber st Jude pace maker, installed almost 5 years ago. Pacing continued to increase to reach 100% on the ventricles. Have now been pacing at 100% for 2 years. An echocardiogram shows decreasing EF, less then 50%  some shortness of breath but still can do everything. Cardiologist suggest CRT , biventricular pace maker upgrade. Has anyone had this done? Cardiologist said only issue may be having enough room in the vein to add another wire due to scar tissue...

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Scar

Someone tell me when I can begin using scar patches to minimize the scar. I'm out about 3 weeks and the wound has healed but it is ugly. I am tiny and would love to make this look a little better. The food news is so far it's working. 

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Trying to get through these rough times

Hello, I wanted to share some thoughts,because recently I have felt so sad with my pacemaker and although grateful for science, I seem to be crying everyday you see I regret not to have asked for a second opinion. I had no health problems except passing out. Eight years ago I passed out on a Summer afternoon after having a Dejavu moment.  and they said it was dehydration. Then it happened 6 yrs later same thing and I saw a neurologist he said it was syncope vasel vagal nerve. Then the De...

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Subwoofers

Hi there, 

I just bought a new sound system for my house and I noticed that if the subwoofer is on it feels like my pacemaker is oversensing. As soon as I shut it off I level back out but it's a very uncomfortable feeling and so I am wondering if this is a normal thing or if I should avoid it? It also happens in my car with songs that have a lot of bass- even with the volume lower. 
Not sure if it matters, but I've got the Micra AV implanted so there are no leads....

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The Energizer Bunny just died

Hi Guys,

It's been a while since I posted anything.

Just wanted to let you know:

Last Tuesday, I had my regular quarterly checkup at the Montreal Heart Institute pacemaker clinic. My electrophysiologist told me that the Energizer Bunny was just about running out of juice. Packman had been with me since May 2010. Monday morning, I was on the table, getting a new little friend (name suggestions are welcome).

Because of my advanced years (...

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Heart fluttering at the exact same time everyday

Hello everyone, I recently got a pacemaker about a week ago for my heart stopping causing me to pass out, and I've been feeling a flutter in my heart at 11:42pm everyday. Should I be concerned ? Have you guys felt this too? 

Thank you so much everyone for helping me feel better about my daily flutter at the same time each each evening. It was so helpful in such a lonely COVID Time. I have felt so sad with my pacemaker and although grateful for science, I seem to be crying...

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Spider Veins Over Scar and Leads Moving

I had a CRT-D implanted mid November. In the last few weeks I noticed spider veins appearing over my scar.  Is this normal? Is there anything I can do to get rid of them? They're very unattractive and I typically wear tank tops during the summer months.

The last couple days I've been having aching pains on the left side of my chest as well as some tenderness. This morning I felt the bottom edge of my implant and it feels different like one of the leads has moved and is now...

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Battery depletion

Hi guys I'm having issues. In Sept I was having numerous palpitations and skipping beats. I went to the ER. They said seems fine. The pacemaker rep came to the hospital and interrogated thoroughly. At that time he said I had 5 years on my battery. 1 month later they said I had 2&1/2 years on my battery. Because of the ongoing heart rate issues I had to go back yesterday and they now tell me I have 6 mons and they want to replace the battery? How could I go from 5 yrs left to 6 mons in...

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new

hi all, 

I just got my Medtronic implanted last week and I'm adjusting to this new cyborg feeling. I'm 31 and experienced Sudden Cardiac Death (SCD) while sleeping on the beach with my partner. I ended up having open-heart surgery for a myocardial bridge unroofing, but my EP was still worried that I could be at risk of another SCD episode....after a long failed battle with insurance, who denied the dr. recommended subcutaneous ICD, I now have the transvenous ICD/PM. It...

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Post PM soreness

Hi

I had my PM fitted 3 weeks ago in 3 weeks time I am going back for a AV node ablation which means I will be solely reliant on the PM I'm feeling a bit jittery about it probably a normal feeling but just need some reassurance from anyone that has what they call a Pace and Ablate if anonee can help I would be grateful 

Also how long after PM fitting should I still be feeling discomforting around the arm  and shoulder area where the PM Iis it's on the left side&n...

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Pacer and VO2 max

I have been running (jogging) and am trying to increase my endurance and pace so that I can complete a 10k. I have found running late in life, after I got my CRT-P about 18 months ago due to a heart rate of 30. I was in atrial flutter, had an ablation which resulted in a Wenkebach. I have lost 40 pounds and run/jog 3-4 a week. My EP refuses to increase my maximum HR above 140, based solely on my age.I have had a stress test and show no signs of ischemia.  I use a Garmin watch to time my...

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Is anyone paced on the AAIsafeR pacing mode?

Hi,

My heart block was intermittent grade 2 at implant with no sinus node issues. However my PR interval was quite long. It may always have been we will never know.

I am anticipating that at my first appointment today that if I am spending large amounts of time without grade 2 heart block I may still be ventricular pacing due to the longer (not unsafe) PR interval. 

I read the following in a paper,

"The most sophisticated approach yet available for a...

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Medtronic

Hi, Just wondering if anybody else has had trouble with there Medtronic machine. I had my pacemaker inserted in October and my Medtronic looks like it's stopped working, the green light is not on anymore/ I rang them and they said it takes a couple of day to see when it stops working but they would put in a request for a new machine.

I haven't heard from then at all and I have not ever had any feedback from them or Dr's since having my pacemaker inserted,  can anyone te...

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Sharp pains in heart months after placement

Anyone get sharp pains in heart almost daily months after getting your pm? Should I be worried? It isn't angina. Its sharp and  right inside the left nipple.

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Mall store security sensors

I was at the mall today and was setting off store alarm sensors left and right. I've had my PM about 2 weeks and no one had previously mentioned anything about it, just airport issues. Should I not be going through these sensors at the store. Thank you so much. 

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You know you're wired when...

Your signature looks like an EKG.

Member Quotes

I feel so blessed to have this little gem implanted in me. When I think of the alternative it is quite overwhelming sometimes.