Most Recent Messages

Still have "Hmmm" moments

I have been coming back to this forum quite a lot in the last few days. I am 3 months post-procedure (I had a pacemaker implanted to address pauses that were occuring along with a-fib), and I feel like I am maybe at another plateau of sorts. At first I did feel almost worse than I had before the pm. As I healed mentally and physically (and started a beta blocker), I began to feel healthy & energetic, and was very nearly symptom-free, even from a-fib. Recently though, I have been feel...

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Fell, should I have my icd checked?

Hello everyone,

I have been doing great, however, today while riding a bike I fell - my tires skidded. My left-side chest, shoulder, and arm hit the ground - luckily the ground was soft. Sounds dramatic, but luckily the only thing that broke was my phone holder - my phone and myself are completely fine. However, I am wondering, because I did hit my left side of the chest, the side that has an icd, should I have my icd checked out?  It's Friday, do you think I can just...

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Severe itching around device

I have had an icd for almost 3 years and recently I have had severe itching around the device. 

Has anyone experienced this?  

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Miserable

I switched cardiologist because he would only spend 2-3 minutes with me and he cancelled everybodys appointment that day and I made mine a month out. My new cardiologist spent at least 20 minutes with me and he was shocked that I was given an icd without an angiogram prior to surgery, he was not happy when no stress test was given. He stated he probably doesn't think I needed one however he made an appointment for me to have a stress test by the end of this month. Anyways my icd been in m...

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For pacemaker innovation geeks only

New, March 6, 2021. "Reconstitution of native intrinsic conduction in patients with chronic conduction block with His bundle pacing" published in the prestegious HeartRhythm Journal:

<https://www.heartrhythmcasereports.com/article/S2214-0271(21)00051-8/fulltext>

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Melatonin

Does anyone take melotonin to help with sleep while having a pacemaker and taking blood pressure meds....makes my blood pressure low like 87/60 normally it’s 117/75 wondering if this happens to any one else

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His Bundle pacing what is worth?

So you made need to scroll back to my post titled "two devices" to get caught up.  Brief update, my insurance covers only emergency room visits out of state, no consults, appointments anything.  The his bundle pacing sounds like a real long shot as to whether or not it will even help.  My EP who did his fellowship under the top guy at Mayo says he will do the procedure but he has 2 fails out of 3 attempts at the procedure, his partner who has done 11-12 (not sure fail...

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Genetic Testing

Has anyone here had genetic testing for heart block? I finally had my appointment with the inherited cardiac conditions team today (1 year later than it should thanks to covid) and they want to carry out genetic testing, despite it potentially being non-beneficial.

I am wondering what genes can cause heart block?

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Lead dislodge feer

Hey, I'm almost 5 weeks out from getting my pacemaker. Good news is I'm feeling so much better! I really don't have a problem sleeping with my pacemaker. And it's amazing how many things I can do easily that I couldn't do before now. I can't seem to get over my constant fear dislodging my lead

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Vigilant X4 CRT-D

On March 15 2021 I was fitted with biventricular device because I have CHF moderate to severe, one week or so it was fine, I got energy I started to go on my walks was feeling good, but about 10 days after that I started to have high rate of heart beats like racing, started to retain water in my lungs, belly and ankles, it got bad so I checked myself into the hospital and I'm still there as I write this. So far no one really knows why I'm having these issues with retain...

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cardio dr and pacemaker clinic

Saw a cardiologist this morning, said it was ok to switch to her and will see her  at least once a year for now.  Did draw me a diagram of what i have Aflutter(was not aware of that), Afib.  Mentioned of course blood thinners, Watchman and could have surgery to block the clots from going where?

  Also am now having my first yearly checkup for the pacemaker implanted Aug 2019.  At the pacemaker clinic, in the same office as the cardio and EP.    I...

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Remote Device check

Does anyone else feel terrible after a remote device check? I had my first remote one this morning and I have felt so exhausted and weak since they did it. My pulse is at 66, Oxygen at 96% and BP is 117/79.

