Most Recent Messages

first time with pacemaker with hurricane approaching in florida

Is there anything i should be aware of because of pacemaker.  This is the first time after pacemaker implanted in 2019 to be near a hurricane in Florida.

Been though many hurricanes  as i have been in Florida since 1973.

 Am pacing myself in bringing in chairs and what might be flying other things.

Taking many deep breaths as hopping that will eliminate bouts of AF.

Heard might be passing by Wed. Sept 28.  Really hope it goes in another directi...

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Heart rate drop with dual-chamber pacemaker

Hi, I have my pacemaker installed about 10 years ago (I'm 24) (St. Jude) and have about 1 year before replacement. I'm taking a very small dose of beta-blockers (Nebivolol 1.25 mg) daily due to my anxiety and occasional sinus tachycardia.
Lately, I started noticing changes in my heart rate and how I feel. First I started feeling extra beats (PVC or PVC-like pumps in the diaphragm) that would usually happen 5 min after exercise (walking for example, the longer the exercise the mor...

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PACEMAKER IMPLANTED 2 WEEKD AGO

I had my pacemaker inplanted 2 weeks ago yesterday. I was supposed to see my doctor who is 2 and 1/2 hours away from us but had car trouble and had to cancel. Unfotunately my car needs a new alternator which we cant afford until my husband gets his SS check next month. 2 nights ago I woke up and my heart felt like it was racing. Should I notify the doctor of this immediately? I really don't know if I should be ultra concerned about it or not. 

I dont have an extablished re...

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Angry incision

I am four weeks out from having my pacemaker inserted I am finding that my incision is getting angry and red and there was a small amount of pus that came out of it so when I saw the doctor at the four week visit I explained it to him and he put me on another antibiotic but I'm concerned that it's gonna get a lot worse has anybody experienced this?

I have learned so much from this site, thank you in advance. 

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Anxiety

I had a pace maker installed three days ago my energy level hasn't increased and the dizziness/nausea hasn't dissipated. I'm scared and cry a lot. Is this normal?

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Can Medtronic Surescan replace natural heartbeat?

My brother just had a Medtronic Surescan W1DR01 implanted.

His doctor said that he severed the electrical connections so my brother's heart does not beat on its own anymore, and the Surescan causes his heart to beat.

I have reviewed all of the patient and physicians manuals for this device, and none of them describe this functionality.

They describe this as a pacing device that is used therapeutically to adjust his heart rhythm.

I am perplexed. Is it possible this...

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Blood rushing to my head when bending

Hi all

for a few years I have had this problem but like others, it's ignored. I have to sit on stairs to put on shoes etc as bending just makes my face and body so red. I have a PM (2010) but can't really recall when this problem began, certainly not before PM and meds. I suffer from AF also and heart failure which is worsening. Yesterday I was told after an echocardiogram that the right side of my heart is deflated and am awaiting a plan for treatment. Has anyone else had...

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Flying

Had pacemaker 3 years ago. Having flown yet. Is there anything to be aware of ? Thank you 

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Pneumothorax Causing Back Pain?

Hi all,

When I had the pacemaker implanted, they pierced my lung and I ended up with a pneumothorax (collapsed lung). They put a chest tube in through my side. One doctor thought it actually went into my lung rather than into the pleural space.

My implant was two weeks ago today. Tonight I have a sharp pain in my mid back, directly across from where the chest tube went in. I suspect the pain is caused by the chest tube having been there, but I'm not sure. I'm not short of...

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MRI biopsy for prostate

I have an MRI compatible pace maker but older leads are not compatible. I am an 80 year old male in good health and recently had a PSA of 10.6 which increased from 4.1 in 6 months. I have an appointment with a urologic oncologist soon and will be discussing a biopsy versus an MRI biopsy. I'm interested in any comments pertinent to my situation. 
         Thanks,                         &nbs...

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Vital Beat backpack

Anyone used the Vital Beat  back pack custom shield with a heavy back pack (40-60 lbs)? Paceguard does not do well for this heavy of a pack. Any feed back would be appreciated.

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What is the "bearing down" method?

I've noticed some of you talking about using the "bearing down" method to help slow a fast heart rate. I'm curious - what is that exactly? I have an ICD because I survived an SCA. Nowadays, if I feel my heart racing, I do a few deep breaths (in for 4, out for 6) and it seems to settle things down. I'm always open to other methods though!! In addition to the "bearing down" method, are there other things you guys do to slow your heart rate? I like to avoid g...

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Pacemaker

I had a pacemaker fitted in 2020 and every time I moved my left arm (left handed) it was rubbing on bone.  It was moved during open heart surgery in 2021 and was fine for a while.  It has now moved upwards and is grinding on my collar bone.  In addition it will stand up on end from the bottom.  I can hold both sides of it in my fingers.  My worry is that this amount of movement surely isn't good for the wires in my heart?  Can't seem to get any answers.&n...

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Pacemaker

Does anyone have same problem as me?  My pacemaker was fitted in 2020 and was catching on the bone every time I moved my left arm (left handed).  Had it moved during open heart surgery in 2021 but it has now migrated "north".  It catches on my collar bone and even stands on end from the bottom.  Can get my fingers on both sides of it.  My main concern is the leads.  Are they being pulled?  Can't get anyone to take me seriously.  Consultant...

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Club home page

Anyone know if you can change the default home page? If I'm not posting I like to look at recent posts and would like "recent messages" to be my default. The years old posts aren't very useful. 

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Rate Response set too high?

Hello Fellow Members.  I am 79 years old and have ongoing fatigue issues.  I am 100% paced. I'm pretty sure most of my problems are related to my pacemaker settings.  The rate response was turned on in June and it has not helped.  Lately, today for example, I was going to change the sheets.  After putting on the fitted bottom sheet I had to lay down for about 15 minutes.  My heart rate was 136.  Felt like I was going to collapse if I didn't lay...

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Intertogation report

My last report has the comment "abnormality seen on lead(s)" that's it. Everything else on the report I am happy with. No phone calls from Dr or clinic. Have left a message with Dr office just wondered if anyone knows if this can show on one interrogation and not the next? Thks in advance for any comments. I feel fine🤷‍♀️

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Frustrated

Newbie here. Have had pacer 18 months. Have been complaining of short or breath for close to year. Always told pacer was ok. Yesterday was told after nuclear stress test that pacer was NOT working correctly. Got called to pacer clinic and had nurse and doctor reset some things, I got walked about quarter mile to see if breathing waz ok during that time. It was ok. So now today I'm on my own. We will see if it works. I sceptical because they reset it 5 months ago and breathing got worse.

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Can a tech’s mistake damage my heart or pacemaker?

Hi all,

I have had a pacemaker for complete heart block (unknown cause; I'm 100% paced, but otherwise medically very healthy) since 2016.

Long story short:

On Monday, I went in for an MRI for something completely unrelated to my heart. I have an MRI compatible pacemaker that simply needs to be set by a tech before and after the MRI, and I have had at least 2 MRIs previously with this pacemaker without incident.

The techs who adjusted my pac...

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Just A Tweak

Being a newbie who stalked the forum before my implantation a few weeks ago, I have been hesitant to post my experience wondering if my personal story had any merit in helping anyone else. However, if even my experience could shed some small light on anyone else’s concerns, it could be of some value.

I am a 77-year-old male, with serious bradycardia and had an ablation for AF about two years ago. I had a Biotronik Edora 8 DR-T implanted. The procedure was unremarkable and after an...

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