Most Recent Messages

COVID Vaccine

Hi! I haven't posted too much in this forum but have totally appreciated the support provided. So glad to be part of this group!

I have a chance to get the Moderna COVID vaccine - has anyone in this group got the vaccine? Any thoughts/feedback? I have reached out to my cardiologist but haven't heard back. Look forward to hearing from some of you on this.

Thanks,

Champak

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New to Pacemakers

Hi everyone!

I am a new patient recently diagnosed with Bradycardia and referred for a Pacemaker. I can't get in for an Echo until February and after that the doctors determine when they will see me and that probably won't be until March.

Meanwhile I do my best to cope with waking up 3 or 4 times a night with difficulty breathing. On my Holter test I had episodes where my heart would stop for 3-6 beats with a heart rate down to 30.

I assume this is not that dramatic...

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Rate response setting

Hi!!

I've had my pacemaker for 1 year, I'm unsure as to whether I need my settings looked at, or I just need to improve my fitness 🤣

Is there an easy way to tell if 'rate response' has been activated?

I gather that helps keep the device in tune with what your body needs through exercise?

Any feedback is welcome,  with the way things are, all outpatients appointments are waaaaaaay behind at the minute so a bit of advice would be great!!

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Skipped and ectopic beats

Hi. Had my dual chamber PM for just over a year and had no problems. But the last 3 days I've been having loads of skipped beats. The pause seems to last for ages. Also quite a few eptopic beats as well. Palpitations are quite strong just to add to the fun. Just wondered if anyone else has suffered from the same. Mine was fitted for AF and flutter. Will add my BP was a little high as well. I know the PM tends to let the heart do its thing then kick in when it feels the need but...

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Increased level of junctional beats after upgrade to 3rd lead added to Left Bundle Branch

I recently (12/9/20) was due for a replacement pacer and was "upgraded" from a Medtronic 2 lead Revo unit to a Medtronic 3 lead Serena unit. 

The main reason I went for the 3 lead unit was the increase in pacing in the ventricles with the 2 lead Revo unit. I decided to get what I hope are the benefits of synchronized vent pacing over time instead of fighting cardiomyopathy later on- my choice. 

Regardless, a bigger issue I had prior to this upgrade was junction...

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Research Project for University of Bristol

Dear all, 

I am a student at the University of Bristol in my final year studying Geography. For my final year dissertation due by the end of March i have picked the topic: "How is the ‘natural’ human influenced by the cybernetic enhancement of the pacemaker?". 

For this research project, i require a first hand experience from individuals like yourselves who have had pacemakers inserted. The only requirement is one must have had the pacemaker fo...

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heart palpitations

Hi folks, i have these palpitations that i feel at times. It comes and goes. ive had my pacemaker for over a year and half. the first 5 months after i recieved my PM i really never fely my heart palpitate. Until i had my first anxiety attack and from that point on i can feel these palpitations. My primary care said i have generalized anxiety and put me on 10mg of lexapro to see if that helps. It helped somewhat but i feel these palpitations and i really hate this sensation. Im seeing a n...

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For anyone to answer

After your pm or icd surgery did your dr give you breathing instructions, like yoga or such to help you breathe better?

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Shortness of Breath on starting to exercise

Just thought I would pass on some information to all those people that have shortness of breath starting their exercise.

I mentioned to my cardiologist (one of three) that I was wondering whether my hypertrophic cardiomyopathy ( thickening of the heart muscle) was responsible for my shortness of breath on initiating exercise ( the heart muscle is known to be 'stiff' [lacking compliance] with this condition). The result was a referral to have my PM settings checked. Yesterda...

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PM and Magnetic Fields in RV or Camper Van

I have read the manual for my Boston Sci PM and am acquainted with the cautions and distances recommended.  But some things aren't addressed.

We have an RV that we use from time to time but want to downsize to a Class B camper van.  After a lot of online research we are finding that most vans (and some RVs) have the battery bank under the bed(s).  

Using an EF/RF/EMF meter in our RV I discovered that the only time the meter registered a magnetic field ...

