Most Recent Messages

Walking vs steps

Good morning. I can walk a quarter mile with not breathing problem (my legs get tired), but when going up a flight of stairs, I get winded.

Is there that much difference in how much energy used, or is something else going on? - Mike

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Micra and Old PM

Hi, I have posted lately because my PM went into end-of-life mode. My surgeon had to (inexplicably) cancel his surgeries and they found an EP to replace mine; the new surgery date is this Friday.  In the mean time, this pacing is horrible!  Anyway, I was reading previous posts about the Micra.  What do they do with the old battery?  Does it have to come out or can it be just turned off and left in?  I am wondering because I am scheduled for major surgery a week after...

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Corlanor

I had been on Corlanor after a cardiac arrest/shocks from my ICD in Dec 2019.  I had complained about vision problems after starting the med, but my EP didn't say much about it and I didn't make a big deal of it, as it was listed as a side effect and I figured it was more important to take the med for my heart.  He called me recently and told me to stop the drug immediately.  If you are having vision problems on Corlanor, or if you are taking Corlanor, please speak to y...

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Views on Antibiotic prophylaxis before surgery or a dental procedure

Hi there

I just wondered your views and experiences on using antibiotics before surgery or dental procedure as a precaution to prevent bacterial infections with PMs to reduce risk of infective endocarditis? 

With my PM op they used antibiotics, with my loop recorder insertion they didn't. I've been told by a dentist that it's not normally recommended for teeth extractions, root canal, filing teeth to create space (part of orthodontic treatment) etc, but...

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Questions for Dr Follow-Up

Hi all! I have my 3 month checkup tomorrow with my Dr. (who is amazing btw; Dr. Mandrola; hope it's okay to share his name). Are there any questions y'all would recommend me asking? I'm 30 with HIS pacing. 

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Blood Thinners

Any one use Tumeric (Curcumin) as a blood thinner? Been using it for inflamation and it also is known to thin the blood. Thought about a PT test to see the effectiveness. Taking drugs Xeralto does not excite my wallet, unless it is absolutly necessary! Have flutter off and on. No diabetes or high blood pressure, not Fat! Areobic (serious) Exercise two hours every day but Sunday been at this for 40 plus years, thanks now a pacemaker. Bradycardia  My stroke risk factor is very low. Just a...

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Using crutches?

I'm scheduled to have a PM put in next week, in the midst of having a knee injury and being on crutches.  It is occurring to me that I may not be able to use crutches for some time after the implant.  

I didn't think to ask the EP about this.  Does anyone know?  

And when he said, "You shouldn't move your arm forward or backwards or reach up, and no pulling or tugging," (I think for 4 weeks) does that mean things like playing the pian...

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ICD shock

Hi all. 

I had a shock this morning and had to go to hospital. Thing is I have a 2 week old baby and now I am frightened to hold him incase it goes off again whilst I am holding him. 

I really don't know what to do or who to talk to about it. 

I can't go on just looking at my baby and worrying about not wanting to hold him. 

Any advice would be much appreciated. 

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Drop in Heart Rate and Blood Pressure During Exercise

Hey all,

I wanted to tap into the collective wisdom of the board since my doctors haven't been able to diagnose the issue.

This past spring I developed an issue while exercising (speed walking - 2.8 to 3.0 mph).  After going 2.3-3.0 mi, my HR will suddenly drop (less than 30s) to my resting HR (I have a Galaxy Watch, Wahoo arm band, and Polar H10 chest strap).  I then become dizzy and feel fatigued; furthermore, I am unable to raise my HR more than 10-20 bpm and am j...

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Entresto

Hey folks, I have had a pacemaker since April of 2020. Immediately after surgery I felt great, but then my doctor turned my resting rate up to 65 and started me on Entresto. Since then I have been very tired. When I sleep, it just doesn't feel like the sleep is nearly as good as it once was. Trying to figure out if it's the new drug or the higher rate. I'm only 40 years old and had minimal issues with fatigue prior to being diagnosed. Any thoughts?

