Most Recent Messages

Heart anxiety

Hi guys,

I had my pacemaker implant back in October 2018 so I'm now 3 years into life with one. Recently I was admitted to hospital after passing out after 5 minutes of steady cardio. When the paramedics came they said my heart was running fast and took me to rescucitation, they  checked me and placed me in majors. After a few tests they found my pacemaker was fine and that the medication I was on was causing my tachycardia. They checked my electrolytes and saw magnesium was sl...

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Phone

Hi, 

I accidentally put my phone next to my pacemaker, i mean I actually touched my skin with my phone on the pacemaker incision and Im getting very anxious because I did it once again, does anything happen to us or the pacemaker or our heart when our phone is that close??? 
 

thank you 

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New Member

I had no warning of needing a pacemaker other than knowing my pulse wasn't right most of the time for the past few months.  I was a fool for not going to get checked out sooner.  My abnormally slow pulse was discovered when I went to get treated for a blood clot.  I don't know if the clot is related to the cardiac block, but I guess it doesn't matter now.  I'm grateful for this device, and it's working well so far.  What I can't get over is tha...

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Small infection treatment

Hello Everyone, Had my PM inplanted on 11/1/21.  Small pimple like spot on end of incision which looks like it might be infected a bit.   Red around edges, hurts a bit and it wasnt before..  The post op instructions  stated no creams or ointments.  Am I save in assuming they meant right after surgery? Since the surgery strips are off, sutures are gone, and wound is closed, would it be ok to put a dot on antibiotic ointment on it?  Has anyone else h...

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Nightmares

I've been having occasional nightmares since getting my pacemaker 3 weeks ago. They are very surreal. Part Bionic Woman changing into the Matrix (literally the whole dream pixelizes) when I think about the device failing. I know it is triggered with the knowledge that my heart would not beat sustainably on it's own if it fails. My rate had been down to the 20's. Then of course I can't get back to sleep. 

 

Roughly how long are people taking to mentally ad...

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Replacement Delayed

I was scheduled to have my pacemaker replaced this Friday because I am on the last 3 months of the battery and he also wants to put in a third lead, but he wanted me to get an echo and Stress Test this week, both of which came back abnormal with an EP of 39% and apparently possible blockage somewhere that showed up on the Stress Test (haven't seen the results yet).  Suggested I contact a cardiologist to do a heart cath.  All this was done through his NP because I never see...

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Update on heart tests

I had cardiac biopsies, tested my RV lead to make sure it is functioning properly and will administer a shock (lead my have a fracture as my voltage is low and variable), did right heart cath to check pressures in chambers, and inspected valves.  

12 cardiac biopsies have been sent to 3 labs.  One specific lab works on genetics.  One lab will corraborate with the biopsies taken a few years ago through a German study.  My EP is excited and hopefuly they will find out...

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Gratitude

Hello all.  Today is Thanksgiving in the US so I'm taking this opportunity to express my gratitude to all of you here, for all you do to support others and share your knowledge and points of view.  You've touched the lives of many people.  Thank you.

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Scared, battery is low

I am getting scared.  I have a St Jude dual chamber ICD, pacing artial 90% ventricle 20%.  SSS, right atrium defect.   I live in the US.

This is my second, soon to be 3rd pace maker.  I was implanted in 2011 with this device... I have been told I had 2 years, 6 months later, 1 year,  2 months later 10 months before I run out of battery.  It is dropping quickly.  Mathematically I am at less than 9% battery life.   They (Kaiser Insurance)...

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MRI

Lenox Hill Radiology in Lynbrook called and told me cannot perform MRI of right hip due to Biotronic Endora 8 DR-T pacemaker but they did MRI's last year.  Does anyone know of a MRI ctr in Nassau that will perform that MRI with my pacemaker?

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TENS unit safe?

I'm about to start PT. Do I need to go through the TENS unit drama or are they ok to use? I have a pm not an ICD. Called my cardiology office... as usual you need to wait 7-8 years for a callback.

 Thanks.

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Good night of sleep

Continuing the theme of using this exclusive club as my form of support...

The last month has been pretty tough as far as sleep goes. I didn't have sleep issues pre pacemaker install. However, post procedure...I have been waking up (sometimes several times a night) with "thud thud thud" pounding heart rate. Most of the time its when I lay on my poaemkaer side, probably has nothing to do with anything, but that's when I notice the issue. 

Also, I believe...

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What are normal Heart rate fluctuations with Pacemaker?

I've been a cyclist for years. 6 weeks ago I had an ablation done and a Biotronik pacemaker implanted. My condition before this was described as 2nd degree AV block, bradycardia, chronotropic incompetence, SVT and atrial flutter.  Symptoms were increasingly difficult getting my HR up when exercising making me feel short of breath, problems also when sleeping, feeling fluttering in chest and shortness of breath (sensation is kind of like something suddenly obstructing my breathin...

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New pacemaker

I got a pacemaker a few months ago. Since the beginning I was very sluggish. Went to the dr to have it tweeked. For about 3 weeks I had a ton of energy and felt great. Now I am back to sluggish and nap taking. I am 68 and have always been rather hyper. Is this to be expected or do I need to see the doctor again. I loved the energy level after the tweek. My husband said I needed to go back and have untweeked. lol Any suggestions. I am new at this and have no idea what to expect. Thanks in adva...

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Still some soreness.

I had the pacemaker fitted 6 months ago.  It took some months before it felt comfortable. I started playing golf with no after effects.   During the summer it felt more comfortable wearing light clothing.  For the past 2 weeks I have had some soreness around the site of the pacemaker. Sometimes the soreness feels like clothing is rubbing across the scar, then the site is sore to the touch.  Does anybody recommend a covering or pad over the site, and would it benefit&n...

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Covid Vaccine

Hello,

I was wondering if anyone else may have experience changes in their hearts after getting their two Covid vaccinations.  I went in for my 6 month check up with cardio doctor and when he looked at my echo he said he was concerned to see my right side severly enlarged.  Up to the point I have had a complete heart block due to Sarcoidois in my heart and all LV problems.  I have read how some younger people are having heart issues after the vaccine.  I go to see hi...

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Emotionally Struggling with sick sinus syndrome

Hey team, 

As talked about in a prior post, I had a dual chamber pacemaker installed in July, I'm 44 and pretty healthy to say the least. 20 years in the army, runner, weight lifter, 6'5" 205. I started feeling my pauses when I was around 24 yuears old. It took cardiologists (several) years to figure it out...I was diagnosed with being dramatic, too much caffeine, too much alcohol (never drank either more than my peers), anxiety. Finally in 2019, a cardiologist got sma...

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Pacemaker clicking

Boston Scientific U228 implanted dec 4 2019. When I sit at my desk I can hear it clicking (mechanical sound) Not all the time but lasts for a few minutes. I recorded it - I can hear two distinct sounds - the valve gushing sounds and the clicking sound. Curious - Is that normal?

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Flip Flops felt during recovery

Hello PMC! 
 

Hope all of you are blessed and doing well. I was wondering if anyone has experienced a flip flop sensation while your heart rate is coming down after exercise. When I get my heart rate to 150 or a little higher I can feel it on the way down back to baseline. It doesn't happen all the time but the past three times it has, I've felt flip flops/ectopics and even presyncope. It's like OMG what is happening in my heart right now??!!&nb...

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Bottle lock, security tag remover

Hi all, 

Has anyone worked retail, where the bottle lock magnet is on the counter not far from you?  Any experience with interference from these magnets?

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You have a $50,000 chest.

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