Most Recent Messages

Thank you for your support

Hello all - I'm sending a simple message to thank you all for contributing to this site.  Words can't really adequately express how much help you all are providing.  I have been on your site since early 2018, and can't imagine how I could have adapted to life with a PM without your assistance.  Thank you.

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New

Hi Alex here 28 Y/O Female 

I just got done with a month in a half hospital stay. I went into the hospital with Tachycardia 3 days into stay I went into long QT Torsades De Pointes Ventricular Tachycardia. I was then moved to the ICU for stabilization. When in the hospital i contracted COVID and therefore had to wait for a negative COVID test before a pacemaker. I was moved to a COVID unit in the hospital and eventualy had Pacemaker inplanted Medtronic dual chamber. The&n...

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Pacemaker dependent

Hi, new here, just found the group. I had a pacemaker installed almost 2 years ago. I was involved in a car accident that resulted in my Tricuspid value tearing. As a result a growth started to form in my Rt ventrical around the valve which started to cause serious PVC's which was found after a life scan. I was told I was lucky they found it and that usually these things dont end well. Anyways, I had some complications with my distolic rate when they took the growth out and replaced the v...

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St. Jude device check

A week ago I had a very strange visit in my cardiology office.  I questioned to myself that it had been scheduled on-line without consulting me but I see this group so infrequently that I assumed it was routine and it was not.  5 1/2 weeks after my nighttime device check I was summoned to their office to be told from their device technicians that there was something wrong with my pc.  If I had known this was not routine I would have asked someone to go with me to be "my ea...

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Palpitations

Hi there, I had a CRT-D inserted 2 weeks ago. Post Op has been smooth until yesterday when I started feeling dizzy and had slight chest pain, with some crazy palpitations. Has just happened again in the last hour. Can anyone give me an idea if this is normal. My BP is low, usually around 90/70 but during these spells rises to around 130/85. Would really love some input, feeling very alone and anxious. 

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New Member - Sitting in Hospital Post Op

Hi Guys and Gals,

 

im a 38 year old male that was diagnosed with 3rd degree AV block and just had a pacemaker installed.  I've been in denial for a few days but want to live a long life for my beautiful child.  I'm literally sitting in the hospital bed typing this.  I'm glad there is a support group out there and I hope to learn more about living a full and happy life.  I just hope I can continue to do HIIT and weight lifting. &...

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Cost of a HEART ICD device in the Philippines

Anyone know the cost of a ICD pacer/defibrillator in the Philippines? I would like to know the cost of one and the Manufacturer. It would be a 2 lead device. I have a Saint Jude (now Abbott labs with the Merlin home monitoring system. It is not supported in the Philippines so I may need to do a replacement to one supported there. 

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Still having symptoms

I've had my PM for almost a year to treat bradycardia.  At my 3-month check-up, they adjusted my pacer to a slightly higher threshold for day time because I still felt syncope symptoms coming on (dejavu feeling, tingling in arms, nausea).  My doctor suggested putting me on beta-blockers as well, depsite the fact that the drug slows heart rates - this made me nervous so I declined and decided to see how the PM adjustment would go.  Well, I'm still having symptoms, even w...

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Redness on old scar

Hi All,

My pacemaker is 9 years old, likely to be replaced next year.

I've never had any issues with it but i woke up this morning with slight redness at one end of my scar. It looks like perhaps a little red bump and then red around it like when maybe I have scratched it or got a spot that broke. 

Should I speak to my GP about it or just keep an eye to see how it goes? I was so aware of infection when it was new but not sure if i need to be concerned now?

I a...

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ICD

I am new to this site. I have had 3 major heart surgeries since 1994.The last time was 12/18 when I han my mtal aortic vaive replaced with procine , also my tricuspid and mitral valves. difficult recovery. have had a pacemaker since 1994 .and of course battery changes along the way. Now I feel pretty good. On Entresto. The EP wants to put in an ICD .My EF is 22. I am 77. My feelig is say no.I hear depression is common after. Have to make a decision soon. I would like some input  thanks i...

