Most Recent Messages

New to the club

Hello, 

I am new to the club and I guess just wanted to introduce myself and share a bit of my experience. I am 37 and I live in Ireland.

I had my pacemaker implanted on 13th April 2022. This was the outcome of 6 years of syncope seizures, 18 months with a loop recorder and finally a significant syncope episode. At this time my heart paused for 5 seconds. Upon admittence to hospital I was on a telemetry monitor for 3days, my heart was still showing dips and pauses at times. T...

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up date to my removal of eye floaters and blurry vision

I understand that many feel this topic does not belong on this site.  Since the blurry vision is subjective does this happen from a fast heart beat.  Or because of the blurry vision does it cause the heart to beat faster to pump more blood into the eye.

None of my doctors will commit to these either.

Did have the 4 week checkup after the removal of the floaters.  healing so well will not to see the retina doctor  for 6 months.  He did say if have vision&nb...

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Waiting in ICU for them to put pacemaker in

Hi,

I'm scared about the surgery and recovery but so glad that I found this site on the day of my surgery. I'm a no symptom recipient. I feel like I've always felt. I'm not sure of the correct medical name for what I have. The non-medical description is that my heart rate was going down in the 30's and sometimes would 'drop out'. Mine is a duel chamber. I went to the ER with stroke symptoms. Got admitted and had head/neck MRIs to check my blood vessels....

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Post implant

this is my third pacemaker in almost 30 years. I am 10 day post implant for my new device. I still have swelling and pain that wakes me up at night. It also is difficult to turn my head, it feels like the skin is pulling. I know that the doctors had to go through a lot of scar tissue and scaring and that will make healing difficult and longer than before. But this is waking me up at night, so I'm not sleeping well. I think I need to give it more time and just relax and let it heal, but I...

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My son

My son got his pacemaker when he was just 9 years old. Now he is 19 years old. Anyone know anybody who got theirs this young????

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New to Club

Hello, everyone. I am new guy with new lease on life. Two weeks ago had a Heart Block. AV. New PM in chest. I have little info about experience with my new device. 70 years old with no prior history of heart problem. I want to thank you all for being in this club and sharing your journeys with me. Thanks Slowbeat.

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tens

Thanks for your replies.  I am going to be on the safe side and will not use the tens on my back.  Why don't chiroprotors know this about pacers and not use them on a person who has a pacer.   

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Bowling

I have been an avid bowler for over 40 years.  Bowling 3 to 4 times a week. I noticed my speed when bowling went from 14 to 8 miles per hour.  Knew it was an issue with my heart based on my heart rate was always under 50  Had a BS Accolade dual chamber put in on 5/20.  Excuse me if termanology isn't correct - new to everything.  Had a stent put in on 4/06.  Heart conditions started in November.

I have a few questions about getting back to bowling....

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tens

I have started going to a chiropractor for some lower back pain, the woman chiro used a Tens on my back, up and down, I had on a rather thick sweater and asked if I should take it off and she said no that the tens is quite powerful and will go right through the sweater.  I will be going back for a few more treatments of non surgical decompresson and wondered if that Tens could do something to my pacemacker.  So I called the pacer clinc where I go to a couple of times a year and aske...

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Replacement pacemaker choice

For all those using the NHS, I would just like to remind you that there is some choice. 

You can choose which make of  pacemaker to have within your physiological parameters and compatibility with your existing leads and what the hospital has in equipment.

For myself, I am listed (10th June)  for what I hope will be a super, Boston Scientific ( no groans, please!) which I hope will help with exercise initiation.   

My cardiologist...

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Scar treatment

Since I have had 3 pacemaker operations since January 2020- 

I now have a new third scar along with 2 smaller scars. Previously I used Bio oil. A friend recommended Dermatix silicone gel for scars. I wonder if anyone else has used this or something more effective than Bio oil?

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Changing EP

I have had my PM for several weeks now and I’m thinking of changing to a different EP.

Once my primary started the process I felt caught up in the current and was just along for the ride, but now that it’s done, I’d like to explore other options.

The EP that did the surgery is part of a particular hospital that seems to be old and antiquated, not to mention that it’s some distance from my house.

The Doc. himself is good but I’m a little tro...

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Transplant update

16 days after my heart transplant I shall be going home from hospital today. My temporary pacemaker wires have been removed.

At which point I will not really qualify for membership here and hope never to qualify again although that could always change.

 

This forum is incredibly useful and supportive and I can honestly say that living with wires for the last 4  years has been made so much easier for being here.

 

Thank you all. 

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Electric Blankets

Hi, I have a saint jude ICD I was wondering if anyone here knows if an electric blanket would be a bad idea?   I stay cold all of the time and used to use one year round but have been too scared to try since my ICS placement.  I have a lot of other conditions as well amd the cold really affects my quality of life.  Cold air is like needles to my skin. 
thank you!

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White noise

I got my 3rd pacemaker may 21. The last 2 check ups nurse mention white noise on reading. Nurse stated leads should have been changed. My next appt I asked doctor he said they are ok. My leads are 21 years old. Anyone hear of white noise?

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Overhead power lines UK

I'm sure this has been covered in previous posts but I wanted specific info regarding my circumstance. I have no knowledge or experience of electricity or electromegantic fields so information on the internet is difficult for me to understand!

We have a static caravan which is situated next to a farmers field. Directly behind us is an 11kV overhead power line( I think) on a wooden pole which goes along the back of the site. The lines must be 5m above ground I'm guessing but my b...

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Echo Question/thoughts

I would like to get a little feedback on my situation. I have had my PM for 35+ years and seeing the same cardiologist/EP since 1998. I think that I had an echo sometime back around 2006-08, but not exactly sure. The result was at least 50+ back then, but I don't have my records in front of me. My point is that it was in the normal range. My cardiologist just never sent me for another one and it never occurred to me that I should ask him. So I didn't get another until last year (2021)...

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Compression boots for circulation

Has anyone here been told not to use comprssion boots because of their pacemaker? I assume it would be fine because the legs are not next to the pacemaker. Hoping they might help leg circulation but its a stab in the dark.

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Abbott Aveir dual chamber leadless pacemaker

Hi group,

I"m scheduled for a dual implant of the Abbott  Aveir dual chamber leadless pacemaker this coming Wednesday.  I'm curious if anyone on the board has participated in this clinical trial and relate their experience so far.  Regardless I will report back with short term and medium term results.

Thanks

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Biotronik Battery

I had my battery changed last week Thursday from St Jude to Biotronik with a home monitor.  My St Jude leads are fine.  I have been hearing tiny clicking sounds which are more audible when I am lying down.   Not all the time, only towards the end of my sleep, and not so much when I am standing up.  I stopped using my home monitor just to observe but the crackling sound is still there.  Thanks guys.  It's a great feeling to have you out there.

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You know you're wired when...

Bad hair days can be blamed on your device shorting out.

Member Quotes

It is just over 10 years since a dual lead device was implanted for complete heart block. It has worked perfectly and I have traveled well near two million miles internationally since then.