Most Recent Messages

TENS unit safe?

I'm about to start PT. Do I need to go through the TENS unit drama or are they ok to use? I have a pm not an ICD. Called my cardiology office... as usual you need to wait 7-8 years for a callback.

 Thanks.

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Good night of sleep

Continuing the theme of using this exclusive club as my form of support...

The last month has been pretty tough as far as sleep goes. I didn't have sleep issues pre pacemaker install. However, post procedure...I have been waking up (sometimes several times a night) with "thud thud thud" pounding heart rate. Most of the time its when I lay on my poaemkaer side, probably has nothing to do with anything, but that's when I notice the issue. 

Also, I believe...

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What are normal Heart rate fluctuations with Pacemaker?

I've been a cyclist for years. 6 weeks ago I had an ablation done and a Biotronik pacemaker implanted. My condition before this was described as 2nd degree AV block, bradycardia, chronotropic incompetence, SVT and atrial flutter.  Symptoms were increasingly difficult getting my HR up when exercising making me feel short of breath, problems also when sleeping, feeling fluttering in chest and shortness of breath (sensation is kind of like something suddenly obstructing my breathin...

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New pacemaker

I got a pacemaker a few months ago. Since the beginning I was very sluggish. Went to the dr to have it tweeked. For about 3 weeks I had a ton of energy and felt great. Now I am back to sluggish and nap taking. I am 68 and have always been rather hyper. Is this to be expected or do I need to see the doctor again. I loved the energy level after the tweek. My husband said I needed to go back and have untweeked. lol Any suggestions. I am new at this and have no idea what to expect. Thanks in adva...

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Still some soreness.

I had the pacemaker fitted 6 months ago.  It took some months before it felt comfortable. I started playing golf with no after effects.   During the summer it felt more comfortable wearing light clothing.  For the past 2 weeks I have had some soreness around the site of the pacemaker. Sometimes the soreness feels like clothing is rubbing across the scar, then the site is sore to the touch.  Does anybody recommend a covering or pad over the site, and would it benefit&n...

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Covid Vaccine

Hello,

I was wondering if anyone else may have experience changes in their hearts after getting their two Covid vaccinations.  I went in for my 6 month check up with cardio doctor and when he looked at my echo he said he was concerned to see my right side severly enlarged.  Up to the point I have had a complete heart block due to Sarcoidois in my heart and all LV problems.  I have read how some younger people are having heart issues after the vaccine.  I go to see hi...

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Emotionally Struggling with sick sinus syndrome

Hey team, 

As talked about in a prior post, I had a dual chamber pacemaker installed in July, I'm 44 and pretty healthy to say the least. 20 years in the army, runner, weight lifter, 6'5" 205. I started feeling my pauses when I was around 24 yuears old. It took cardiologists (several) years to figure it out...I was diagnosed with being dramatic, too much caffeine, too much alcohol (never drank either more than my peers), anxiety. Finally in 2019, a cardiologist got sma...

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Pacemaker clicking

Boston Scientific U228 implanted dec 4 2019. When I sit at my desk I can hear it clicking (mechanical sound) Not all the time but lasts for a few minutes. I recorded it - I can hear two distinct sounds - the valve gushing sounds and the clicking sound. Curious - Is that normal?

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Flip Flops felt during recovery

Hello PMC! 
 

Hope all of you are blessed and doing well. I was wondering if anyone has experienced a flip flop sensation while your heart rate is coming down after exercise. When I get my heart rate to 150 or a little higher I can feel it on the way down back to baseline. It doesn't happen all the time but the past three times it has, I've felt flip flops/ectopics and even presyncope. It's like OMG what is happening in my heart right now??!!&nb...

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Bottle lock, security tag remover

Hi all, 

Has anyone worked retail, where the bottle lock magnet is on the counter not far from you?  Any experience with interference from these magnets?

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One Step Forward, Two Steps Back?

Hey folks,

Up until this past Friday, things have finally started to feel "normal". My vision spells and "foggy/unfocused" vision that were essentially preventing me from driving or being on my feet for more than 10-15 mins were "cured" with the addition of the BP med Amlodipine Besylate. Cardiologist prescribed it as a "guess" only after the extensive blood work, sleep test, heart stress test, brain MRI, brain CT, heart echo,...

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Curious

Hi, 

im just curious is anybody here in their 20s? I am 23 and I just feel like every one I know that has a pacemaker is much older than me (nothing wrong with that), but I was wondering if I can find friends here about my age and ask how they feel, because sometimes I get very anxious, I just got my PM implanted 3weeks ago (first time). 
thank you

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TRAVEL WITH A PACEMAKER

Just celebrated my second anniversary since having my pace maker installed. Had a recent checkup and was told my battery was good for eight more years. After receiving my pacemaker I decided to live ever day like it was my last.

I recently traveled across the coutry to the southwest and it's many natural wonders and national park. I decided to video my adventure and post it on YouTube, I wanted to get out as many handicapped and senior citizens who felt there active lives...

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heart rate increase

has anyone else noticed that they are able to increase heart rate by applying pressure to pacemaker site.  I have a medtronic dual lead that was placed in December 2013.

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Update on PMT and PSVT

I communicated my concerns to my EP that some settings had been "accidentally" changed, and that I might be having PMT and sent a Merlin transmission. They have assured me that the PVARP is correct and the pacemaker mode is DDIR--which I had forgotten. So no PMT.

Thanks again to all who replied to my post and to this forum in general. When questions come up, it's so comforting to have knowledgeable, sympathetic people to talk things over with and figure out what...

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Pacemaker Club - post Pacemaker/ICD Implant Pain Survey

Dear Members,

Over recent months, several members of the Pacemaker Club have expressed a wish to know how many of us experienced pain following implant of our devices, the nature and extent of that pain and how it affected different age groups and gender.   

A survey has now been set up with the kind help of Club members and the link to the survey is given below.  The survey is confidential and will not be used for marketing.  All members irrespective of w...

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Crtd

I get checked every 6 months and I have a latitude communicator to transmit information to the EP lab for them to check the pacemaker all the time. Find what is going on with doctor. No one should ever be discharged from your doctor. 

 

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Arm movement limits after pacemaker insertion?

Hi I am due to have a pacemaker on 30th November, and have just received some leaflets on what happens after surgery.

I am now worried how I will manage as I use a self propelled wheelchair (due to syncope, no motor deficits) and rely heavily on my arms and upper body. I am also a swimmer and run on an alterG treadmill. 

It would be awesome if the pacemaker enabled me to stand without fainting but I am realistic in my expectation and would be thrilled just to be less lighthea...

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Sudden Drop in HR During Exercise

For the last couple of months I've experienced a reduction in HR from 120-130 to the lower limit of 60 set on my PM during exercise. It usually happens in the 1 1/2 -2hr range and I have ton stop. My doc and the Boston Sci tech couldn't explain it. Has anyone had this happen and if so do you have an explanation? Thanks

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Discharged from cardiologist

Had a CRTD implanted in January and it seems to be doing what it should but after a visit to the cardiologist last week I find I have been discharged which doesn't make sense as I , like many on here I guess, have Heart failure ? 

Have they made a mistake or is it normal ? I only know because I was checking on next pacemaker check up which is in May; then they said cardiologist has discharged me. Seems odd although I guess there is not much more the cardiologist can do now I ha...

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I just had this miracle implanted two weeks ago and I’m feeling better.