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Newbie

Hello!! I am scheduled for a pacemaker on Thursday! I am 51. I have been trying to get in shape for several years-finally found out why I was failing at any strenuous exercise( sweaty and felt horrible pounding in chest/neck). According to my stress test, my heart rate did not get above 50...I am very nervous, but hopeful. I was hoping for some tips on post op sleeping, pain relief, etc! Also, will the pacemaker help the pounding feeling? Thank you all so much in advance!!

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Heart rate monitor

Any recommendations for a fitness watch that will monitor your heart rate, also blood pressure would be a nice option on a watch,Garmin, Timex etc. I have a Fitbit that does not seem to be very accurate , I would like to upgrade .

 

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Skip or Double Beats

Hello I've had my pacemaker one year now, and I get sharp skip beats.....is this normal?

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METRONIC PACEMAKER

IT'S BEEN QUITE AWHILE SINCE I HAD A PROBLEM.  I HAD MY PACEMAKER INSERTED 12/2018. IT TOOK ABOUT A YEAR TO 5/2019 WHEN MY SURGEON. CORRECTED MY MEDICATION AND TWEEKED MY PACEMAKER TO A LOWER PULSE.  I THINK I'M SET AT 80.

I WENT TO CA. FOR A YEAR AND GOT A CARDIOLOGIST OUT THERE AND IN DEC. OF 2019 I HAD AN EKG AND ECHOGROM ALL OKAY.  I RETURNED BACK TO NH IN JUNE. WHEN I GOT ON THE SCALE I'M UP ABOUT 12LBS,SWELLING OF STOMACH HAS BEEN MY CONCERN (GROTESQUE)&...

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Pm settings

Is there a way to access Medtronics web site and check what your pm is set at.

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Blipping Arlets

Good day friends im planted  device in 2009 re implted again in 2015 from 2019 October started giving me arlets ,re tuned and setted again have 3 this year last one 20th been to the cardiologist in our counrty stated he has picked up erythimia adjusted blood pressure treatment is there perhaps someone who ever found her/him with same problem like mine ? 

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Thankful for this group

I am so thankful I found this group. Learning so much & it helps to know that there are others who are walking this path of a new normal. I am 59 was active & healthy until 2020.

I got my Boston Scientific CRT-D which I have named "Josie" (my grandmothers name she lived to be 91) on August 3, 2020. Never had any heart issues until March of this year.  After 2 negative COVID tests & 1 negative antibodies test, 4 months with a life vest, 4 mo...

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Pain after 3rd pacemaker replacement

I am a gal who is 78 yrs. old and on July 28th I had my 2nd pacemaker replaced with a Medtronic MRI Surescan pacemaker.  After my 1st & 2nd pacemaker surgeries, I had minor incision pain for only a few days.  This third surgery has been very different.  I have extreme pain that feels like something is tugging on the incision.  The first two pacemakers used the same vertical incision, but this third one is horizontal and located adjacent to the previous incisions. ...

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St. Jude Defibrillator and pacemaker

Hello everyone, I had a St Jude Defibrillator and pace maker installed in Nov 2014. Never had a issue until yesterday. I was just at the cardiologist last week and checked my Defibrillator and stated I have a year/year and a half of battery power left. Yesterday I had a vibration when I sat down and thought it was the phone I sat on. Today it went off twice. Lasted 6 seconds and then after 2 seconds it vibrated again for 6 seconds. Called my cardiologist and he just told me to come into his o...

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Day 3

What a year, 2020.  Day 3 with my new pacemaker.  Bradycardia.  Bundle blockage.  Still not sure what that means.  I have 2 leads.  I'm feelling pretty good.  I felt a little light headed and dizzy yesterday but today I'm feeling pretty good so far.

I'm glad I found this forum because I suspect its going to be a good resource for information about my new normal.  Sounds like there is a lot to know about this device and my health.

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You know you're wired when...

You always have something close to your heart.

Member Quotes

As for my pacemaker (almost 7 years old) I like to think of it in the terms of the old Timex commercial - takes a licking and keeps on ticking.