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ANY IRISH PACEMAKER RECIPIENTS

Hello again,
I posted a message last week but thought I'd do it again just in case .. .. .. ..

Just wondering whether any Irish Pacers would be interested in getting together. Please let me know if anyone is interested, there's 3 of us so far (from Dalkey, Donegal and Galway) but there must be more of you out there ........... drop me a line with any thoughts, thanks and look forward to hearing from you ......

Best regards,
Anita.


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Now Need Aortic Vavle Replacement

It had been four months since my PM implant and I had been experiencing chest pains. Had a heart cath done a couple weeks ago to determine the cause. I was told by my cardiologist that my aortic valve (which is bicuspid and should be tricuspid) now needs to be replaced. I am seeking an opinion from the Cleveland Clinic regarding the pending surgery....If all goes well expect to have the valve replaced the end of July or first of August at CCF with surgery done by Dr.Lars Swensson......

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name stuck

hi blake i am stuck on this site my name has been there for 24 hours and i am not on jessie

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Can't Log Out

For some reason I can't log out of the system.Can anyone help me? I've never had this problem before. What am I doing wrong? It bothers me to see my name all the time. Please make me go away.LOL .saragunther

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A 2½ pounds pacemaker?!!!

Hi Gellia.

I couldn't help but be shocked at the comment you made regarding your 1st pacemaker, implanted 32 years ago.
It weighed 2½ pounds? Would you mind elaborating? I'm very curious about how it felt, where it was placed, was part of it outside your body? etc.
Mine is a bit larger than the norm, but at about 3" long, and ounces in weight, the next time I have a complaint about how it feels, I'll remember how you must have felt, and feel fortunate about the advances made...

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relocation

  • by njh
  • 2007-07-18 07:07:23
  • ICDs
  • 2515 views
  • 3 comments

Hi everyone,

Just joined the club. Received my ICD in March, 2007. I'm not happy with it implanted subcutaneously. Hurts. Itches. Gets in the way. In Aug. I talk to the surgeon about the possibility of having it relocated under the pectoral muscle. Have done lots of reading about the pros and cons of the relocation. I've read a few postings from people who are happy with the ICD under the pectoral muscle. I'd really appreciate your feedback. Once the ICD is relocated, I know that the...

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Sore throat

Hi all, four weeks since I had my op, not feeling bad on the whole except a feeling of tightness in my throat whenever I try to breath deeply or attempt any excersise. Did a little swimming this morning and that really set my throat off, quite painfull for 15 mins or so. Any advise on what may be the cause of it, I seem to remember reading other posts about the same problem.

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Nearly Out of the Woods

My father who is 72 has had a pacemaker fitted on 13 June. He is doing well and has gone back to work, takes my mother shopping and is trying to live an active life. Unfortunately without warning he keeps experiencing going hot and slumping down this only last for a few minutes. When this happens his head goes forward and the colour goes out of his face.

Please could anyone let me know if they have experience this.

Thank you Debbie

Wishing everyone good health

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All caps.....

Hi Everyone - Could everyone please not use all caps when posting messages? It is probably my years creeping up on me but I find it more difficult to read a message in caps as opposed to upper and lower case. Even my new glasses did not help! Oh, what the years can do to us. Thanks, friends.
Sharon

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My Aunt

My aunt, who did develop an infection after a PM implant, and who was 99 yrs. of age, did pass away at 1:30 am yesterday morning. Thank you for your concerns and prayers. I will not be able to attend the service as she lived in Minnesota.

Again, thanks to all

Sharon

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PLEASE HELP

HELLO IA M 28 YEARS OLD AND HAVE IST. I HAVE HAD 5 SA NODE ABLATIONS AND 1 AV NODE ABLATION. MY PACEMAKER WAS IMPLANTED IN 2004. I CONTINUE HAVING IST EVEN THOUGH I AM ON THE MAX OF MEDS I CAN BE ON. MY CARDIOLOGIST WANTS TO HAVE MY COMPLETE ELECTRICAL SYSTEM ABLATED AND BE PACER DEPENDENT. I HAVE SEEN TWO EP'S AND BOTH DO NOT WANT ME TO BE PACEMAKER DEPENDENT THAY THINK I AM TOO YOUNG. INSTEAD THEY HAVE THROWN AROUND THE IDEA OF OPEN HEART SURGERY AND HAVING THE OUTSIDE OF MY HEART ABLATE...

