Most Recent Messages

One more time - meaning of ADL and UR and what is wrong with my PM settings?

Hello!

I have a Medtronic Azure PM and am trying to configure it so that I can get back to all my physical activities again. It's been a difficult journey and my case is particularly complicated. 

I bike, run and play tennis and the PM wasn't smart enough - so we have turned off the automatic rate optimization and it's been helpful to some extent.

The problem I am struggling with (and trying to solve) is that I cannot run without stopping

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Alternative ICE Info

My med id bracelet has been on its last legs--kept catching on things.  Yesterday it caught me as I was changing my sheets and stuck me fast to my mattress.  Thought I was gonna have to amputate, lol! But bracelet is fubar'd - may get a new one.  BUT - my question is: 

does anyone have their med & emergency info on their phone lock screen?  Would that be a good idea?  I'm mostly concerned about this in event I have a stroke and...

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'Smart" pacemakers may slow progression of heart failure..

 With all the current gloom and doom re. Covid-19 ,  it is  good to read something positive about future pacemaker development. This was reported in the magazine published by the British Heart Foundation .      ( This research may have been mentioned on here before but it still makes good reading  ) :-

..............................................................

" Normally your heartbeat speeds up when you inhale and slows down when you ex...

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Lyme disease/pacemaker

I have Lyme disease hence why I needed a pacemaker 3 years ago for Bradycardia so I'm immune compromised just wondered on people's thoughts with regards to the Coronavirus situation and whether I need to self isolate?  

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Racing heart at night

I had dual lead pm for heart block and brasycardia in December noticed since then waking up occasionally with reaching heart or what feels like it. Am very anxious so could that be the reason. Thank you 

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Upcoming battery replacement

Hello all, 

Wow! Has time flown by... I first joined this club when I got my pacemaker implant in 2011.

I am due for battery/pacemaker replacement in May, and have recently been experiencing unusual flutter/wheezy/mild SOB. Could this be a result of my battery power decreasing? Of note, my atrial lead is a bit wonky and is requiring increased voltage, also... I have recently been tested for covid 19, and am negative, so it's not that.

thank you so much for any insig...

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Scuba diving

I have always been advised by doctors and nurses that I shouldn't scuba dive with a pacemaker/ICD, however I saw a post here showing lots of you all scuba dive.

I always took the advise I'd been given, but it's clear that isn't the whole picture.

What are peoples' thoughts on scuba diving? 

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Magnetic field

I am having my pacemaker surgery next week. 
am a little or a lot afraid of the unknown. 
Magnetic field is on my mind a lot. 
should I be afraid or not??

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Magnetic field

I am having my pacemaker surgery next week. 
am a little or a lot afraid of the unknown. 
Magnetic field is on my mind a lot. 
should I be afraid or not??

Read More...

Pacemaker and PHYSIO STEP LTD

I was told that those machines have electromagnetic resistance and should not  be used by people with pacemakers. Yet when I was in the hospital and rehab I was using them on manual setting. Is PHYSIO STEP perhaps different than SCI LIFT or NUSTEP which hospital and rehab had?

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High Risk for COVID19?

Are we considered high risk for the Coronavirus if we have a pacemaker?

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LIght headedness

In the last two nights, when arising and going to the kitchen to get a glass of water I was light-headed. They told me I wouldn't have that anymore after having the PM placed. Is this something I should be concerned about? Thanks. 

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Newbie with a question

Hello All:

I recieved my ICD on March 13th after a diagnosis of complete heart block.  For some reason I needed to visit the Cath Lab again on the morning of the 14th to reattach one of the leads that had come off during the night. I was wearing a sling so I don't think it was something I did, but who knows.

I recieved a lot of information at the hospital, most of it direct and clear, but the subject of how long to avoid raising my left arm over my head was ambiguous, wit...

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New to the club

Hi there, 

I'm Nikky, I'm new to the club. I'm 50 and had my St.Jude dual chamber pacemaker installed 3/18/20. Hope everyone is staying safe out there. 

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CPR ?

After an ablation interupted (severed) the electrical system in my heart, I am now totally dependant on my pacemaker/ICD.  Have been trying to wrap my head around the fact that I'm being kept alive by a machine.

Curious however.......IF the pacemaker unit were to fail and I would pass out....would performing CPR even do anything?  I know the jolt from my ICD wouldn't work given I shared the unit has stopped performing in my scenario.

Meaning, if the heart has to...

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Passing out

Did anyone feel buzzing in their head before passing out?

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Coronavirus

 Does anyone know if we come in the "at risk" group if we are living with left bundle branch blockage and pacemaker. I am 67 and quite fit and healthy. 

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Device check

What all do they do when you have a device check right after you have a pacemaker implant?  How long does it generally take? Do they speed your heart up and slow it down? I would just like to have some idea of what they do before I go in. Thanks for your reply .

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medical alert cards

just wondering what type of cards you guys have as i dont have a card as such just a folded sheet with the details fo the devices on stickers, i see loads of different types of cards on google but cant get one like it. i recently got my icd implanted on monday 3 days ago

any help on where to get a detailed card with my details on it would be much appreciated 

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Getting Defibrillator on Friday

I'm 52/F who had a LAD Heart attack (aka Widowmaker) Jun, 2019. At the time my ejection fraction was 10-15%. After hard work, eating better and losing lots of weight, it went to 35-40%. Last week, echo revealed that it is now 20-25% so I was referred to an Electrophysiologist. My appointment was earlier today and they scheduled the procedure for this Friday. 
 

I was definitely scared out of my mind but I wanted to thank everyone posting for sharing your sto...

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You know you're wired when...

Your device acts like a police scanner.

Member Quotes

I love this new part of me, and very, very thankful that this technology exists and I know that it's all only going to get better over time.