Most Recent Messages

Cycling max heart rate

Hi all,

I'm fairly active and reasonably fit. When I swim, run, and paddle my heart rate tops of at ~140bpm. Yesterday I went on a long bike ride and my max heart rate was only ~100bpm.

Has anyone else found this? 

Read More...

Rough day

Been a tough one. Had a tet a tet with my Cardiologist today. It's one thing to recognize things are winding down, it's still another to have a professionsl whom you respect confirm it. Yeah, yeah. I know we talk about this all the time and my Cardiology team doesn't candy coat things for me...still. 

Seems I've had several more TIAs since last we met, and I lost weight for unplanned reasons.  For the novices thats transient ischemic attacks (mini strokes)...

Read More...

I’m still new to pacemakers so I’m sorry if I ask crazy stuff, but I’m scared right now?!

This entire past weekend I was feeling real crappy. By that I mean really dizzy, or lightheaded and with nausea. 
my legs also felt like Jelly. I went to the ER and had many tests run including an EKG and which all checked out fine. 
 

Well this morning, I got a call from Kaiser letting me know that on Monday which is when I was at the ER my report showed an irregular heartbeat. The lady on the phone said now I have to wait for a call that isn't for a few mo...

Read More...

Meditronic MyCareLink

  • by Choco
  • 2021-08-11 11:37:31
  • ICDs
  • 198 views
  • 6 comments

My Carelink monitor has been unplugged, no power,  for about six months -  got accidentally switched off and I didn't notice.

Today the hospital called, they'd tried to get a reading but of course couldn't.

So I plugged the monitor in and it's connected but it seems the reader isn't working. I get error message 3230 and none of the three display lights on the reader is working.

aDoes this mean the reader battery is totally flat?  Will...

Read More...

Post pacemaker/ICD implant pain

Dear Members,

Over recent months, several members of the Pacemaker Club have expressed a wish to know how many of us experienced pain following implant of our devices, the nature and extent of that pain and how it affected different age groups and gender.   

A survey has now been set up with the kind help of Club members and the link to the survey is given below.  The survey is confidential and will not be used for marketing.  All members irrespective of w...

Read More...

St Jude’s 2 Leads

Hi,

I'm getting a PM on Thursday morning. Any words of wisdom? My heart rate isn't that low, but when I sit still for too long driving, my heart rate drops enough that I start to pass out--like 40bpm--and I can hardly stay awake.  Ugh!!!

Read More...

First year Check up

Hi All, 

It has been just over a year since my dual chamber Medtronic PM was implanted for AV block 2:1.

I have some ups & downs (some off which I have queried on the forum, big thanks to Frank P for sharing his settings information)

Next week I have my first yearly check up for the device, it will take place at the hospital where it was implanted.

I am a young (ish) 39 and very much into the outdoors, activities such as cycle touring, trekking & climbing....

Read More...

Pacemaker adjustment

Hi new to pm club and have a Boston Scientific  bi vent pm. Went to see my cardiologist today and he had a Boston Scientific rep there to use the machine for making adjustment. She explained everything to me what this means what this does. Really helpful and very helpful. She would tell the doctor the machine suggests this adjustment and he would approve. It's so hard going through this but with a great team so much better I'm so blessed.

Read More...

New to Club

I am one month into have implant and having no problems. Just posting to say hi and thank all for the forum info I have spent the last month or so going over. We have all come here because of history but always nice to have advise and info from others going through similar procedures. These little units sure have come a long way since hockey puck size one speed only units of my father's day. I have an ICD/CRT unit so not pacing per se but constant syncing of my out of sync heart. I w...

Read More...

I’ve had my pacemaker almost 2 months now, I felt great last week but now I’ve had never ending nausea the last 3 days?

I was finally starting to feel a bit more normal but now I'm always nauseous for the last 3 days and I feel like I could throw up at any minute now :( 

I'm not on any medications either. Has anyone faced episodes like this where sometime after the surgery you'll have random days in which you feel terrible?

this is my 1st pacemaker. I'm 30 years old and it's for complete heart block 

Read More...

How I think

I thought I'd post about a recent experience that illustrates just how living with heart issues, including having a pacemaker since January, has affected the way I think--maybe some will get a chuckle. Maybe some day I won't be so dumb!

This past weekend I did not feel my best. I was fatigued, my body ached, I had digestion issues & therefore no appetite, I barely left my bed (except for frequent bathroom trips!) The whole time, I'm trying to figure out the problem: ...

Read More...

Jump Rope Skipping

 Is there any complications to implanted Pacemaker by skipping Jump rope.

Read More...

Afib

I have another question on my recent AFIB.   Since my HR was 81-82 most days, up from 70, I told my EP and she adjusted the PM somehow so now the HR is decreasing, at 74 now.  What I don't understand is the PM can only keep HR from dropping why has adjusting it lowered the HR?  I know I shoud ask the Dr. but it is quite complicated getting answers.  The pacing % has changed from 80/40 to 35/65% ( which is when the Dr. told me I now had AFIB).  Probably u...

Read More...

Technician adjustment

My wife is 74 and had a new pacemaker/defibulator installed two months ago. 

With the new device she was energetic, hungry, and not wheezy.

She went for her first checkup after the operation and now she is pre operation mode again. No energy and not hungry. 

I suspect the tech reset something wrong. My wife is not proactive about her situation. Therefore I cannot contact the doctor directly.

I would appreciate anyone’s thoughts or stories.

Read More...

Post- Exertional Malaise PEM

Is anyone experiencing this?

 "Post-exertional malaise (PEM) is the worsening of symptoms following even minor physical or mental exertion, with symptoms typically worsening 12 to 48 hours after activity and lasting for days or even weeks. PEM can be mitigated by activity management (pacing)."

I have been trying to maintain an exercise schedule but have been experiencing some profound 'crashing' if i seem to do too much. I am trying to determine if this...

Read More...

Twin lead pacemaker

Hi all 

I would like to thank everyone for all your help I just have a couple more things I need to know. I am due to have a operation where they damaged the av node and fit a twin wire pacemaker so that the top two chambers of my heart still beat out of time and quiver but the bottom two beat in time with the pacemaker

( can't think of what the op is called at the min ) I was wondering if anybody on here has had this done and does it shorten your life expectancy and...

Read More...

Got pacemaker 5 days ago

I just got a pacemaker last Wednesday and have been lightheaded ever since.  I was okay coming home at 6:00 but the next day through today, I am constantly lightheaded.  I think my pacemaker needs an adjustment.  Has anyone else had this experience and how was it fixed?

Read More...

After 3 months still soreness.

After 3 months I have started playing golf again.  But I still get some soreness around the pacemaker.   The scar is quite ugly, (surgeon never did needlework as a kid)  Feels as if the scar is rubbing on the top of the pacemaker.   Should  I give it more healing time?

Read More...

Sewing machine

I sew on a 20 year old sewing machine. It is electric and mostly metal parts.  There are no digital displays; not that modern.  Does anyone know if that causes interference with one's PM?  I just had my Medtronic PM implanted last week and am finding this forum very helpful.  

Read More...

Twin lead pacemaker

Hi all 

I was wondering life span with a twin wire pacemaker also can you live a normal life or do you have to be careful what you do ie can you go swimming or walking I'm only 57 years old and have had a new mechanical heart valve now I need a twin wire pacemaker done for my af the ablation operations I have had,have not worked I would appreciate any advice off someone that has had this done 

Thankyou Haz 

Read More...

You know you're wired when...

You run like the bionic man.

Member Quotes

A pacemaker completely solved my problem. In fact, it was implanted just 7 weeks ago and I ran a race today, placed first in my age group.