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I went. I'm done!

Just got my 6th pacemaker implanted. For all of you that have to go for generator failure surgery, I'm getting to be an "old hat" at it. Still it causes a bit of trepidation. Mine is now finished and it went great. This is my 6th in 32 years with a dual implanted 25 years ago. I still have the same old wires, too. So far, this was the easiest yet. They really have improved their methods of reimplantation over the years.
I have gotten alot of really great information on this site and...

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More info about my case

Hello everyone...I thought I'd fill everyone in so far on what's been done. At little history first...

Current machine placed in May, 2006 under the muscle after previous one began attempting to leave my body in Dec 2005. That machine replaced another previous machine that began trying to leave my body in July 2005 only a few short months earlier. In both cases, infection was suspected, but could not be found despite extensive blood work (including cultures), x-rays, echocardiogram. I...

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Infection

What are the chances of developing an infection at the PM site? I have an aunt who is up in her latter nineties that had a pm implant 2 months ago and developed an infection that has her in the hospital undeer hospice care. Any comments?

Sharon

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Any Advice ?

I am almost 5 weeks post PM implant and I expected to feel alot better. I have been having seems like more in the evening episodes of after being up for not that long a feeling in my lower part my throat like someone is choking me sensation. When I go lay down it starts to go away. Has anyone else experienced this? I don't go for my PM check up until July 31st. I'm new to this club, but after reading a lot of stories I get the impression that Dr.'s just seem to not pay much attention to our litt...

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Advice please!

So I hope that one of you out can give me some advice and cheer me up a little. Most of you know my story by now. My last surgery was four weeks ago today nothing big just another ablation. So somebody please help me understand why I still feel no good. I still continue to have no energy in a way I think the doctors got my hopes up saying in two weeks your life should be back to normal and you can do anything.
I've been getting dizzy a lot more than I was, having a lot of spasms and its...

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Hello again

Hi all, hope that you are all doing well. I posted on this site a few weeks back as i had just found out that I needed a PM, i know have my date which is July 30. I am starting to get quite nervous and I no realise that i am about to get one.

This site has been so much help to me. I think it will be very important over the next few weeks.

Well you will be seeing alot more of me in the next few weeks.

Fiona

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Latest Lamb News

Hi folks

Our little one passed away yesterday. We called her Bluey because she wore a blue jumper. The weather has been so bad cold and frosty and now it is wet with a bad wind chill factor.
The sheep actually belong to the farm next door. Each year they give birth in the paddock next to our house. It is like a birthing ward with Ewes grunting and groaning just like us ladies giving birth. As we can hear them at night I just cannot bear it when the little ones get seperated...

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New From England

Hi My name is Eileen and i am from England. I have a De-Fib/Pacemaker and have a condition called non-compaction. Episodes of VT. I have lots of eptopic beats and pulputations. I am now 29 years old. Does anyone have the same as me or similar.?

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Still in hot pursuit...of a diagnosis

Hello again everyone! I am still trying to get a diagnosis for my arm swelling and pain. I have since graduated to increased pain meds including motrin and percocet taken together. The swelling is no different. Been to a second ER by pacer guy. The ER staff read the pacer doc's notes (which include his denial of pacer involvement in my symptoms which started after it was implanted) and went on that. I was sent home again with only additional pain meds....and, by the way, a documented fever now.<...

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You know you're wired when...

You run like the bionic woman.

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Your heart’s electrical system has a manmade helper. A helper that only knows to do what it is programmed to do and will perform that function day in and day out, without fail. Now, go enjoy your new grip on life.