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fatigue issues

Hi all....any advice most valuable please..?

Had my 3 lead pacemaker tweeked recently to suit my increase in rate response required at higher alpine elevations.This has made a hugh difference to my training plan and I was able to dig deeper when required.

I have been working out real well and snowshoeing through deep snow regularly for long periods.

I have just led a 5 day alpine skiils course that has left me feeling very depleted energy wise and suffering fatigue. ...

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having problems with newly installed dual chamber Biotronik Edora pacer

i am new to this group and just had my pacer installed thursday July 2nd. I thought everything was ok but a few times during recovery i felt this weird rumbling feeling, i told the doctor and staff about it but they said it was probably normal and was making adjustments... so i went with that, i got released and home friday and contunued to experience the weird feeling events, so on saturday i created a log and started recording when i had the event and low and behold it quickly became obviou...

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First pacemaker

Hey everyone! 
I just got my first pacemaker on July 1 2020.  I was told about all the driving/ arm restrictions.  Does that mean no husband time?  
Also- should I be concerned if I can feel pvcs or arrhythmias ?? 
 

and one more thing is - I accidentally hit the back of my right hand that had one of the IVs.  ( just got out of the hospital after 7 days) it literally started to balloon. I freaked out and had my husband put pressure on it...

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Blood thinner

Was told by nurse that I did not have to quit taking my blood thinner med prior to surgery. Almost all other procedures I have had had be quit 2 to 3 days prior. Any experience would be appreciated. Heading in Wed

 

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Fell Flat on My Chest

One week ago, I took a hard fall. I went down on my knee caps, my arms flew out so I did not break the fall, and I landed flat on my chest. The following day, I had some discomfort to the left of my pacemaker, towards my armpit. Each day the pain has become greater and has now traveled towards the center of my chest. It is painful to cough, laugh, sneeze, blow my nose, reach with my left arm, and take a deep breath. At first it felt like someone punched me. Could I have damaged the muscle tha...

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Pacing rate question

On June 30 I went in my first device check since getting my pacemaker on May 28. I was satisfied with answers I received at the time from doctor and the rep. As I  was advised here, I got a copy of my summary. I was told that my base rate is 70 and also told that the ventricle apex lead was pacing at 93.7% and the atrial appendage pacing 5.9% of the time. The doctor said this demonstrates my problem was LBBB and 3rd degree heart block and also said my SA node seems strong. The more...

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Overpacing

Does anyboody have experience with a pacemaker that paces the heart too fast - ie, significantly faster than needed for the activity at hand and/or faster than the heart is used to?  What are the sensations you have experienced.

I ask because I have swum a mile or more three times a week for over 50 years and also spent several decades on beta or calcium channel blockers while dealing with paroxysmal atrial fib.  The result was an ultra efficient heart,  a resting pulse i...

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Lead Removal

I am scheduled for a lead removal due to malfunction.

headed to the Cleveland Clinic and have Dr Wilkoff perform the procedure. I have anxiety associated with this and looking for anyone who has been through this to provide some advice.

 

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Seatbelts

This coming Tuesday marks two weeks since I got my pacemaker. It also marks the day I have been told I can drive again, but I must stick to driving an automatic at first (normatively I drive a stick shift, but the doctor who put in my device said I should drive an automatic for the first week before returning to stick shift). My concern here is with wearing a seatbelt. Riding with my wife, the seatbelt comes over the right shoulder, but it is a bit close to where my device was placed. I reali...

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Leads

I am two and a half weeks post op and, after being really careful, absentmindedly got up off my chair and stretched both arms over my head. Should I be worried about detaching a lead? Would I feel it?

Thanks in advance,

Jerry

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I'm 43 and have had my pacemaker four weeks today. I'm looking forward to living another 50 years and this marvelous device inside me will help me do that.