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Fell on left side

So this past Saturday I went for a walk and ended up stepping wrong and fell. I landed on my left side and ever since I have been feeling a vibration inside my left breast area. I am worried that my battery or lead may have been damaged and am waiting to hear back from my doctor.  Has anyone experienced the vibration sensation? What were you told it was? 

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Mom's New PM

So glad I found the "club" and have seen some great info here.  My Mom is 85 and has always had a heart rate in the 40's without issues.  She started having some AFIB so when her heart rate would go up to around 100, she would feel it and get shortness of breath.  she was also having some pauses with the AFIB and her heart rate would dip into the 30's and she would feel lightheaded.  She was in and out of the hospital many times before they finally decide...

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Pacemaker

I'm trying to decide if I should go ahead and get a pacemaker installed.

I am a 72-year-old guy with a history of bradycardia. Cardiologist is recommending a pacemaker. Would be nice to hear from other pacemaker patients.

BPM is usually about 35 to 45. I do exercise almost every day, heartbeat gets up to about 50, and I feel really good at that heartbeat rate.

Cardiologist has shared that a pacemaker would be set At 60 BPM. I'm wondering if anyone out there would be...

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Heart pain

Hi

I had a pacemaker implant on 10th November due to grade 2 heart block.

I was waiting to see if it was a temporary thing but for the fourth day in a row I've had an ache in what I presume is my heart. 

It is not unbearable but when resting or at night it is like a tooth ache and I am needing to take painkillers to get to sleep 

I know I need to speak to the cardiologist but is this something others have experienced? 

Could it be healing still...

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Icd causing palpitations?

I had my second ICD change last year.

I just feel as though since it has happened I've just had problems with it since.

My second ICD was so good it lasted nearly 7 years and I had no problems at all.

Anyway.  Since having it changed I was really ill. And they couldn't figure out if it could be Covid or an actual infection from the ICD.

Then after a couple of months later my ICD started beeping randomly in the morning.  I had to get it checked and the...

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Tachy RHR after PSVT ablation-3weeks post procedure?

Hey all,

I had an RF ablation for PSVT about 3 weeks ago, was told it was a "success".  The first 4 hours my RHR was 60-80bpm which was great then at hour five it climbed to 110.  My RHR has remained above 100 often around 110 since the procedure.  I cannot take rhythm control meds due to a very low BP and orthostatic hypotension.  Also I am still having the higher PSVT with mild exertion (like standing over the stove for ten min which you can hardly call e...

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Seeing a Neurologist?

Hello all 

I have a question since I had my pacemaker for almost 3months and I feel weird sensations from the pacemaker around my chest area like poking my EP said it's normal but now I'm feeling like I'm being stung at my shoulder and arm and it hurts it stays for few seconds and go and there was a headache over my left eye as well so my question is should I see a Neurologist ? Since I read from some comments that it might be because of touching nerves while...

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Swollen Ankles and Feet

Hi, recently joined after having a Medtronic Azure pacemaker implanted on 12/14/2020. My bio tells the story, but briefly I had gone into the hospital for an ablation procedure but during observation after the procedure my heart rate dropped to 35 or below and stayed there. It was then decided to implant a placemaker. Previously, I had Bradycardia and a PVC that occurred about 30% of the heartbeats. I feel better now, no symptoms of dizziness or light headiness that were occurring before the...

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CRT D

Is CRT D classed as "emergency" treatment as I am booked to have one in 3 weeks but with all that's happening with covid I am hearing non emergency treatment is being cancelled in most hospitals.

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27 Y.O. with 2nd Degree AV Block Type 1

Hi, all. 

In early 2020 I was diagnosed with a 2nd degree AV block Type 1 after wearing a 48 hour holtor monitor that recorded two drops close to each other one of the two nights it was recorded. 

However, I think during the time it was recording my husband and I were having an argument (around 11 p.m. when the beats were dropped). I was wondering if the stress caused by an argument could have caused this to happen and it was a one time situation and not enough to truly...

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I am a competitive cyclist with a pacemaker!