Most Recent Messages

Post Message!

A NEW MEMBER

Hello to all, my name is Peter, I hail from yorkshire in england. I had my pace maker fitter on friday 10th 0f March, and am now rid of my dressing and up for recovery. I had a very low HR 40 BPM and now it is back to normal.

i hope to have many good chatters with the people on here and hope to put in some good points in my posts.

Read More...

Relocating pacemaker?

Trying to figure out if my request is reasonable and can be done safely? Pacemaker was inserted approx 2 years ago, left side close to armpit, shaving and application of deodorant, under bra strap, etc. touches it.  Exercise causes my left arm to tingle and fingers go numb, yes it’s also painful, it’s on top of fracture in rib.  Asked to have it moved almost from day one.  Have been told repeatedly it’s impossible, would involve complete redo?  Have tried...

Read More...

RNRVAS (cont)

A few weeks ago Penguin asked about RNRVAS (Repetitive Non-reentrant ventriculoatrial Synchrony)  something I had never heard of. But I was very interested because since my generator change in October I have been experiencing symptoms sort of like the PVC-induced PMT I had once before. I even posted about them here.

I repeatedly asked my pacemaker team if I might be having PVC-induced PMT, and was repeatedly assured that with my settings it was "impossible."

Th...

Read More...

iPods and headphones

Does anyone use either iPods or wireless headphones with their pacemaker. I'm new to this. Got my PM in Jan. Still adjusting and trying to learn all the "don't s". 
 

Read More...

MRI with Pacemakers : II – 3T-MRI with Dual Chamber Leadless Pacemakers

In Mid March 2023, I had 3T-MRI scans with and without contrast on the brain then on the abdomen. The former was successful but the latter had failed due to excessive motion.

The MRI scans were done in the radiology department of the same hospital where I had my implant. When I arrived at the hospital, I was surprised to find not only two research representatives from electrophysiology department were there but also the Abbott engineer who is responsible for the clinical trial.  Bu...

Read More...

update doctors answer to my results from the last blood test

Saw the Acpuncture  doctor to talk over how i should procede , the results are in  previous  forum below.  She was amazed that the C-Reactive Protein dropped so fast 3.06-1.48.  As when i had asked for a blood test for 30 days after the first one.  She said would not change that fast.  So will continue taking the Algal Oil , 2 per meal until my remote transmission on March 21.  Would have been on that for the past 6 weeks.  Than 1 per meal&nbs...

Read More...

any help or advice would be great, getting fed up

Hello Again,

I am looking for some advice/ knowledge please. 

For about 3 months now I have been feeling bad, I am extremely tired, lacking energy and motivation to do anything, and I have had almost constant headaches throughout this time aswell. 

 

More recently a few weeks ago, my legs began to ache and really hurt. This pain gets worse when I move around, and nothing seems to be helping the aching and pain. 

I feel weak and tired all...

Read More...

Newbee

Hello folks... I'm a 67 year male in pretty good physical condition, and recently ... this past Tuesday.. 3/14/23 had my PM implanted. A Medtronic device.
 

I always had a slower than normal heart rate 48-55 most of my life. I guess getting older finally caught up with me and the symptoms associated with bradycardia set in. 
 

it has been only two days ... I do feel better... my energy seems to be coming back.. BUT... I do experience waves of ligh...

Read More...

MRI with Pacemakers : I – Background

This and subsequent posts are only for people who want to do MRI and also want to understand the risks and the various details of MRI.

I had a pair of Abbott dual chamber leadless pacemakers implanted in September 2022 and just had 3T MRI brain and abdomen scans in March 2023. The pacemakers are still in clinical trial.

MRI in people with pacemakers conjures up an image of a life saving, delicate and sensitive metal device placed in a very strong magnetic field. This raises seriou...

Read More...

V tach, Semi Vtach, Pre Vtach?

Almost 60 year old now, When younger , did commute year round 4 years never missed a day. Also did 4 long distance  rides with loaded bike, biggest one was 8000 miles Alaska to Boston.  Also did Ironman triathlon, marathons, Mt Washington hillclimb, etc. Total lifetime bicycle miles is approx 55,000, with a few years/periods totally off the bike due to marriage/work/kids/etc. When I am riding, I stack the miles on. 

For the past 23 years have been riding hardboo...

Read More...

Upper endoscopy or co.onoscopy

I will be due for my upper endoscopy in early 2024. With a PM, is it safe to have the procedure done at the Doctor's GI center, or should it be done at the hospital as an outpatient?---in case the unthinkable happens, the resources are closer.
 

I had my pm mplanted in February and am a little nervous.

Read More...

Mamogram

How soon after pm placement is it ok to have a mamogram? 

Read More...

BRAVO test for acid reflux

Has anyone had a BRAVO test?  It's a GI test to check for acid reflux. A capsule I'd put on your esophagus to measure acid reflux. The capsule falls off in 48 hours and is eliminated.

or have you had any other tests for acid?

Read More...

Anxious

I'm set to receive my pacemaker in a couple weeks.  I just underwent a six-hour ablation procedure that was just unsuccessful.  They told me my heart has so much cardiomyopathy there just isn't anything else to do.

im scared. I'm 51 and have been dealing with heart disease since my early 20's.  I feel really close to death.  Is this normal?  I don't know how I'm supposed to feel.  What happens if pacemaker doesn't work for me eit...

Read More...

Moms with pacemakers? Looking for advice for comfort when managing my LO

My Medtronic CRT-D is not submuscular unfortunately and I am quite petite framed, I have been struggling with holding my son during feedings or just carrying him as I get pains in my shoulder, and he keeps accidentally faceplanting onto my device (poor little guy). I also have a port under my skin on the opposite shoulder which he has accidentally bonked against during crying bouts.  I have resorted to wearing multiple layers and sweatshirts to help cushion him if he does faceplant on me...

Read More...

Update

Hey guys! It's been years since I've visited or posted on this page. I figured it was time to come back and pay it forward with my experiences thus far. I got my pacemaker almost 11-12yrs ago now at the ripe age of 23yrs old. I have finally triggered for replacement so Ill go from St. Jude Accent to whatever they are now? Boston Scientific? I don't know, but hopefully in a month or two here I'll have another generator that'll last another decade. I'm very lucky in...

Read More...

Pacemaker protector for seatbelt

Can anyone recommend a pacemaker protector when using the car seatbelt? There are so many brands and options. Wondering if anyone has found a really good one and where I can order it.

thanks in advance

Read More...

heart rate too fast

I had my pacemaker fitted in May 2022 and it only cuts in when necessary as in if my heart rate drops too low, but I feel as though generally my heart rate is too fast even when doing normal walking. Any thoughts?

Read More...

Anybody Had an MRI with a RECALLED Abbott PM 2272

I am the "proud" owner of a PM 2272 that is on the recall list of PMs that possibly were not glued together using the correct process AND I am going to need an MRI done.  Anybody had an MRI done with an implanted RECALLED PM 2272? My concern is that heat buildup from the MRI on the PM 2272 might cause the possibly incorrectly glued parts to loosen and leak.  Abbott says don't worry, they are monitoring for evidence that it is leaking.  However, since I pace 98% of...

Read More...

Long Term Care Insurance

Anyone tried to get long term care insurance with an AFib diagnosis and a pacemaker?

Read More...

You know you're wired when...

Friends call you the bionic man.

Member Quotes

Life is finally better.