Most Recent Messages

ICDs & Amiodarone

On Feb 21st,2007,my husband passed away. In June,2006 they implanted an ICD and a week later he got 5 shocks,one so bad he felt like it was going to knock him out of his chair. They put him back in the hospital & put him on Amiodarone.They sent him home and he started having trouble breathing. I kept calling his heart Doctor and he did nothing except a chest xray & said his lungs were fine. From June till Feb I was complaining to the doctor that he was having trouble breathing. He did nothing.



Does anyone know the proper protocol for administering a Stress Test to someone who is likely to experience sudden cardiac arrest , has only 1/3 of her heart , a completely defective ICD acting as a time bomb in her chest, needs a heart transplant , is deeply depressed and stressed to the max ?


Getting used to it!!

Hi Blake,
Thanks for the new website.You did a great job.I was a bit confused at first but now I have worked it all out!
I love all the "youre wired when" jokes.
Regards from Kay(rewiredaussiegirl)


Sick sinus syndrome

My husband Stu has SSS he received a pacer in Jan 06 for bradycardia and now requires ablation for atrail flutter. He has been expereincing breathlessness and chest pain. The balation is set to take place on Wednesday. Are there others who have had similar expereience. Would love to know if and how they doing.
Regards Donna


New batteries going to 15 years!!

EaglePicher claims "world's smallest" implantable battery
Posted Mar 18th 2007 1:48AM by Darren Murph
Filed under: Misc. Gadgets

We've just about had our fill of "world's smallest" gizmos this week, but when it comes to a new development in the battery realm, we certainly won't complain with delivering power in a less burdensome manner. Vancouver's own EaglePicher Medical P...


New Pacemaker

I recently had a "new" medtronic pacer put in. The batteries on my old one pooped out. I feel like this pacer does a better job.
I have noticed during exercise that I am less short of breath now, then I was with the older Medtronic. Could this be possible or am I just imaginging it?

Another question.

Are life expentancies the same with pacemakers or are they lowered?


Help, I need input!

While on Chemo, I was put on Amiodarone for Atrial Fib. After chemo I wanted to get off of this nasty drug. Since then I have been on Propafanone, Flecanide, Tikosyn and 2 ablations, I am at the point of either another ablation (if I have the courage) or a pacemaker with AVNode ablation. The rock and roll effect of the AF has decreased quite a lot, so I am more comfortable, but the energy level and stamina is crappy. I would like to hear from anyone with a pacemaker or someone with similiar...


My Lump

Hi, my name is Paul and I live in Austin, Tx. I just received my device 4 weeks ago (st. jude #365) and its been very difficult. I found this site and viewed some postings and see that I am far from being alone! My device moves when I lift my arm just like the other member was saying....phew glad to hear that. I must go find a job now, although I get tired so easy I am scared. I am glad that this site is here and I wish fellow members a hello and smile. Thanks for allowing me your time. Paul


New, improved website!

Hi Everyone, WOW - this new website is fabulous but I am having a heck of a time using it. I feel very awkward, most likely because I could almost navigate the old site with my eyes closed (exaggeration). It will take a little time to get accustomed to the changes but the site looks very professional and is extremely well done. Great job, Blake!


New Website


To post a message, click on forum and scroll up to post a message. (for those who did not notice it yet) The new format looks nice Blake.



You know you're wired when...

You can take a lickin’ and keep on tickin’.

Member Quotes

We are very lucky to have these devices.