My pulse will go up to 105 if I walk around, but as soon as I sit, it drops to the 60's. Feels like the top left front quadrant of my head is in a fog. Maybe 60 is too low of a pulse set?

I'm 67 and normally very active. Yesterday, Tuesday, I felt great and we hike...

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Activity mode.. Settings.

Hello. Iam a 75 yr old male with second pacemaker. My problem is SOB on any kind of incline.    Had nuclear stress test done In dec before     second pm procedure.All was ok with a 55 Ef. I had same problem with old pacemaker about 5 yrs ago. They turned up activity mode and all was good.

  Question. Can that be tweaked  up again without rasing my heart rate too high. Just walking accoss room will raise pulse to 100. It will go back to 70-80...

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intermittent block variation with heart rate

Hi all,

hope you are all doing well.

I am interested getting a feel for the people who have intermittent heart block whether they know if in their experience it reduces with increased heart rate or decreases.

Looking through posts on here I get the impression that the majority of people seem to see their block increase with rising heart rate but I am keen to know if any others are on here actually see it reduce with increasing heart rate.

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Pre-syncope with a pacemaker for Sick Sinus Syndrome

This is my first post, hoping someone can impart some knowledge! I was fitted with a dual chamber pacemaker in October 2020 for heart failure, asystole, syncope etc. due to Sick Sinus Syndrome with no other regulators in the heart backing it up. 

In January 2021 I was back in hospital for checks because I was having pre-syncope episodes. After two days in the hospital, I'd only had two very minor episodes, which the ECG did not pick up, so the conclusion was that it w...

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Heart Rate Monitors

I am an active cyclist and hiker w/ a pacemaker.  Recently, my Polar HR10 has been giving very strange readings.  It works for a while normally and then strats giving low rates, below 50 (which I know cannot be true).  Changing the battery does not seem to help.  I have purchased an Apple Watch 6, which is supposed to be accurate but is it?

Does anyone have any idea what could be wrong with the Polar strap?  Does anyone have any solid info on which is the more a...

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Sports at school - what to avoid and how to inform teachers?

Hi,

I'm new here. My daughter (6) got her first PM last Dec, so this topic is quite fresh for me. She goes to Kindergarden and will join school in September. Of course we will inform the school about her PM and give some general information.

However I wonder if I should give any specific instructions to the teachers for physical education. At the moment we told her to avoid climbing up walls and pulling up on bars. She doesn't do any regular sports time being as everything...

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pacemaker and desktop computer tower

  I have a pacemaker (Aug 2019). 

I am having  a problem with the fan not cooling in my computer tower.  The repair shop said to bring it in to them.  In speaking with a friend yesterday.  She mentioned that she thought the tower might have magnets, in the tower.  Of course that means i should not carry it in.  Is that true?

thanks for your help.

new to pace..

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Hitting a wall?

I wanted to report that now, 6 months post PM and 2 weeks post 2nd Covid vaccine, I feel much better. I've done some 2.5 mile hikes around town, with my pulse staying at about 90. While climbing 500 feet, my pulse did get to 150, but then recovered to 90, as I leveled out. My question is, as I am finishing the hike, my pulse comes down to my set 60bpm with my oxygen at 99% and I feel very tired. Is there a wave to the recovery rate that after you have high pulse numbers, does it...

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Newbie

I just got my pacemaker after a whirlwind weekend of emergency phone calls from my cardiologist. I got the call at work to get to a hospital asap. Apparently when reviewing my halter monitor results they saw a 30 sec pause. Holy moley. Before this all my doctors just chocked my fainting episodes up to vasovagal. 

Its been 3 days and I feel some tightness and fluttering in my chest, occasional shortness of breath, and some pain at my incision sight. I understand this...

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Member Quotes

Today I explained everything to my doctor, he set my lower rate back to 80 and I felt an immediate improvement.